Unknown Body Odor

Posted by Deprest @deprest, Jan 4, 2012

I need help! I've got a bad odor coming from my body, that I can't smell. Yes it's hard to explain. Doctors think I'm making it up. In public people avoid closeness, coughing, holding their noses, avoiding me at all cost. I'm a prisoner in my home. Don't venture out unless low on food and pick times to do it. I'm constantly shamed.im healthy, clean. Homes clean, I can't explain. Have spent last two yrs going to every type doctor to no avail. My family can't smell it either. Has anyone heard of this?

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Profile picture for unique30 @unique30

Hello everyone!I really need help figuring out what’s going on with me. I have impeccable hygiene! But, I smell horrible at all times! Most common odor is of sweaty socks. What’s weird is that my feet don’t smell at all. I can smell the odor around my nose. The crease of my nose to be exact.The odor would get worse depending on my diet. But, it doesn’t matter what I eat, I smell. The odor is very strong. I don’t consume dairy because the odor would get worse, and I get a fecal/poop/sewage odor.I’m not sure if these odors are coming from my stomach. I had endoscopy done, perfect oral health, tonsils removed, tmau test was negative. I was positive for Sibo only. No matter what I do, I smell bad, musty. I take 2 showers a day, scrub, use antibacterial soaps etc, nothing helps.I know is coming from inside of me. I constantly smell like cheese. I don’t have any parasites, fungus or anything else that could be possibly be causing this. I can’t take the embarrassment anymore. People don’t understand that is a health condition, not that I’m a dirty person. My hormones are fine, within range. I have notice that close to my ovulation the odor would decrease somewhat, and very rarely I get one good day where people don’t complaint about the smell. I have narrow it down to be close to my ovulation day. I really don’t know what else to do. I have visited, endocrinologist, ENTs, Gastros, functional doctors, dentists, Obgyns.

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Hi. Have you found a cure yet?

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Profile picture for unique30 @unique30

Hello everyone!I really need help figuring out what’s going on with me. I have impeccable hygiene! But, I smell horrible at all times! Most common odor is of sweaty socks. What’s weird is that my feet don’t smell at all. I can smell the odor around my nose. The crease of my nose to be exact.The odor would get worse depending on my diet. But, it doesn’t matter what I eat, I smell. The odor is very strong. I don’t consume dairy because the odor would get worse, and I get a fecal/poop/sewage odor.I’m not sure if these odors are coming from my stomach. I had endoscopy done, perfect oral health, tonsils removed, tmau test was negative. I was positive for Sibo only. No matter what I do, I smell bad, musty. I take 2 showers a day, scrub, use antibacterial soaps etc, nothing helps.I know is coming from inside of me. I constantly smell like cheese. I don’t have any parasites, fungus or anything else that could be possibly be causing this. I can’t take the embarrassment anymore. People don’t understand that is a health condition, not that I’m a dirty person. My hormones are fine, within range. I have notice that close to my ovulation the odor would decrease somewhat, and very rarely I get one good day where people don’t complaint about the smell. I have narrow it down to be close to my ovulation day. I really don’t know what else to do. I have visited, endocrinologist, ENTs, Gastros, functional doctors, dentists, Obgyns.

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I know this is not a permanent solution but a whole body deodorant call Lume for women and for men it's called Mando. Plus you can add scented crystal beads to your wash for cloths and a scented dryer sheets. I know this does not solve you problem directly but may help between showers daily. I not much for lady or men's colognes or perfumes, but a lightly scented one can be dabbed onto your body and cloths.

