1. < Ear, Nose & Throat (ENT)

Anyone have Laryngeal Sensory Neuropathy?

Posted by tkubby @tkubby, Jan 23, 2019

I am looking to talk with anyone that has been told they have larynx sensory neuropathy. In other words, over active nerves in the larynx.

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tkubby | @tkubby | Nov 26, 2024
In reply to @melinda561 "Have you had a CT of chest to rule out other pathology for cough. Also ,..." + (show)
@melinda561

Have you had a CT of chest to rule out other pathology for cough. Also , if your cough is productive then get a sputum sample for culture/sensitivity, fungus and AFB. If none of this is applicable, I sincerely hope you find answers and effective treatment.

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I have many test done and some of them twice and by process of elimination and all the test coming back fine the doctor diagnosed me with LSN.

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1 reply
medinak26 | @medinak26 | Jan 18 7:25pm
In reply to @tkubby "I have many test done and some of them twice and by process of elimination and..." + (show)
@tkubby

I have many test done and some of them twice and by process of elimination and all the test coming back fine the doctor diagnosed me with LSN.

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As of 2019, I was diagnosed with Hypersensitive Laryngeal Disorder/Irritable Larynx Syndrome/Vocal Cord Dysfunction/Paradoxical Vocal Fold Motion, Sensory Neuropathy, etc. and I experience sever symptoms, nearly every day.

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camayeron | @camayeron | Feb 20 12:01pm
In reply to @2011panc "@tkubby I have not been told that I have larynx sensory neuropathy. I have noticed changes..." + (show)
@2011panc

@tkubby I have not been told that I have larynx sensory neuropathy. I have noticed changes in my voice and throat that I associate with reflux and many intubations. My throat is sensitive (mildly achy) most of the time and my voice is scratchy. I almost always have a buildup of phlegm in my throat. I do not talk as much as I once did and no longer attempt to sing. I used to talk quite a lot and sang in choirs since my youth. I can no longer do phone work because after 1/2 day I lose my voice. Are these symptoms similar to yours?

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Are you still the same way today? You sound like me!!

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1 reply
2011panc | @2011panc | Mar 7 2:58pm
In reply to @camayeron "Are you still the same way today? You sound like me!!" + (show)
@camayeron

Are you still the same way today? You sound like me!!

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@tkubby, I apologize for not responding sooner. My throat and voice are slightly worse as far as sensitivity and a raspy voice. I am bothered less by phlegm in my throat and I still limit my talking. I now often have to use speaker on my phone, as my voice is so weak that it cannot be heard when I use my normal talking effort. I want to learn simple signing, not spell signing, to communicate easier when my voice is bad. However, I am somewhat lazy and have not put enough effort into that.

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camayeron | @camayeron | Mar 7 6:19pm

I have asked Mayo connect, and would form it without their help, if people are interested in meeting together at Mayo for a support group. I am not suggesting repeated meetings there because I live in Minneapolis, not Rochester. But I would drive there for a chance to compare notes with others who are struggling also. I am supposed to start anew at Mayo in April and May because I am no better today than I was 2 years ago. They were supposed to get me into the cough clinic way back, but are just doing so now with my insistence and another Doctor referral.

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