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After 3 months on hydroxyurea, I am going to ask to switch to Besremi
Blood Cancers & Disorders | Last Active: Sep 7 4:05am | Replies (34)Comment receiving replies
Good luck! Besremi is extremely expensive and has only been out since 2019. Hydroxyurea has been out since the 1960’s. When I read the side effects fro Besremi it scares me. Were your platelets and hematocrit acceptable With hydroxyurea? I find that my numbers always jump around a little with Red, white and hemoglobin etc but a song as they are acceptable I will stay on Hydroxyurea. Good luck.
Replies to "Good luck! Besremi is extremely expensive and has only been out since 2019. Hydroxyurea has been..."
I should have stuck with Hydroxyurea. The first Besremi shot in Feb. Biweekly thereafter. Starter dose 50 to increase by 50 each dose until full 500 dose. I wish the Dr had advised Besremi is NOT FDA approved for ET, but is being prescribed off label. (It is approved for PV) With that info, I probably would not have made the switch.
I have lost over 10lbs, no appetite, extreme fatigue and the extreme itching is unbearable. Thyroid issue that never existed before and 2 UTIs. All that and really not great control of platelets.
I have to discontinue this med due to side effects and find a new Dr.
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I think if you read the side effects of almost any drug, including acetaminophen, they will scare you!
It is important to remember that the pharmaceutical companies try to cover themselves and that most serious side effects are rare.
I was due to have my first Besremi injection last week but it had to be postponed because the drug had not arrived. I shall have the first injection on 5 March.
I found the idea of HU scarier than Besremi.
Happy to hear you are doing well on HU and I hope it continues.