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Profile picture for unique30 @unique30

Hello everyone!I really need help figuring out what’s going on with me. I have impeccable hygiene! But, I smell horrible at all times! Most common odor is of sweaty socks. What’s weird is that my feet don’t smell at all. I can smell the odor around my nose. The crease of my nose to be exact.The odor would get worse depending on my diet. But, it doesn’t matter what I eat, I smell. The odor is very strong. I don’t consume dairy because the odor would get worse, and I get a fecal/poop/sewage odor.I’m not sure if these odors are coming from my stomach. I had endoscopy done, perfect oral health, tonsils removed, tmau test was negative. I was positive for Sibo only. No matter what I do, I smell bad, musty. I take 2 showers a day, scrub, use antibacterial soaps etc, nothing helps.I know is coming from inside of me. I constantly smell like cheese. I don’t have any parasites, fungus or anything else that could be possibly be causing this. I can’t take the embarrassment anymore. People don’t understand that is a health condition, not that I’m a dirty person. My hormones are fine, within range. I have notice that close to my ovulation the odor would decrease somewhat, and very rarely I get one good day where people don’t complaint about the smell. I have narrow it down to be close to my ovulation day. I really don’t know what else to do. I have visited, endocrinologist, ENTs, Gastros, functional doctors, dentists, Obgyns.

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Body odor wasn't my issue, but it may surprise you that we are all harboring yeast which give off their waste. A cause for many health issues is the yeast living in our intestines. I developed multiple forms of eczema in middle age, yeast was never diagonosed by my oncologist or other doctors. Still I was suffering so I kept reading about ways to improve my health. I wanted a cure and not a treatment.
I came upon the book, The Yeast Connection Handbook by William Crook, Md. He wrote this book decades ago. It's a simple, fast read for the layperson in which he explains what this yeast waste is doing to our bodies and is causing various health issues and diseases.
Your body is clearly out of balance, the book can be bought second hand and is inexpensive on the internet.
Following his detox is challenging, but I did it and today 5 years later still avoid his #1 culprit, processed sugar. It's all explained in his book.

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Profile picture for unique30 @unique30

Hello everyone!I really need help figuring out what’s going on with me. I have impeccable hygiene! But, I smell horrible at all times! Most common odor is of sweaty socks. What’s weird is that my feet don’t smell at all. I can smell the odor around my nose. The crease of my nose to be exact.The odor would get worse depending on my diet. But, it doesn’t matter what I eat, I smell. The odor is very strong. I don’t consume dairy because the odor would get worse, and I get a fecal/poop/sewage odor.I’m not sure if these odors are coming from my stomach. I had endoscopy done, perfect oral health, tonsils removed, tmau test was negative. I was positive for Sibo only. No matter what I do, I smell bad, musty. I take 2 showers a day, scrub, use antibacterial soaps etc, nothing helps.I know is coming from inside of me. I constantly smell like cheese. I don’t have any parasites, fungus or anything else that could be possibly be causing this. I can’t take the embarrassment anymore. People don’t understand that is a health condition, not that I’m a dirty person. My hormones are fine, within range. I have notice that close to my ovulation the odor would decrease somewhat, and very rarely I get one good day where people don’t complaint about the smell. I have narrow it down to be close to my ovulation day. I really don’t know what else to do. I have visited, endocrinologist, ENTs, Gastros, functional doctors, dentists, Obgyns.

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Have you had your cortisol levels and liver enzymes checked? It could be a combo of adrenal fatigue, the SIBO. You can take natural supplements for your liver to help detox. Maybe try sitting in a sauna to try to detoxify?

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I have been going through the same thing for over 7 years. I only recenyly sought medical expertise and the doctor also suggested that I was making it up, that its phycological. I struggle with, social anxiety, low self esteem and deprrssion because of it. I stayed at home for a year barely going anywhere. I had no choice but to go out to work now, I used to work from home but thats not an option anymore and yes its the same reactions even back in school. I did some research and came up on this term olfactory hallucinations body odor. All that I read added up to what the doctor suggested however it doesnt explain why when I'm around other people, they plug their noses or wipe their noses or smell their own armpits. Their actions suggest what the doctor claims isn't happening. I have tried every deodorant, antipersirant, medications even natural remedies nothing works I don't know what to do anymore.

