I had a grand mal, first ever, a year and a half ago and a minor seizure 9 months ago at 70yrs old. Started off on 500mg 2xday but I reduced it to 250mg 2xday. Doctors would like me to stay on 500, I decided to reduce. Still have diarrhea but doctor didn't really say to much about it. Thanks
I have had good success with keppra except loose stool. I found out that my extreme dirrhea was cause by stress and paxil not working anymore. Still dealing with that (paxil) not working but diarrhea is not a big issue currently.
I had a grand mal, first ever, a year and a half ago and a minor seizure 9 months ago at 70yrs old. Started off on 500mg 2xday but I reduced it to 250mg 2xday. Doctors would like me to stay on 500, I decided to reduce. Still have diarrhea but doctor didn't really say to much about it. Thanks
Hi @hippele
I also had diarrhea when my Keppra dosage was higher. But after several dosage reductions it stopped. I take 200 mg in the morning and 150 mg in the evening right now together with my CBD. I hope my doctor will continue reducing it, as I am still having several gastrointestinal issues with this AED.
See if your doctor can reduce the dosage once more.
Do you have any other side-effects?
Chris (@santosha)
Hi @hippele
I also had diarrhea when my Keppra dosage was higher. But after several dosage reductions it stopped. I take 200 mg in the morning and 150 mg in the evening right now together with my CBD. I hope my doctor will continue reducing it, as I am still having several gastrointestinal issues with this AED.
See if your doctor can reduce the dosage once more.
Do you have any other side-effects?
Chris (@santosha)
More and more I see how important the fine-tuning process of an AED by the doctor is, coming to a dosage that brings you more benefits than harms. Just remembering the words of my doctor: Every human being is unique!!!
Hi @hippele
I also had diarrhea when my Keppra dosage was higher. But after several dosage reductions it stopped. I take 200 mg in the morning and 150 mg in the evening right now together with my CBD. I hope my doctor will continue reducing it, as I am still having several gastrointestinal issues with this AED.
See if your doctor can reduce the dosage once more.
Do you have any other side-effects?
Chris (@santosha)
thanks for the reply. No other side effects. I believe I asked either the pharmacist or doctor and they told me the lowest pill was 250mg. Are you buying 200ml and 150ml pills or are you splitting them??
Doctors can suggest anything they want but the patient has the final decision. I decided to reduce to 250ml while my doctor wants me on 500ml. I am also going to reduce further and do 125ml in the am and then 250ml in the evening. Am I taking a chance I will have another seizure?....possibly but I think analyzing my situation I am willing to take that chance to lower or get off these pills. Thanks! God Bless....
thanks for the reply. No other side effects. I believe I asked either the pharmacist or doctor and they told me the lowest pill was 250mg. Are you buying 200ml and 150ml pills or are you splitting them??
Doctors can suggest anything they want but the patient has the final decision. I decided to reduce to 250ml while my doctor wants me on 500ml. I am also going to reduce further and do 125ml in the am and then 250ml in the evening. Am I taking a chance I will have another seizure?....possibly but I think analyzing my situation I am willing to take that chance to lower or get off these pills. Thanks! God Bless....
Hi @hippele
Thank God you are not having other side effects with Keppra!!!
Indeed, the lowest pill of Keppra is 250 mg. I am now on the oral version of Keppra, in which my doctor can reduce my dosage below 250 mg and change it more easily.
I started on Keppra last December at 500 mg while I was at the ER. I also had much diarrhea alternated with constipation and many other side-effects. My doctor has been reducing my dosage little by little and with all care and safety. This last weekend I repeated my EEG so that he can evaluate with safety if it is possible to reduce even more my dosage. He has been doing a great fine-tuning process.
