Anyone out there diagnosed with Pudendal Neuralgia?

Posted by LeighO57 @leigho55, Jun 5, 2018

I have not been on connect for quite a while since I have only recently received a diagnosis (one of many probably to come) I am looking for someone/anyone who has the pain from a surgical injury of sorts to this nerve to talk to. Is there anyone out there with Pudendal Neuralgia on connect? Thank you!

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@pwgrimes

My rectal pain started after a colorectal surgeon did an unneeded surgery. A simply Botox in sphincter to allow a supposed fissure heal. It left me in antagonizing pain. 24/7no way for relief. He wrote lies about me and I could not get a doctor or emergency room to help. I had the tests to show I never took opiates. If I could I would have. My medication doctor does urine test often an all patients. I have seen him for 9 years. It was also written in my med file I am bipolar. I have a letter stating I have never had anything but depression and anxiety from my pain and I am Celiac and have MTHFR. all has ruined my insides. Now the scar tissue he left doing what to my anal canal is growing and my anal canal is only 1/4 inch. The pain gets worse when I have to go potty. It is a hot knife stabbing inside me. My body has gone out of normal brain messages, called functional neurological disorder. No help for that. The network of nerves in the brain is sending the wrong messages. When the pain starts the body goes into shaking inside, arms and legs have lost ability to hold me up without help, my memory is gone and my speech is like a drunk disabled person. Ny life has been hell for 2.5 years. Doctors cannot fix the scar tissue, it causes the pain and that causes my body to go anything but balanced. I look a pathetic old lady, instead of the weight work and Pilates for 35 years. The 2 autoimmune diseases have caused my body to not be nourished. I just found out at 73 years how many problems I have in my body. I don’t see any future. My husband is not happy with my needs. I can move around in pain and off balance. I cannot go do anything but doctors offices who just send me to someone else. I don’t think I can live much longer. The colorectal doctor I saw says there is no surgery, medicines to help. I have been to Specialist PT but it causes pain. Then the doctors pull the therapy. I might try a stimulators implant, but the closure will still be there. One angry surgeon has killed me because with no evidence started to slowly cause my deterioration. He never did any lab tests. I never saw him before I went seeking help for constipation and general pelvic pain.

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Have u investigated a spinal pain pump?

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I have it occasionally. I am going to try a ganglion impar block. I have other pain issues sonI am on cymbalta/ Tylenol/ Valium and hydrocodone if I need it.

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@nickyfriskel

Is anyone experiencing chronic pelvic pain? I'm 2 years in and can't get anything to help with breakthrough pain. I take 1200mg of Neurontin three times a day... If makes me stutter and have tremors.... It manages 60% of the pain but the rest is still unbearable. I'm finally scheduled for an MRI on Monday... I'm hoping for some kind of miracle I guess!

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I see this an old post. It is now 2025. I pray u r better . Did u get relief?

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