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After 3 months on hydroxyurea, I am going to ask to switch to Besremi
Blood Cancers & Disorders | Last Active: Sep 7 4:05am | Replies (34)Comment receiving replies
I went to a Dr for one full yr and feel I lost one full year of my life being put on HU. He doesn't care at all! How you feel and what your side effects are. He drills it in your head I will take this HU for life and in so many words live with the side effects. He has no heart or soul. His PA is identical like she has been trained that way by him. I up and stopped HU 2 wks ago per my PC and have an appt with a different oncologist/hemo March 3 referred by my PCP who can see how sick I feel and how HU has completely screwed me up. I never felt this sick before HU and I am very sick still coming off this med after two weeks. I just pray everyday I am ok til my new appt and this other DR is a good send.. the Dr never called me to ask where I am at or why I cx my last appt. I don't trust him and more than half of his reviews are soo bad! He tells patients that no one ever isn't to second guest him ever! He dx me totally off of blood labs and never a mention of BMB. I feel he has totally ruined me and I pray everyday this new Dr is going to be completely opposite as my PCP claims. Good luck to all.
Replies to "I went to a Dr for one full yr and feel I lost one full year..."
if you don't have trust in your Hemotologist then it's time to make a change. We are supposed to be partners in our care, if that's not allowed then your doing a disservice to yourself..I have a wonderful Hematologist and know you have plenty to pick from, your Doctor needs to be a good fit...
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I did go to my now new hemo/oncologist and really like him and his PA. Since coming off HU in February I have not been put on anything because my platelets have stayed normal, my last visit last week they were 372. I continue to follow my program of drinking green tea, 1/4 glass of no sugar added Welches grape juice, pure cranberry juice and dark chocolate daily and my daily aspirin.
The Dr said that maybe someday I will need to go back on some med but not now and he would find something out of the chemo drugs. He mentioned he would check on a drug for PV and study it to see if it would be a benefit for me when and if the time comes. He said for now he is very happy with everything. I won't see him again for 3 months but in between I have an appt with his PA.
Thanks for the hug! Hope all is good for you! 🙏🙏🙏
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