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Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Posted by krishh @krishh, Jul 15, 2017

I'm on my fourth line of treatment. What treatments are others receiving for this? Thanks ~

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carmita | @carmita | Dec 27, 2024
In reply to @lberg "I have no idea what to expect in the near future, all we know is it..." + (show)
@lberg

I have no idea what to expect in the near future, all we know is it is BAD! stage 3.

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For the love of God have faith . I have bile duct stage 4,I'm in my 2nd year and one month doing grate,stable with tibsovo cancer pills.
If you don't mind
I would be praying for you.
Many blessings for healing.

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angelziggy | @angelziggy | 5 days ago

Afternoon, My husband and I just found out that he has Cholangio carcinoma. He was jaundice, losing weight, fatigue so we went to the er. He has had the CT scan and MRI already. mass in liver that went into the bile duct. tomorrow is the biopsy and if they can they will place a stent in. trying to find information anything

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2 replies
denise134 | @denise134 | 4 days ago
In reply to @angelziggy "Afternoon, My husband and I just found out that he has Cholangio carcinoma. He was jaundice,..." + (show)
@angelziggy

Afternoon, My husband and I just found out that he has Cholangio carcinoma. He was jaundice, losing weight, fatigue so we went to the er. He has had the CT scan and MRI already. mass in liver that went into the bile duct. tomorrow is the biopsy and if they can they will place a stent in. trying to find information anything

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I was diagnosed last August but confined to liver so had liver resection Sept 6, did well through surgery and no spread and no symptoms but need chemo - hopefully you can have surgery or treatment for this cancer - keep me informed and I will keep you in my prayers

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genem209 | @genem209 | 4 days ago
In reply to @daughterwholoveshermomhelpinghertofightbileductcancer "My mom found out she had cancer in november 2023 and in January t2024 they recently..." + (show)
@daughterwholoveshermomhelpinghertofightbileductcancer

My mom found out she had cancer in november 2023 and in January t2024 they recently said it was stage 4 bile duct cancer and now they want to remove her gallbladder she has had a tube in her side to drain the bile and now they have inside of her she always sick cant hold down food and they still haven't put her on treatment or chemo nothing they just keep postponing it like they don't care she is 57 years old and is giving up because she feels like itnot gonna help to get treatment, plus she is tired she lives in Oklahoma and I'm in Texas I been trying to get her to get my sister to bring her to me and I've been trying to fight it for her everyday but I do research all the time online but dont know much about her condition to know what I should do any advice would help tremendously

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Omg -this is awful! She needs a good oncologist and she needs a surgeon . God bless her!

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genem209 | @genem209 | 4 days ago

My husband was diagnosed this past summer. Routine blood tests showed an elevation of his liver enzymes. Doctor said it was an infection. Nothing showed up on a biopsy or a scan. It wasn’t until he got an MRI that it showed he had colon carcinoma. No symptoms but he was between state 2 and 3. Started chemo but went to a surgeon at Sloan Kettering who took out the right side of his liver. Cancer is gone.. Chance that it can come back but chemo will help. Keep fighting until you get answers! Don’t give up! Here if you need anything

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demooretucson | @demooretucson | 7 hours ago
In reply to @angelziggy "Afternoon, My husband and I just found out that he has Cholangio carcinoma. He was jaundice,..." + (show)
@angelziggy

Afternoon, My husband and I just found out that he has Cholangio carcinoma. He was jaundice, losing weight, fatigue so we went to the er. He has had the CT scan and MRI already. mass in liver that went into the bile duct. tomorrow is the biopsy and if they can they will place a stent in. trying to find information anything

Jump to this post

Dear Angelziggy -- I was diagnosed with cholangiocarcinoma in January 2024 under similar circumstances as your husband. A stent was placed, and I was referred to a surgical oncologist and oncologist. Seek initial opinions and possible treatments at a comprehensive cancer center if possible. In the US, several centers of excellence in treating cholangiocarcinoma are worth considering, including Mayo Rochester.

Dan

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