Anyone have intermediate Macular Degeneration

Where can I get the rapa and for how much? It's script from preventive medicine doctor, right?

I hope you are seeing my comments to you because I keep hitting reply to myself instead of you. With this being an open conversation you should be able to read .. anything to and from prayingtolucy2 is from me to you. 😁

Consult Rapanews app not the news section but the forum section for a List of providers. Most of the rapa news and forum bloggers or contributors use India direct and without a prescription. I believe there are medical providers in northern VA and Maryland on that list now. I wouldn't go that direct route. I use Dr Jerry Morris DO South Lake Texas from that list. He is responsive you can email him and you have access to him not just every six months but if you havre issues he’ll meet online with you outside the scheduled tele med visit. A very extensive blood panel is required I used lab corp but ins paid that but any other costs for office visit and meds are not covered by insurance. Again , 350 every six month for tele med and for rapa use good rx, He isn’t an eye focused doctor only. preventive. I am not a longevity hacker, use your judgement. I started it bec of my AMD and my reaction to the drug helped my inflammatory conditions. I might be the exception but I think most find it beneficial. I didn’t know it would help my general inflammatory conditions. Since this an off label use of rapamyacin you dont want that on your medical record. He doesn't take insurance anyway. I didn't tell my GP until this year and the retina doctor didn’t know of it when I mentioned it to him just this year. Dr Morris prescribes it slowly and I haven’t had any side effects but there can be, mouth ulcers and lipid issues. I must have been so immune system dysfunctional before. It works for me

Rapanews :

This geriatric focused internal med doctor MD affliated with Hopkins looks like he would be good. It’s rare to see an internal med doc who practices med everyday prescribe a longevity drug.

Ok I was corresponding with another person who has no cfh or arms mutations reported by 23 and me but he has intermediate dry and most of the family has AMD . Here’s an exerpt :

“I also downloaded my genome, which indicates that I have the protective variant CFH:rs6677604, which retards the rate of progression. This is an extension of the great good fortune I’ve always been blessed with. “
I don't know how to download the genome (it’s available i think on 23 and me ) to a site which further analyzes protective genes. Could it be even though I have double Y402h I also have protective genes as well? Hmm…

It's definitely worth looking into, but wouldn't you have learned that with your original 23 and me tests? It seems possible that someone can go decades without progression or it affecting their lives.
I wonder if I have the protective gene? I'm a little afraid of 23 and me. Do I want to know if I have other genetic predisposition that may affect my life later down the road? I have to think about it.
Is that person on this support group?
Keep me posted.

Here’s what Tim the Rapanews Admin posted:

I posted the 3 articles that the company that does genetic testing for AMD , articdx. emailed me to the Rapanews forum blog asking Tim for help. Concerning the AREDS2 zinc formula. My rs 1061170 is high risk but Tim says its more complicated than that, there could be protective genes too in addition.
Click on each photo right to left.

This genetic science is way over my head I’ll stop exploring genetics. Just glad I found that zinc is not good in some studies for my CFH gene. There are some papers relating to my mutated gene and the VEGF shots as well. I bought theAREDS2 no zinc formula and once a week I’ll take MacuHealth with 25 percent zinc. I already get 7mg zinc in the Costco calcium I take. Lutein and zeanthin make up the macula and AREDS2 has 10 percent lutein and 2 percent zeanthin in the formula. There’s no toxicity reported if you take more . I will make sure I supplement with raw kale salad ( raw more lutein) , cooked spinach (cooked more lutein) , romaine lettuce, corn, all colors peppers esp green and oranges , pistachios, egg yolk, fish, oranges, apricots and blueberries.
And let that be that! Took up classes in qigong and tai chi .
Stop worrying about the inevitable. I’ve done all the research I can and implemented it into my protocol and I can get overboard and research obsessive!