Does anybody on here have crohns disease?

Posted by genabarrick @genabarrick, Nov 27, 2023

I have really bad pains from crohns flare ups. I was told there was a growth on my intestine.

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Profile picture for suetex @suetex

Have him look at the web sites devoted to Low Dose Naltrexone and Crohn's and read up on it while he is waiting for follow up. He probably won't get it from his GI doc. (They don't "believe" in it.) But any type of doc can write a script. Far as I'm concerned, it put me into remission. I am now medication and symptom free.

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I should mention that before LDN I had my appendix out (during a flair) and then my small intestine developed small ulcers through-out which only budesomide (steroid) would handle. I asked for LDN from my rheummy for cronic, non-moving pain. After about 3 months, I realized I didn't need the steroid for my small intestine. If your hubby is using opiates as pain releavers, he will have to finish with those first before using LDN.

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Profile picture for suetex @suetex

Tell him to read about Low Dose Naltrexone then find a doc to perscribe it. I did and I have been symptom and medication free for several years. In the meantime, roughage is mostly the problem. Start small and see what is tolerated and then add to it. Crohn's is too varied to say more.

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@suetex - I'm posting a couple of published studies on low-dose naltrexone for Crohn's, which may be what you're referencing:

- Low-dose naltrexone therapy improves active Crohn's disease https://pmc.ncbi.nlm.nih.gov/articles/PMC8996009/

- Low-dose naltrexone for the induction of remission in patients with mild to moderate Crohn’s disease: protocol for the randomised, double-blinded, placebo-controlled, multicentre LDN Crohn study https://pmc.ncbi.nlm.nih.gov/articles/PMC8996009/

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Profile picture for suetex @suetex

Have him look at the web sites devoted to Low Dose Naltrexone and Crohn's and read up on it while he is waiting for follow up. He probably won't get it from his GI doc. (They don't "believe" in it.) But any type of doc can write a script. Far as I'm concerned, it put me into remission. I am now medication and symptom free.

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Awesome! I will. Thank you. Did you have surgery where a part of your intestines was removed?

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Profile picture for smontgomeryh @smontgomeryh

Awesome! I will. Thank you. Did you have surgery where a part of your intestines was removed?

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It turn out to be an appendectomy so easy to let go of. I think having part of your intestine out is another category all together.

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