How to live after you stop. Meds

I have mentioned this in the past, but it is worth repeating— I strongly believe there’s nothing more important than being in a healthy weight zone. Also, being mindful about consuming enough protein, healthy fats and carbohydrates. They all serve multiple roles and they are all needed, especially the protein. Your body needs protein to repair from inflammation.

If you are not consuming enough protein, the body prioritizes essential functions by breaking down muscle tissue to release amino acids. This leads to muscle wasting and weakened immunity (due to reduced antibody production).

So please, make it a point to put on weight over time. Meet with a nutritionist, preferably one who specializes in lung health. I know of someone who works at National Jewish Health and has a consulting business. Please reach out directly to me if you would like this information.

It is important to our healing to think of food as medicine. Years ago, I was able to get rid of an MAC infection and I believe changes I made to my nutrition were a key factor in my healing. ❤️‍🩹

BE well,
Linda Esposito

Gbooth54. I nebulize twice a day- am before breakfast and pm usually at 6-7 because later I am too tired. I don’t produce any sputum to cough up but I do all the things I need. I use 2 puffs of levalbuterol then after 15 minutes I nebulize 7% sodium chloride with the red pari nebulizing cup, then nebulize 3% sodium chloride with aerobica attached to aeroclipse and two three times a week together with a vest. This I stop from time to time to huff cough. And sometimes, rarely I feel I have mucus so I lay down and use the autogenic drainage app on my phone to expel what’s left. When I am dry I stop. I hope this will keep me from MAC coming back. Sputum tests have been free of Mac since last year august but my Ct is just about the same with small extra changes. It’s a relief to not take meds but I am aware I am more vulnerable without azithromycin which protects us. Unfortunately I started having a lot of gastric problems a few months ago and all doctors said it’s is from antibiotics so I only hope things will get better with time. I wish you all the best

Deat Gbooth,
I'm so glad to hear that for you. I don't do the nebulizer. I tried with an amikacin inhaler, and it made my mucus so bad. I thought I was going to die some nights. I'm on these meds 5 a day for another 12 to 15 more months. I hope you do very well!

Once daily while wearing my aflo vest

Linda can you send me contact to this nutritionist from NJH please. Thank you

In response to be clear today......I have lost weight since being diagnosed with bronchiectasis. Dr says I use too much energy getting rid of sputum. Anyone else have this problem?

Thank you ncalvan, that gives me hope

Ok, thanks for clarifying 🙂

Hi Kimba, it is real scary stuff… I have severe anxiety from it and am suffering bad insomnia.
I’ve suffered some really bad diarrhoea initially when I doubled my daily dose of Azithromycin (from 250mg to 500mg), so I dropped back to 250mg and went on a low FODMAP diet which helped. After the diarrhoea stopped, I slowly ditched the diet and eventually went back to 500mg. I do get tired, but i think mostly from the insomnia.
I’m not sure how I got the MAC, especially since I’m quite “young”, I’m 46 y.o. But I suspect it was from when I had pneumonia a few yrs ago and stupidly carried out some tough yard work (and inhaled a lot of dirt), or it could be from feeding my pet rabbit (dusty hay).
I suffer from Sjögren’s syndrome (among other autoimmune diseases), which has led to low lymphocytes, and i think that’s a major factor in me finding it challenging to fight this infection.

Hi Kimba, what do you mean by making your mucus bad (from the Amikacin)…did you produce a lot more mucus and was it coloured?
I’m producing a lot of thick yellow mucus with the Amikacin and it makes me worried that treatment isn’t working (or is it working?).