As your diarrhea is recurrent it is important to see with your doctor what can be done to reduce this symptom. As we know diarrhea can cause dehydration and nutritional deficiencies. Perhaps through a specific diet recommended by your doctor, you could reduce this diarrhea and correct eventual nutritional deficiencies observed in blood exams through supplements. @hippele please do not reduce those medications by yourself, this can be very dangerous. Always do it together with a doctor. If you are not very satisfied with your current doctor, check for a second opinion, preferably with an epileptologist rather than just a neurologist. The Epilepsy Foundation has a great 24/7 helpline and can help you to find an epileptologist in your region. Here is the link: https://www.epilepsy.com/247-helpline.
Stay safe!
Chris (@santosha)
Hi @hippele
Thank God you are not having other side effects with Keppra!!!
Indeed, the lowest pill of Keppra is 250 mg. I am now on the oral version of Keppra, in which my doctor can reduce my dosage below 250 mg and change it more easily.
I started on Keppra last December at 500 mg while I was at the ER. I also had much diarrhea alternated with constipation and many other side-effects. My doctor has been reducing my dosage little by little and with all care and safety. This last weekend I repeated my EEG so that he can evaluate with safety if it is possible to reduce even more my dosage. He has been doing a great fine-tuning process.
As your diarrhea is recurrent it is important to see with your doctor what can be done to reduce this symptom. As we know diarrhea can cause dehydration and nutritional deficiencies. Perhaps through a specific diet recommended by your doctor, you could reduce this diarrhea and correct eventual nutritional deficiencies observed in blood exams through supplements. @hippele please do not reduce those medications by yourself, this can be very dangerous. Always do it together with a doctor. If you are not very satisfied with your current doctor, check for a second opinion, preferably with an epileptologist rather than just a neurologist. The Epilepsy Foundation has a great 24/7 helpline and can help you to find an epileptologist in your region. Here is the link: https://www.epilepsy.com/247-helpline.
Stay safe!
Chris (@santosha)
My EEG was negative after my seizure and just had a followup ordered from my doctor which was also negative. I get diarrhea first thing in morning and sometimes twice within a hour or two. So, I am retaining all the nutrients over a 24hr period so I am not worried about nutritional deficiencies. There is a tremendous amount not known about seizures. Doctors can only throw darts and hope that a "pill" can help you. And of course, every pill has a poison in it. The patient has to decide if the advantages outweigh the disadvantages (poison). In my case, having diarrhea and no other side effects is acceptable to me at this point but would still like to lessen my dosage and if no effect, eventually get off the pills with my doctors blessing. God Bless!!
My EEG was negative after my seizure and just had a followup ordered from my doctor which was also negative. I get diarrhea first thing in morning and sometimes twice within a hour or two. So, I am retaining all the nutrients over a 24hr period so I am not worried about nutritional deficiencies. There is a tremendous amount not known about seizures. Doctors can only throw darts and hope that a "pill" can help you. And of course, every pill has a poison in it. The patient has to decide if the advantages outweigh the disadvantages (poison). In my case, having diarrhea and no other side effects is acceptable to me at this point but would still like to lessen my dosage and if no effect, eventually get off the pills with my doctors blessing. God Bless!!
No diarrhea or gastrointestinal problems with extended release Keppra. But I seem to be sleeping a bit more. I’m ok with that because the med’s control my seizures so well.
I take lamotrigine 75mg twice daily. My gallbladder was removed in 2014 but all AEDs can cause diarrhea and constipation. I have been on an AED since may 2014. I have alternating dusrthea and constipation so I requested a dose reduction from neurologist. Went from 100mg twice daily to 75mg twice daily. I am working on my diet too. Spicy food has to go. I am just now seeing meditation for GI issues helps. I need to reduce my diet soda intake more because caffeine i think is an issue. I may have to discuss a further reduction on dosage of lsmotrigine.
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I have had good success with keppra except loose stool. I found out that my extreme dirrhea was cause by stress and paxil not working anymore. Still dealing with that (paxil) not working but diarrhea is not a big issue currently.
