1. < Inflammatory Bowel Disease (IBD)
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Does anybody have Crohn's disease?

Posted by genabarrick @genabarrick, Nov 27, 2023

I have really bad pains from crohns flare ups. I was told there was a growth on my intestine.

Interested in more discussions like this? Go to the Inflammatory Bowel Disease (IBD) Support Group.

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lkleck | @lkleck | Oct 25, 2025
In reply to @pb50 "Hi. It appears you are new to MayoConnect. Its a great community and some point one..." + (show)
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Hi. It appears you are new to MayoConnect. Its a great community and some point one of our awesome mentors will officially welcome you and make sure your question is on the best focus areas. Sadly, since you have a specific question, let me say I do not have Crohn’s disease. I do have a different autoimmune disorder, Rheumatoid Arthritis. And I have flares with that. And I just had lung cancer removed six months ago.

When you say they told you there is a growth on your intestine can you talk a bit about that? Was it found in testing of some kind? Did the docs say how they want to react to it? Like more testing or imaging?

I guarantee that someone in this incredible community has walked the path you find yourself on. They will find us. Maybe not tonight tho. So in the meantime let’s just explore what you know and how you learned it. If that suits you.

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@pb50 I have crohns and just joined

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Becky, Volunteer Mentor | @becsbuddy | Oct 25, 2025
In reply to @lkleck "@pb50 I have crohns and just joined" + (show)
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@pb50 I have crohns and just joined

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@lkleck Welcome to Mayo Clinic Connect ! You are in the right support group! If I may ask, what prompted you to join Connect? Maybe tell us a little bit about yourself. Where you live, how old you are (can ship this one!) are you working or retired? In school? My English is really bad here, so just ignore it. Past my bedtime, so just ignore my punctuation, and words that got messed up or misspelled.

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aktink | @aktink | Nov 9, 2025

Hello, family member has Crones Disease. Recent re-section (x2), left hospital and returned due to dehydration. Had leakage and now has an ileostomy. Still in hospital due to uncontrolled high output. Any suggestions? Thanks

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Moderator
Lisa Lucier, Moderator | @lisalucier | Nov 10, 2025
In reply to @aktink "Hello, family member has Crones Disease. Recent re-section (x2), left hospital and returned due to dehydration...." + (show)
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Hello, family member has Crones Disease. Recent re-section (x2), left hospital and returned due to dehydration. Had leakage and now has an ileostomy. Still in hospital due to uncontrolled high output. Any suggestions? Thanks

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Hi @aktink - welcome to Mayo Clinic Connect. I'm sorry to hear about this family member who had a resection and then had to return to the hospital due to dehydration, then leakage and an ileostomy. That's a lot.

How is this family member feeling today? What type of home management/recovery program will they be on when dismissed from the hospital?

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aktink | @aktink | Nov 11, 2025

Hi, Ct scan yesterday shows another abscess near resection. Put back on antibiotics. No MD connection when I visited last night while I was there. No home instructions as of yet that I’m aware of.

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aktink | @aktink | Nov 11, 2025

Thank you- waiting for procedure to be scheduled for today. I wish we were in a Mayo Clinic. 😔

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aktink | @aktink | Nov 11, 2025

Welll it’s not an abscess, it’s a string of small abscess. Treating with antibiotics for now. 😔

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| @hopeseeker22 | Nov 11, 2025
In reply to @lisalucier "Hi @aktink - welcome to Mayo Clinic Connect. I'm sorry to hear about this family member..." + (show)
Profile picture for Lisa Lucier, Moderator @lisalucier

Hi @aktink - welcome to Mayo Clinic Connect. I'm sorry to hear about this family member who had a resection and then had to return to the hospital due to dehydration, then leakage and an ileostomy. That's a lot.

How is this family member feeling today? What type of home management/recovery program will they be on when dismissed from the hospital?

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@lisalucier
I’ve had 2 CD related surgeries. Abdominal access and anal fistula. How your hospital could ave discarded you, not anticipating at least further problems eludes me. Am so sorry but fear for quality of treatment at get-go. Or was I just lucky? Be better! T

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aktink | @aktink | Nov 12, 2025

Frustrated, but in high hopes the abscess string resolves with antibiotics. Not looking good from what I’ve read on line so far. Yikes!

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aktink | @aktink | Nov 18, 2025

IR to preform removal of string of abscess tomorrow. Labs went up a little as well as appetite. Body seems fragile, so thin in my opinion. But skin coloring is very improved. Output is still high and sometimes low. Hopeful this evens out soon. I’ve lost count on days in hospital. 🙁

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