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Profile picture for ttb @ttb

I have been going through the same thing for over 7 years. I only recenyly sought medical expertise and the doctor also suggested that I was making it up, that its phycological. I struggle with, social anxiety, low self esteem and deprrssion because of it. I stayed at home for a year barely going anywhere. I had no choice but to go out to work now, I used to work from home but thats not an option anymore and yes its the same reactions even back in school. I did some research and came up on this term olfactory hallucinations body odor. All that I read added up to what the doctor suggested however it doesnt explain why when I'm around other people, they plug their noses or wipe their noses or smell their own armpits. Their actions suggest what the doctor claims isn't happening. I have tried every deodorant, antipersirant, medications even natural remedies nothing works I don't know what to do anymore.

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there is an old person's smell. i have it. using anti bacterial soap helps.

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Profile picture for kforrest @kforrest

there is an old person's smell. i have it. using anti bacterial soap helps.

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Okay I will try that thank you for the advice.

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“Olfactory reference syndrome (ORS), preoccupation with a false belief that one emits a foul or offensive body odor, has been described around the world for more than a century. However, only a few small studies have systematically assessed ORS's clinical features.”
https://pmc.ncbi.nlm.nih.gov/articles/PMC3139109/#:~:text=Olfactory%20reference%20syndrome%20(ORS)%2C,systematically%20assessed%20ORS's%20clinical%20features.
I didn’t see anyone mention that they saw a therapist or a counselor concerning this interesting illness. I’m not saying anyone crazy especially with all the responses but cover all the bases especially when regular medical channels have been exhausted. Also, consider a naturopathic doctor too.

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Profile picture for unique30 @unique30

Hello everyone!I really need help figuring out what’s going on with me. I have impeccable hygiene! But, I smell horrible at all times! Most common odor is of sweaty socks. What’s weird is that my feet don’t smell at all. I can smell the odor around my nose. The crease of my nose to be exact.The odor would get worse depending on my diet. But, it doesn’t matter what I eat, I smell. The odor is very strong. I don’t consume dairy because the odor would get worse, and I get a fecal/poop/sewage odor.I’m not sure if these odors are coming from my stomach. I had endoscopy done, perfect oral health, tonsils removed, tmau test was negative. I was positive for Sibo only. No matter what I do, I smell bad, musty. I take 2 showers a day, scrub, use antibacterial soaps etc, nothing helps.I know is coming from inside of me. I constantly smell like cheese. I don’t have any parasites, fungus or anything else that could be possibly be causing this. I can’t take the embarrassment anymore. People don’t understand that is a health condition, not that I’m a dirty person. My hormones are fine, within range. I have notice that close to my ovulation the odor would decrease somewhat, and very rarely I get one good day where people don’t complaint about the smell. I have narrow it down to be close to my ovulation day. I really don’t know what else to do. I have visited, endocrinologist, ENTs, Gastros, functional doctors, dentists, Obgyns.

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Hi Unique ! You are not alone I've been dealing with all the same symptoms and its so heartbreaking because we are not dirty people. I've been dealing with this for years. Lately it seems to be getting stronger and I just don't know why or what it is. I've had 2 Endo's done seen all the doctors you can think of and nothing. The only thing that seems to help at all is not eating at all. I've been taking chlorophyll and probiotics that has helped a lot when I Manage my food intake. Where did you get tested for TMAU? I'm hoping I test positive for that so it starts to make sense but I cant figure this out and am so tired of dealing with this !

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Profile picture for alisha2275 @alisha2275

This post is quite old but I am experiencing the same problem for about 2 years. I’ve given up on doctors and I’ve been prescribed 17 different medications for the pain in my stomach and antibiotics for something I’ve never been diagnosed with. 2 colonoscopy’s and 2 endoscopy’s, countless other tests being done, doctors can’t/don’t care to help me with my problem. I’ve been suicidal several times in the past 2 years. I am severely depressed and insecure and my marriage is falling apart. I don’t know what to do anymore. I’ve spent hundreds of dollars trying supplements and supposed cures online. I have gone through 3 doctors and 4 separate specialists and therapy doesn’t help any

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We are living the same life. You are not alone. You are not crazy. The odor is better when I barely eat food. I also take 2 chlorophyll pills now that help somewhat. If you ever figure this out please let me know!!

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