I went to the Mayo Clinic. And had 5 days of testing to confirm the Amyloidosis.
I did 5 months is weekly shots, chemo and steroids.
My light chain numbers started @ 133, they went down to 44. I went back to Mayo, got a new oncologist/hematologist she changed things up a bit. I have since September taken 1 shot a month and take Venclexta daily. My numbers are finally in the normal range. I feel more like myself again.
I am waiting to see a cardiologist @Mayo that specializes in HCM & Amyloid. ( there are 8 @ Rochester). It’s funny I had never even heard of Amyloid and they have 8 cardiologists that specialize In it.