What was your experience with Voriconazole?

Hi Barbara! First of all God bless you for your ability to grow up to almost 82 years young. That’s perseverance for sure!! Yes, I taught school for 43 years) k and 1 and did my best to parent 10 children with my husband of 54 years. He only wanted one child !! Raising ten is easier than one I think - they entertain each other. Now we are almost at 16 grandbabies and soon to be first great grand baby! We actually have been very blessed. Nine out of ten gave us no trouble. Number ten has been a bit of a challenge. Lots of perseverance needed for that one!! I was diagnosed by my son in law ( an obgyn ) who was worried about my symptoms. That was my last year of teaching.(2014). I knew something was wrong so that was at least validation. You are kind to use the word perseverance. I’ve screamed. I’ve cried. I’ve had more than one pity party for sure. But here’s the thing Barbara as I’m sure you know. There are way worse things in life than this. We have all suffered greatly. The meds were a real challenge for me. I am a positive person and they did not make me feel positive one single bit. And I was scared to death!!Red/orange urine is scary!! I did persevere - and it wasn’t easy. But I have learned so much about myself and the whole concept of suffering. I always try to put one foot in front of the other as much as possible, trust the good God because he has the bigger picture - and never give up!!!! At your age I don’t know. I didn’t go on medication till after I retired. I would not have been able to continue . Some people do ok. My bronchiectasis has gotten worse so I have to nebulize twice daily and take Levoquin prophylactically . Maybe when you are told to take the meds you will find you actually feel better. It is your choice. Listen to your body and its infinite wisdom. You will make the right decision for you! God bless you real well. ( Irene 5)

Irene- Thank you for your sharing your experiences and your time that you gave in writing your reply. I understand about the number 10 child....my sister, the baby of the family, is 13 years younger than I and I can say that my parents would have said the same thing...a challenge. My major was Kindergarten Primary Ed. I only taught for a short time. Loved the children and our classroom but beyond our classroom doors....not so much. One of the words I had 'plastered' on a section of our classroom walls was the word PERSEVERNCE. Hopefully the children internalized the meaning of it. Perseverence is what it takes for most everything in life. Thank you for sharing your experience at the time of your confirmation of BE and then with the antibiotics. Us humans have many emotions and it is good to share such moments with others to show we are not alone in our ways of dealing with the news of...'You have BE."
Yes, I tell myself often how fortunate I am for many reasons..... with one being my having been diagnosed by my PCP (8/2022) before the BE was way out of control. I also knew something was wrong a few years before my BE diagnosis and kept making appointments with my PCP to the point that I thought he might start thinking I was a hypochondriac. As of this moment in time I feel well, sleeping well and good appetite in spite of the LPR/Hiatal Hernia /Eczema and BE that all were diagnosed about the same time. Probably, possibly, all related back to one thing....acid. With having this wonderful site to go to I have learned much and, as a matter of fact, in one of your previous replies to me you helped me realize how the LPR/Hiatal Hernia and the BE all could be related to my need to constantly clear my throat of mucus and especially after I eat. I have since read that the hiatal hernia can/does cause overproduction of mucus. Yes, if I do hear those words... 'time to consider the big 3' I, myself, will consider all that one should take into account and consideration in formulating the decison to begin taking the antibiotics. P.S. Yes I 'grew up' to 82, hopefully I've grown up. HA!
Barbara

Irene- Thank you for your sharing your experiences and your time that you gave in writing your reply. I understand about the number 10 child....my sister, the baby of the family, is 13 years younger than I and I can say that my parents would have said the same thing...a challenge. My major was Kindergarten Primary Ed. I only taught for a short time. Loved the children and our classroom but beyond our classroom doors....not so much. One of the words I had 'plastered' on a section of our classroom walls was the word PERSEVERNCE. Hopefully the children internalized the meaning of it. Perseverence is what it takes for most everything in life. Thank you for sharing your experience at the time of your confirmation of BE and then with the antibiotics. Us humans have many emotions and it is good to share such moments with others to show we are not alone in our ways of dealing with the news of...'You have BE."
Yes, I tell myself often how fortunate I am for many reasons..... with one being my having been diagnosed by my PCP (8/2022) before the BE was way out of control. I also knew something was wrong a few years before my BE diagnosis and kept making appointments with my PCP to the point that I thought he might start thinking I was a hypochondriac. As of this moment in time I feel well, sleeping well and good appetite in spite of the LPR/Hiatal Hernia /Eczema and BE that all were diagnosed about the same time. Probably, possibly, all related back to one thing....acid. With having this wonderful site to go to I have learned much and, as a matter of fact, in one of your previous replies to me you helped me realize how the LPR/Hiatal Hernia and the BE all could be related to my need to constantly clear my throat of mucus and especially after I eat. I have since read that the hiatal hernia can/does cause overproduction of mucus. Yes, if I do hear those words... 'time to consider the big 3' I, myself, will consider all that one should take into account and consideration in formulating the decison to begin taking the antibiotics. P.S. Yes I 'grew up' to 82, hopefully I've grown up. HA!
Barbara

How can one find out about hiatal hernia without doing endoscopy? My GI said, scopy is the only way to find out.

I had the endoscopy at NJH that confirmed a small hiatal hernia. Hopefully the hiatal hernia is still small.
Barbara

How can one find out about hiatal hernia without doing endoscopy? My GI said, scopy is the only way to find out.

My father is diagnosed with the following medical conditions , Docs told he has only 20% of lungs left, he will be on 24*7 o2 support (4lpm) and suggested for a possible lung transplant but due to my father weakness (age 63) and other conditions we are thinking not to opt for lung transplant and go with medical management only . So docs are giving (Voriconazole (VORITEK 200MG ) , Tobramycin 300 MG , Nebsmart g,Levolin 0.63,Mucinac 600,Mucinac 600,Dytor 5MG ,DILZEM 30 MG,CLOPILET A 75M,Urimax D ) for his medical conditoins .. But after he started using this medication he become more weaken , and got more new problems like more dizziness , unable to talk properly , full water in legs , abdomen tightness and other problems he is facing .. Is there anyone who is in this situation ? who used voriconazole and cured? we are loosing hope dad by dad seeing him. So looking for some positive stories to hear.
Diagnosis. :
Allergic Bronchopulmonary Aspergillosis
Post Tubercular Sequelae
Known Case of Obstructive Airway Disease
Type I Respiratory Failure on LTOT
Cor Pulmonale
Severe Pulmonary Arterial Hypertension (RVSP - 85 mmHg)
Grade III/IV Progressive Dyspnoea, Cough with Purulent Expectoration
Cholelithiasis (Hyperechoic Calculi of 6 mm)