Vivaer nasal valve remodeling and Empty Nose Syndrome?

Posted by warpedtrekker @warpedtrekker, Nov 21, 2018

Has anyone had Vivaer procedure? I'm concerned about Empty Nose Syndrome but my doctor claims that only occurs with removing or shrinking turbinates. Doesn't the vivaer procedure also affect turbinates?

Interested in more discussions like this? Go to the Ear, Nose & Throat (ENT) Support Group.

@healthiswealth1

Hello group!

I have been expiriencing some very odd symptoms and will try to keep it condensed. In 2014 I had a turbinate reduction(no turbinates were completely removed thankfully) and a septoplasty due to my constant stuffyness and smothered feeling upon waking up. About two years go by and my stuffiness apears the same and also noticing that I feel much more winded when doing activities. Fast forward to july 2018 and I had my first ever anxiety/panic attack. When this occured I felt numbness in certain parts of my body which most of these symptoms are gone. The most notable symptoms that still carry on are these episodes of breathlessness upon simple exertion such as walking/moving fast paced, moving objects over 10 lbs, or pushing my laundry basket, going from low to high altitudes. Also speaking more then a minute causes a pressure breathlessness sensation near my pharynx.It is to the point where I had to leave my job due to the distressing feeling of passing out or running out of breath. I was cleared of any lung or asthma problems and heart apeared healthy from the tests and ct scans done.I am also relatively healthy and try to eat as clean as possible, bit have left out cardio due to my concerns. Ive seen 3 ent specialists and have cleared me of anything out of the ordinary.

What I am wondering is if by any chance a side effect from the turbinate surgery 4 years back could have altered any inhale signaling to the brain or nervous system. I know this could be over thinking but I have been expiriencing several symptoms related to ENS syndrome or empty nose syndrome which correlates to sensations of breathlessness, dry nose(as I have most of the time) and intermittent loss of sensation of air when inhaling through nose(usually when its too hot/humid or too cold). Again these symptoms all seemed to have come after my apparent anxiety attack and Still scratching my head in the sense if these symptoms are anxiety induced or complications of the surgery which I did not feel anything unsual until recent other than dryness and post nasal drip feeling since then.

Any suggestions or input would be
Greatly appreciated!

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how are you doing today, and who did your septo/turbs in san diego?

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I have some problems similar to empty nose syndrome, but Im not sure. I have the problem before surgery.

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@legendjhon110social

I have some problems similar to empty nose syndrome, but Im not sure. I have the problem before surgery.

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Hello @legendjhon110social, Welcome to Connect. You might want to explore some of the discussions in the Ear, Nose & Throat (ENT) Support Group listed here - https://connect.mayoclinic.org/group/ear-nose-throat-conditions/ to see if there are members who have discussed symptoms similar to what you are experiencing.

If you would like to seek help from Mayo Clinic, please call one of our appointment offices (Arizona: 480-301-8484, Florida: 904-953-0853, Minnesota: 507-538-3270) or request an appointment online: http://mayocl.in/1mtmR63.

Do you mind sharing a little more about the type of symptoms or problems you are having and what surgery you had?

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@callalloo

I had it done in Boca Raton, FL at Dr. Nathan Nachlas' practice. Vivaer should who offers is as their equipment is used but its still new-ish so maybe a lot of ENTs are still learning about it. Dr. Nachlas is a surgeon as well and, some years earlier, talked me out of surgery as it would have been 'corrective' surgery with cartilage transplantation, etc. I was ready to consider as I got tired of trying to just breathe comfortably (through convoluted and semi-obstructed nasal passages) and made an appointment there only to find that the new radio-frequency technology could un-obstruct a lot of old scar tissue without any surgery. For me, it was an instant solution. I haven't slept with a Breathe Right during allergy season or anytime since. Years of using nasal sprays, steroid and non-steroid, did absolutely nothing for me as I had a structural problem.

By the way, Nachlas' practice doesn't 'specialize' in Vivaer. It's one of the tools they use where it makes sense. So maybe you'll find an ENT who Aldo added it to the practice.

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what is that a stent? was your problem alternate sides blocking lying down? ive been dealing with this issue for 4 years , had a septoplasty done but only one side is doing better...

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@legendjhon110social

I have some problems similar to empty nose syndrome, but Im not sure. I have the problem before surgery.

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Anyone have Empty Nose Syndrome?

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@donaldbernard

Aerin Medical contact information: 833-484-8237, aerinmedical.com, customerservice@aerinmedical.com.

They have a "Find A Doctor" search engine on their website @ https://aerinmedical.com/find-ent-doctor/
I used the search engine and saw 2 doctors on it because I found their info there.

I have contacted them through their website before, but did not get a reply.

I thank you for you suggestions, some of which I have already done, some not.

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Did you ever resolve your situation? I'm in the same boat right now and was researching as well. I'm guessing you visited Dr. Jacobwitz at ENT Allergy in Midtown. He was the lead author of the study. Who was the other Dr. you consulted with? Did you opt to do Vivaer? What was outcome?

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@warpedtrekker

The only thing I know is the literature that my ENT doctor gave me. He said it is a non-invasive procedure that reshapes the nasal valve area, widening the area to possibly help with airflow. I've been to three different ENT's, and two of them wanted to go in invasively and fix my deviated septum, and reduce turbinates, either with coblation or other means. After hearing about ENS, I am not sure I want to take that chance. The Vivaer procedure apparently uses radio waves to shrink and reshape the nasal valve area. But then I saw a an article from an ENT doctor stating, that even messing around with the nasal valve area could cause issues like ENS. Because the nasal valve area is supposed to have some resistance of air.

I have "mild" sleep apnea(use BIPAP machine), had a DISE procedure which showed my tongue base collapsing blocking airway. I use BIPAP with dental appliance and still breathe through mouth sometimes and get obstructions. My ENT says he needs to start by opening nasal airway and then from there, consider other options for my tongue collapse and recessed jaw, like jaw surgery.

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Did you ever decide to do Vivaer? In similar position now...

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@legendjhon110social

I have some problems similar to empty nose syndrome, but Im not sure. I have the problem before surgery.

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Go see Dr. Nayak at Stanford. He is the top Rhinologist in the Country. Other option would be Das in Ohio. Stanford has the most cutting edge technology. They are working on an algorithm for dynamic airflow testing to solve ENS with objective data. Be warned other ENTs will dismiss you and deny its real.

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@legendjhon110social

I have some problems similar to empty nose syndrome, but Im not sure. I have the problem before surgery.

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Why won't Mayo in Rochester see patients for this?

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Yes. Did you ever get relief for your problem.....any of you? Been suffering for 5 years.

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