Therapy-resistant migraines

Thank you for reaching out. Headaches 24/7 is no way to live. I take one Tylenol no 3 tablet, twice a week. It used to give me two days of relief from the pain, but now it is not as effective - and taking more is not an option (dependency, rebound/more intense headaches). I will follow your lead and ask my doctor for medical marijuana. Thank you for writing and I hope you will find a therapy that works for you.

Hi Richard,
I live in Florida where medical marijuaa is legal. I am assuming it is legal wherever in this great country you live. I truly hope you have a doctor who will fill out the forms needed to get medical marijuana. We have doctors here whose practice is specialized in evaluating patients for eligibility. They will then prescribe the marijuana. . It’s a great option if your doctor will not provide what’s needed to get it. If you are of a mind to, I would like to hear if you get the marijuana and how effective it is for you. Looking forward to it.

Thank you very much for caring and reaching out. I am seeing my family doctor next week and will approach him on the subject. I must admit I am leery about it as, if there is enough THC in it to work, wouldn’t that affect my brain? I once asked my previous family doctor about it (a product with CBD and hardly any THC). and she quickly replied that it is the THC that works. End of story there. But I will approach this new doctor and see what he says. I do not want to create dependency and be affected mentally.
Thank you so much again for taking the time to write and I will let you know what happens with the medical marijuana. Take care

Hi @richardfrancine
Have you been to a cranial sacral therapist? When you find a good one, OH my! I have trigeminal neuralgia and it is under control!
I will write again later on how to find one.

JFN

Thank you for reaching out JFN! No, I have not seen such a specialist but I absolutely appreciate the suggestion. I WILL follow up on this. Thanks again

Fran

Yes, it is the THC that helps. The tincture that you take under the tongue is prescribed with a range of THC in combination with CBD. It can take several THC level trials to achieve the desired pain relief. Happily the medical marijuana does not give you a high like they would achieve using marijuana as a means to that end. You get pain relief , no high. Hope this answers your questions and concerns. I hope that you feel better about pursuing it. It has been a Godsend for me.

Yes, I do feel better about it after reading your post. As mentioned, I will cast my line with my gp next week.
Thanks again and take care!

I have refractory chronic migraine and have had unimpressive results with all the injectable CGRP meds. Then my neuro convinced me to try Vyepti and it was amazing! After one day, my severe headache days were cut in half and I was so happy! I still had plenty of sx, but the difference it made in my function and qulaity of life was remarkable!

Then, I had the 2nd infusion 3 months later and I felt like I was worse after that. I decided it was probably coincidental as there are always other factors in life, but then after the 3rd infusion I felt even worse! I don't know how this can be! I decided I wanted to stop it and my neuro agreed, but I consulted with another neuro who thought I should continue it. Yikes, this is a hard decision. Has anyone else had these meds make their migraine worse?!

I have recently started Qulipta & I think I am worse. Pain every day. I am 71 and want peace. Have an rx for medical marijuana but have been afraid to try it. Thought it wou give me more headaches. Maybe I should. The THC is what stops pain? Is that correct? I’ve been told by one neurologist that I am too old for migraines. I switched to a headache specialist but so far she gives me pills that don’t help. I am so discouraged. Thanks for your answers & support. Keep us posted on progress.

I spent about 45 years with migraines (no auras) on the left side of my head. Probably from a injury from horse riding accident at age 11. All I had for many years was aspirin until Acetaminophen and Ibuprofen were invented (yes, I'm that old.). Those OTC meds were not at all successful at getting rid of migraines. The best Rx drug I ever used for migraines was Caffergot (ergotamine with caffeine) but for some odd reason it was taken off the market about 10 or 15 years ago. It had worked like magic for me. Finally my doctor sent me to a pain specialist that specialized in a procedure to deaden the nerves in my neck. That Radiofrequency Nerve Ablation procedure was a true miracle! I've never had another migraine since and any headaches I do get are minor and go away on their own. A friend of mine with the same migraine problem had it performed by a different doctor with a poor outcome. Her headaches got worse. Just good luck for me or what? It took several visits to qualify for the procedure but was well worth the time and effort.