I’m being interviewed by NBC Chicago on long Covid this week. Help

You are the HERO of millions of us who became ill with Covid!!! The list of symptoms is as long as there are people affected. If possible, your mentioning what Is obvious to many of us but is often unknown to doctors and those unaffected…namely the sadness, isolation, lack of answers and lack of definitive helpful treatment. Many of us are treated as lab animals because care givers also either never heard of Covid or will not admit they simply do not know what might be helpful. Hopefully, at least one medical professional is documenting wold-wide findings to provide answers and treatments for the next generation…if not sooner. Those of us senior citizens are unlikely to see a true cure, but we are hopeful for the those who follow. Our lives have been altered beyond description. May you get MORE than “five seconds!”

I think this is a good statement:
“ . We are the millions of forgotten victims of the pandemic that no one wants to remember.”

On the bright side, I’m a long COVID 2020 victim who is finding help from Dr. Jordan Vaughn in Birmingham,AL. I’m being treated for microclots and seeing very significant improvement in my symptoms after 7 months of treatment. There are some physicians who are trying to help us.

And after answering on the interview, may you ask them where and how we possibly can go for intervention.

Thanks, ericy210 for being our spokesperson. It'll take a lot of energy and I hope you're getting some rest to prepare. I agree with all the other comments and would add this: From what I've learned (since dx in 2023), one of the hardest parts is the gaslighting and lack of understanding, not just from doctors(!) but from close friends and family. Many people just don't get it and say stuff like "You LOOK good, so how can you STILL be sick? Maybe you need some lavender aromatherapy cuz that works for me ..." etc. etc. Much more information needs to be blasted to the general public since we can't be explaining this over and over... it takes too much energy. I'll be watching all week and thanks for taking this on for the rest of us! (Bottom line: More publicity, please!)

I don't know what you're particular ongoing symptoms are, but I applaud you for doing this. Just be yourself, trust yourself, you know these symptoms are real and you were not like this before covid. Some of us have had other exposures before covid that have weakened our system: mold exposure, Epstein Barr, etc. We are mor prone to having a more severe reactions to the next assault on our immune system then others. It can be difficult. But what you are experiencing is what you are experiencing, it's real, just be your authentic self. you will be fine. We need to be heard!

Thanks all. There are a lot of consistent and powerful themes here. I’ll probably feed it into AI and ask to summarize into a handful of bullet points I can reference.
I as told to expect a call from the Chicago Tribune. It’s all a bit crazy. It comes down to a lot of good people suffering, a lot of extraordinary people in the medical field working towards solutions, and everyone respecting and caring for each other.
I plan to say Covid infects people without caring too much about their politics. My political opinions are separate from this one issue.
Keep the thoughts coming. We are all equals and on the same team that has an interest in people having a good quality of life.

To ericy210 —

One theme would be to let the public know that there are many advocacy and support groups. These can be found by searching for “Long Covid Support” online.

The search results will include Covid clinics at Mayo, Yale, etc. The results will also include groups started by LC longhaulers, like Long Covid Alliance, SolveME, etc.

It would benefit the public if guidance for finding these resources were included on the station’s website.

— friedrich

michael239! I had to double check whether I had made this post reply and had just forgotten! Same right down to stepping away from my pastoral ministry - October 2024. [I was unable to prepare for services because it took me 2-3 weeks for one sermon vs a few hours. No focus...]

When did you develop LC? I've been at it since Sept 2020. I thought maybe the different variants brought on a particular set of symptoms(?)

You continue to be a SHINING STAR in the on-going battle to find answers, raise more awareness and acknowledging this unique illness unlike any we’ve experienced.
MANY “likes, helpful and hugs” to you for asking for input. You deserve a round of applause and a standing “O.” ‘Nuff said!!! (Donnie46)