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Like -
Helpful -
Hug
3 ReactionsHi @hippele
I also had diarrhea when my Keppra dosage was higher. But after several dosage reductions it stopped. I take 200 mg in the morning and 150 mg in the evening right now together with my CBD. I hope my doctor will continue reducing it, as I am still having several gastrointestinal issues with this AED.
See if your doctor can reduce the dosage once more.
Do you have any other side-effects?
Chris (@santosha)
-
Like -
Helpful -
Hug
2 ReactionsMore and more I see how important the fine-tuning process of an AED by the doctor is, coming to a dosage that brings you more benefits than harms. Just remembering the words of my doctor: Every human being is unique!!!
-
Like -
Helpful -
Hug
2 Reactionsthanks for the reply. No other side effects. I believe I asked either the pharmacist or doctor and they told me the lowest pill was 250mg. Are you buying 200ml and 150ml pills or are you splitting them??
Doctors can suggest anything they want but the patient has the final decision. I decided to reduce to 250ml while my doctor wants me on 500ml. I am also going to reduce further and do 125ml in the am and then 250ml in the evening. Am I taking a chance I will have another seizure?....possibly but I think analyzing my situation I am willing to take that chance to lower or get off these pills. Thanks! God Bless....
-
Like -
Helpful -
Hug
1 ReactionHi @hippele
Thank God you are not having other side effects with Keppra!!!
Indeed, the lowest pill of Keppra is 250 mg. I am now on the oral version of Keppra, in which my doctor can reduce my dosage below 250 mg and change it more easily.
I started on Keppra last December at 500 mg while I was at the ER. I also had much diarrhea alternated with constipation and many other side-effects. My doctor has been reducing my dosage little by little and with all care and safety. This last weekend I repeated my EEG so that he can evaluate with safety if it is possible to reduce even more my dosage. He has been doing a great fine-tuning process.
As your diarrhea is recurrent it is important to see with your doctor what can be done to reduce this symptom. As we know diarrhea can cause dehydration and nutritional deficiencies. Perhaps through a specific diet recommended by your doctor, you could reduce this diarrhea and correct eventual nutritional deficiencies observed in blood exams through supplements.
@hippele please do not reduce those medications by yourself, this can be very dangerous. Always do it together with a doctor. If you are not very satisfied with your current doctor, check for a second opinion, preferably with an epileptologist rather than just a neurologist. The Epilepsy Foundation has a great 24/7 helpline and can help you to find an epileptologist in your region. Here is the link: https://www.epilepsy.com/247-helpline.
Stay safe!
Chris (@santosha)
-
Like -
Helpful -
Hug
1 ReactionMy EEG was negative after my seizure and just had a followup ordered from my doctor which was also negative. I get diarrhea first thing in morning and sometimes twice within a hour or two. So, I am retaining all the nutrients over a 24hr period so I am not worried about nutritional deficiencies. There is a tremendous amount not known about seizures. Doctors can only throw darts and hope that a "pill" can help you. And of course, every pill has a poison in it. The patient has to decide if the advantages outweigh the disadvantages (poison). In my case, having diarrhea and no other side effects is acceptable to me at this point but would still like to lessen my dosage and if no effect, eventually get off the pills with my doctors blessing. God Bless!!
-
Like -
Helpful -
Hug
3 ReactionsNo diarrhea or gastrointestinal problems with extended release Keppra. But I seem to be sleeping a bit more. I’m ok with that because the med’s control my seizures so well.
-
Like -
Helpful -
Hug
4 ReactionsI take lamotrigine 75mg twice daily. My gallbladder was removed in 2014 but all AEDs can cause diarrhea and constipation. I have been on an AED since may 2014. I have alternating dusrthea and constipation so I requested a dose reduction from neurologist. Went from 100mg twice daily to 75mg twice daily. I am working on my diet too. Spicy food has to go. I am just now seeing meditation for GI issues helps. I need to reduce my diet soda intake more because caffeine i think is an issue. I may have to discuss a further reduction on dosage of lsmotrigine.
-
Like -
Helpful -
Hug
3 Reactions