1. < Brain & Nervous System

Entire left side of body goes numb deep inside.

Posted by pakeemer @pakeemer, Feb 15, 2023

I’ve been discussing this a bit in the hemiplegic migraine area. But I want to take a different approach and just put this out there and see what others may have to offer. The doctors in my area didn’t seem to be of any help, which seems to be very common with what I’m reading here.

So here’s my situation in a nutshell. I am not going to go into all the other various symptoms right now. So what takes place is the entire left side of my bod ,can go numb from the top of my head right down the centerline of my body All the way down to my toes. It’s not a stroke, it’s not a TIA, it’s not MS. Hemiplegic migraine is the only other thing that I’ve come across so far that can cause this. But the doctors in my area give me a blank stare when I even say that word. What I’m wondering is if anyone reading this knows of any other sort of thing that can cause Numbing on one side of the body. I’m somewhat operating as if it’s hemiplegic, although I get no paralysis. I get a lot of other stuff and it’s a frequent daily thing and it just knocks me right down. So aside from all of the other symptoms, is there anything else out there that you are aware of that can cause numbing on one side of the body, deep numbing. I don’t lose the sensation of feel or touch, so it’s not like numbing on the outside.
I am eagerly waiting for responses!

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

Mentor
John, Volunteer Mentor | @johnbishop | Jan 19 7:18am
In reply to @rok1756 "I also suffer from this issue and have found a diagnosis that I'm going to be..." + (show)
@rok1756

I also suffer from this issue and have found a diagnosis that I'm going to be talking to my doctor about, and it is Hemiparesis. It's a known diagnosis in the VA rating system and besides the TBI I had, TIA almost 40 years ago and seizure blackout that got me retired from the military. It been difficult to explain this issue to the doctor, so they understand. It's a fine line since I know it can have loose driving privileges by the state, self-report - 6 months, doctor report - 1 year.

Jump to this post

Welcome @rok1756, You are not alone in trying to explain issues or symptoms to your doctor so they can understand. @thielejet2022 and @patrassi have also mentioned experience with hemiparesis in other discussions and may have some thoughts or experience they can share with you. Have you found anything that helps you manage the issues?

REPLY
rok1756 | @rok1756 | Jan 20 3:34pm

I'm usually at home and drink one cup of coffee a day. Usually I'm sitting down and can fill the out of sequence coming on. I know I should go to ER but it only happens maybe once every 5 days.

REPLY
gsdcado | @gsdcado | Jan 22 10:06am
In reply to @pakeemer "In December 2021 I checked into the mayo clinic and the Cleveland clinic. Neither of them..." + (show)
@pakeemer

In December 2021 I checked into the mayo clinic and the Cleveland clinic. Neither of them were excepting applications at that time until 2023. I’m not sure if the situation has changed at all. Being on the mayo connect site I guess is kind of a step forward into seeking more help. I’m located in Grand Rapids Michigan, and we have what is called the medical mile. And we have other facilities hospitals. But my experience through this for years has been it’s nothing but run-of-the-mill healthcare. we do have the Betsey DeVos, Children’s Hospital, which I am assuming is much more than just a regular hospital so I will give our healthcare in this area that much credit. Perhaps you can tell from this letter that I’m disgusted with the healthcare in this area. I don’t know where to go for people that are willing and able to dig into a health issue. That’s why I’m reaching out here on this website to see where that takes me. I don’t get migraine headaches I guess that’s what’s called a silent migraine. The numbness on one side is just one of many intense symptoms.

Jump to this post

I am also in Grand Rapids and unable to get help. Following this story!

REPLY
melann | @melann | Jan 25 3:21am

Hello, so sorry you are going through this. I’ve had these problems since 2010. Lost my teaching job. Countless times in the ER. Mimics stroke symptoms. I had
Every test MRI’s, blood work, etc. done multiple times. Saw many neurologists. Usually my diagnosis was depression,stress, anxiety. Finally found neurologist at Mayo Rochester who thought I had hemiplegic migraines. I was put on some preventive medication and given a vitamin cocktail regiment. When attacks are severe, I now go to the ER and get what they call the cocktail through my veins. This has all helped tremendously. I think the biggest help was finding out that I wasn’t crazy and this really is a true medical condition. It was a long agonizing road for me and my family but just getting the diagnoses eased a lot of tension. I wish you the best, hang in there!

