Does anybody have Crohn's disease?

Hi again,

I have just printed off the Low-fibre diet do's and don'ts on the Mayo Clinic website. I looked up LDN and remember you telling me about Naltrexone. These foods even appeal to me more than the foods on the Mediterranean Diet.
The only risk listed is that if you are on this diet longterm you might not be getting all your nutritional needs. How do you deal with this part.
I so appreciate your time. When I asked my doctor he has no idea what diet to suggest and to just do research. Just said don't eat any rich foods!!!!

LDN is Low Dose Naltrexone and there are numerous websites devoted to it. They can tell you way more than I can. The one from Briton is very good. They are way ahead of us when it comes to LDN.
The very low fiber diets are for you are in a flair. There maybe only a few foods you will tolerate. Start very slow and find out. I use instant mash potatos (milk is a question if you are intolerant), jello, sometimes with yogurt mixed in if you tolerate it. Remember to let the jello cool a bit so you get the active part of the yogurt. I'm not sure what rich foods are so I don't worry abut that. Easy to digest is what I am after and calories, we need those. After a few days and things have calmed down, you can add foods from the low fiber list. As to nutrition, I have a lot of vitamins I take, but not every day. You will become an expert in what you need and where to get it. Read, read, read!

Oh, and I can eat nuts if I chew them well. A regular Crohn's patient should probably not try. Nut butters are mostly ok.

We are all varied with what affects us. It’s been 50 years of trails and errors on so many aspects of Crohn’s Disease. IBD. Foods it’s always been about foods with my bathroom (office) visits. A food or anxiety did not give me Crohn’s or can take it all away.
I have found ,even before I was diagnosed that if I eat this I feel sick ! Running to the bathroom to have diarrhea and vomit for a long time. If I don’t eat this I’m pretty well as far as having no control of my body functions. It’s still and has been a traumatic experience. I’m one that always knows there are many worse than me. So I deal w mine. Perianal is the very worst right now

I'm not sure anyone offered some diet suggestions to Sharleneh- or anyone else so I will try. I have had Crohn's for over 40 yrs and I am still here so must be doing something quasi-right. In a flair- go as low fiber as you can. Get calories from from sources that your gut doesn't have to process. Instant mashed potatos, jello, puddings and the like. Do this for several days until things quiet down and/or your doc offers something else. Then add back things still concentrating on low fiber. Most cook books or the internet can offer low fiber diets. The Mediterean Diet is not for you. When you are tolerating this is well, you still have to be careful. Don't get overconfidant and trip yourself up. You will find out your trouble spots and they are likely different for everyone. Look at Low Dose Naltrexone and its effect on Crohn's disease. It helps over 80% of us, me included. I've even had a "normal" colonscopy. I have to eat all my veggies well cooked and as a child, I loved raw vegatables. Believe me, your life isn't over. Far from it. Go and do. Treat yourself well.

Hello! My son has Crohn's disease. He is only 22. He loves to eat well, and then suffers. Can you tell me what your usual diet is like? And maybe you can suggest tasty and nutritious dishes for Crohn's disease?

I'm not sure anyone offered some diet suggestions to Sharleneh- or anyone else so I will try. I have had Crohn's for over 40 yrs and I am still here so must be doing something quasi-right. In a flair- go as low fiber as you can. Get calories from from sources that your gut doesn't have to process. Instant mashed potatos, jello, puddings and the like. Do this for several days until things quiet down and/or your doc offers something else. Then add back things still concentrating on low fiber. Most cook books or the internet can offer low fiber diets. The Mediterean Diet is not for you. When you are tolerating this is well, you still have to be careful. Don't get overconfidant and trip yourself up. You will find out your trouble spots and they are likely different for everyone. Look at Low Dose Naltrexone and its effect on Crohn's disease. It helps over 80% of us, me included. I've even had a "normal" colonscopy. I have to eat all my veggies well cooked and as a child, I loved raw vegatables. Believe me, your life isn't over. Far from it. Go and do. Treat yourself well.

Hi, this is my first time commenting. My husband was diagnosed 3 weeks ago with Crohn’s disease. He had surgery where part of his intestines was removed. We haven’t had his follow-up appointment yet to discuss the plan for this. Thank you for sharing.