Anyone have intermediate Macular Degeneration
Hello,
I'm interested in hearing people IMD.
I like reading people's stories, how they deal with it, what they are experiencing and if they've learned of new treatments or cures coming down the pike.
I pray every day that I can grow old while maintaining my good central vision. I pray that I am young enough to one day benefit from more permanent treatments, less invasive treatments, and even a cure. Research has been ongoing for such a long time that sometimes I think there may never be a cure. I will not give up nor will I stop praying.
I hope we can get a chat going here. ❤️
Interested in more discussions like this? Go to the Eye Conditions Support Group.
Hi Cathy,
I'm curious are you taking Areds 2? I'm Wondering how much they help. I've been taking them for about 12 months. No visual distortion yet.
Update on photomodulation and why I use the 99.00 eyecharger:
I asked my Bascom Palmer trained doctor and he says the eyecharger sounds like the clinical FDA approved one except they use 3 electrical pulses and one hz is similiar to the 679 hz eyechargers. The clinical treatment hz ‘s godeeper into the eye. tissue. At this point eyecharger appears safer! You dont want to be in line for the newest treatment - sometimes the kinks are not fully worked out or the study is not as good as made out initially . Like beta carotene was subsequently taken out of the original AREDS formula because of lung cancer concerns. But time is of the essence and AMD progresses into GA over a period of five to eight years on average.
In January 2025, JAMA Ophthalmology published a Viewpoint article critically examining the use of photobiomodulation (PBM) therapy for age-related macular degeneration (AMD). The authors raised concerns about the clinical efficacy and safety of PBM treatments administered in ophthalmologists' offices. They emphasized the need for more robust, long-term studies to validate the benefits and assess potential risks associated with these in-office procedures. The article also highlighted inconsistencies in treatment protocols and a lack of standardized guidelines, which could impact patient outcomes. Given these uncertainties, the authors advised clinicians to exercise caution when considering PBM therapy for AMD and to thoroughly discuss the current evidence and potential risks with patients.
In contrast, home-use devices like Dr. Glen Jeffery's 670 nm red LED device are designed for general age-related vision decline and have shown promise in improving retinal mitochondrial function with minimal risk. However, it's important to note that while these devices are intended for home use, they are not specifically approved for treating AMD. Patients should consult with their eye care professionals to determine the most appropriate treatment options for their specific condition.
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Dr Jeffrey on photomodulation with the 670 hz red LED flashlight
http://www.eyecharger.com.au
is where I purchased the device from but it is no longer available . Here’s more on Dr Jefferey’s work on red light therapy 670hz from the Macular Society’s article
eyecharger-
Device no longer available but Jeffrey tested it and it’s approved by him but for “longevity” kind of like rapamyacin
he quotes:
this time I am not aware of any such studies (the company claims it has been approved by the ethics committees of Moorfield's and UCL, and is not being commercialized marketed as a therapy, only as an anti-aging agent). Are there biological mechanisms that indicate that red light therapy is not safe, in adults and/or in children?
Safety of light generating devices depends on energy and wavelength. In general, longer wavelength devices are much safer at the same energy than short wavelength devices. I don't have a commercial relationship with the two companies (Eye-power and Eyecharger), but I tested their prototypes because it was important to me that there was something I knew was safe. Both products operate at energies and wavelengths for which I have received ethical approval from Moorfields Eye Hospital and also from University College London. This confirmed that they are well within safe range. However, they do not have a clinical safety seal. Obtaining this can be a lengthy process. I have told both companies that we would strongly disapprove of any attempt to claim that their devices are officially clinically approved, and I support this.
So this is why we no longer have the eye-charger available for purchase and it’s disappeared from the internet. Hopefully the photo modulation to be offered in the clinical setting will be efficacious and the doubts about its use expressed in the recent Jan 2025 Jama article will be resolved.
emailed to me from contacting articDX :
I am not suppose to take a high zinc AREDS given my double Y402H alelles
These allelles are a prognosticator of a quick progression to blindness