REPLY
hardtimesar | @hardtimesar | Feb 12 3:53pm
In reply to @pakeemer "In December 2021 I checked into the mayo clinic and the Cleveland clinic. Neither of them..." + (show)
@pakeemer

In December 2021 I checked into the mayo clinic and the Cleveland clinic. Neither of them were excepting applications at that time until 2023. I’m not sure if the situation has changed at all. Being on the mayo connect site I guess is kind of a step forward into seeking more help. I’m located in Grand Rapids Michigan, and we have what is called the medical mile. And we have other facilities hospitals. But my experience through this for years has been it’s nothing but run-of-the-mill healthcare. we do have the Betsey DeVos, Children’s Hospital, which I am assuming is much more than just a regular hospital so I will give our healthcare in this area that much credit. Perhaps you can tell from this letter that I’m disgusted with the healthcare in this area. I don’t know where to go for people that are willing and able to dig into a health issue. That’s why I’m reaching out here on this website to see where that takes me. I don’t get migraine headaches I guess that’s what’s called a silent migraine. The numbness on one side is just one of many intense symptoms.

Jump to this post

I have srtarted having the same problems and the numbness isn't going away this time.

REPLY
1 reply
pakeemer | @pakeemer | Feb 14 4:40pm
In reply to @hardtimesar "I have srtarted having the same problems and the numbness isn't going away this time." + (show)
@hardtimesar

I have srtarted having the same problems and the numbness isn't going away this time.

Jump to this post

For me the numbness can last for days in one form or another. To describe it to someone and saying how uncomfortable it can be is an understatement. I get numb to the point where it is actually painful.

REPLY
1 reply
hardtimesar | @hardtimesar | Feb 15 3:52am
In reply to @pakeemer "For me the numbness can last for days in one form or another. To describe it..." + (show)
@pakeemer

For me the numbness can last for days in one form or another. To describe it to someone and saying how uncomfortable it can be is an understatement. I get numb to the point where it is actually painful.

Jump to this post

I am literally walking around with only half my body fully functional. The numbness is likened to the feeling you have if you slept on your hand and put it to sleep.........but it is my entire left side. Day after day........I would love to continue hearing about your progress.........mine is in limbo.....doctors around here just play pass the buck and guessing games that just bankrupt patients.

REPLY
julianac | @julianac | Feb 15 11:03pm

Dealing with the same thing! Been seeing Mayo Clinic!

REPLY
estathis | @estathis | 5 days ago
In reply to @pakeemer "I’m sorry, there is so much more going on and so much stuff has taken place..." + (show)
@pakeemer

I’m sorry, there is so much more going on and so much stuff has taken place in the last four years. I should’ve responded to your response with a bit more information. On April 6 of 2021 I went into emergency. While I was in emergency, I asked them if they saw the MRIs of my cervical area in my lumbar area. They reviewed them and said that is not the issue. Basically they said there’s nothing they can do at the hospital, they can find nothing wrong. They took extensive blood test, so many that the person drawing the blood said he’s never seen so many test ordered before. I was scheduled for an EEG and I also had a four hour psychoneurological exam. On top of all the other little things, heart rhythm, assessment, etc. etc. so they ruled out spinal they ruled out a stroke they ruled out TIA they ruled out MS they ruled out seizures , they ruled out out heart issues. Then I think they passed the buck and released me.

Jump to this post

My left side is almost totally numb and I was diagnosed with central nervous system lymphoma. At first it was in my left leg and has progressed upwards. I also had Bell’s palsy twice and vision problems. I had it for several years and was tested for ALS and MS, among others.

REPLY
estathis | @estathis | 4 days ago
In reply to @pakeemer "I’m sorry, there is so much more going on and so much stuff has taken place..." + (show)
@pakeemer

I’m sorry, there is so much more going on and so much stuff has taken place in the last four years. I should’ve responded to your response with a bit more information. On April 6 of 2021 I went into emergency. While I was in emergency, I asked them if they saw the MRIs of my cervical area in my lumbar area. They reviewed them and said that is not the issue. Basically they said there’s nothing they can do at the hospital, they can find nothing wrong. They took extensive blood test, so many that the person drawing the blood said he’s never seen so many test ordered before. I was scheduled for an EEG and I also had a four hour psychoneurological exam. On top of all the other little things, heart rhythm, assessment, etc. etc. so they ruled out spinal they ruled out a stroke they ruled out TIA they ruled out MS they ruled out seizures , they ruled out out heart issues. Then I think they passed the buck and released me.

Jump to this post

I’m sorry you still don’t have a diagnosis. It took me two years to get mine, so I was stage 3 when they figured it out. I hope you find another doctor who can give you an answer.

REPLY
View MoreView Less
Please sign in or register to post a reply.