Hi, i am reaching out to anyone who has had or having major bone pain after receiving reclast. Three days after receiving my first infusion, I started having pain in my feet And ankles and it proceeded to move up through my calves, my legs and my hips and I’m trying to do some reading and how long that might last. I’m just trying to get some support. I appreciate any comments. Thank you.
Hopefully my first and last infusion; been 7 months and the pain is still strong. Continue to have many sluggish days, both shoulders, right more than left awful pain, and left foot, all worse at night! I do not think I have slept a full night since having the infusion. Dr wants to do another infusion in June and recommend I go to Rheumatology because Reclast doesn’t have these side effects, well, yes it does! One thing that seems to stand out, stay very hydrated , might help. I have complications that prevent me from consuming large amounts of fluid and that might be some of my problem! Not sure how long this aches and pain is here for but it has already over stayed it welcome!
It is perfectly reasonable to be tepid and hesitant when approaching a major medication decision, especially power medications like ones for osteoporosis. Weighing the pros and cons of starting treatment can play a large role in decision-making. Do potential side-effects outweigh the risks of not taking medication and risking fractures that could be more detrimental to your long-term health?
Mayo Clinic Connect is a great place for members to get real-life experiences from others who have been in their situation. It is also important to note that when discussing medications we often read about the negative experiences more than the positive ones. You may find the following discussion worth reading where a member shares their experience with delaying treatment after reading negative experiences on Connect and wishing they had started treatment sooner:
I agree! This place has been very helpful in helping me make my decision. One woman posted her MD told her after her Reclast and continuing severe pain that 40% of people have severe side effects with Reclast.
As I currently have a 15% fracture risk over ten years, and Reclast has a 40% chance of serious side effects, it made my decision to not take it much easier.
I'm not ruling it out altogether for the furture (or other bisphosphonates) and I do know that reviews are skewed towards the negatives.
This is a great resource! Thanks very much for your thoughts.
For about 3 months after my first Reclast infusions, I had intermittent pains moving through different parts of my body. One shoulder locked up on me, I wasn't able to turn my head for a few days, there was pretty intense pain in my right calf muscle. After about 3 months this ' floating' pain disappeared. I had the other 2 infusions the following 2 years with no side effects at all. With bone density testing afterwards, there was quite a notable strengthening of both my right hip and spine. It is a big decision getting infusions and also continuing with the whole course. I hope that your discomfort subsides and that your final outcome is as positive as mine.
Thank you. I, too, have had intermittent floating pain since my since my first Reclast infusion three weeks ago. My first symptom appeared 6 hours after the infusion: abdominal pain so severe, I considered going to the ER. It was then accompanied by the common side effects that I was warned about by my doctor: chills, fever, headache. I also had and scary moment of an elevated heart rate. Everything subsided within two to three days, except for the headaches which developed into more severe headaches everyday for 12 days that correlated with severe neck pain. The headaches are gone but not my neck pain although it’s getting better. As far as intermittent, floating pain, I experienced them once on my right thigh, once my left hip, and once my lower back — the strange thing is that they came on strong out of nowhere and lasted for an hour and disappeared. Desperate for relief for my ongoing neck pain, I went to a chiropractor who suspected the headaches were due to occipital neuralgia. I am someone who rarely gets headaches or neck pain so I’m convinced this is all because of the infusion. I have a neurology appointment for an explanation about the headaches and a follow-up endocrinology appointment this week. I’n only three weeks in since Reclast but I’m going to share your experience with my endocrinologist when I see her. After this infusion, I’m really concerned about staying on it but I’m happy to hear that you didn’t have any symptoms after your subsequent ones. What did your doctor say about your floating pain?
(BTW, I’m 60 years old. Very petite. Healthy and active. I was diagnosed with osteoporosis last year. I did the full course of Evenity as my first osteoporosis treatment last year with no symptoms.)
Here you can meet other members discussion bone pain. @predni, have you had a chance to talk with your provider about the bone pain? Was this a potential side-effect that was discussed prior to treatment?
No actually very little was discussed with me prior to the infusion. I always do a lot of research before deciding, and I read that this intermittent pain was experienced by many other people.
Thank you. I, too, have had intermittent floating pain since my since my first Reclast infusion three weeks ago. My first symptom appeared 6 hours after the infusion: abdominal pain so severe, I considered going to the ER. It was then accompanied by the common side effects that I was warned about by my doctor: chills, fever, headache. I also had and scary moment of an elevated heart rate. Everything subsided within two to three days, except for the headaches which developed into more severe headaches everyday for 12 days that correlated with severe neck pain. The headaches are gone but not my neck pain although it’s getting better. As far as intermittent, floating pain, I experienced them once on my right thigh, once my left hip, and once my lower back — the strange thing is that they came on strong out of nowhere and lasted for an hour and disappeared. Desperate for relief for my ongoing neck pain, I went to a chiropractor who suspected the headaches were due to occipital neuralgia. I am someone who rarely gets headaches or neck pain so I’m convinced this is all because of the infusion. I have a neurology appointment for an explanation about the headaches and a follow-up endocrinology appointment this week. I’n only three weeks in since Reclast but I’m going to share your experience with my endocrinologist when I see her. After this infusion, I’m really concerned about staying on it but I’m happy to hear that you didn’t have any symptoms after your subsequent ones. What did your doctor say about your floating pain?
(BTW, I’m 60 years old. Very petite. Healthy and active. I was diagnosed with osteoporosis last year. I did the full course of Evenity as my first osteoporosis treatment last year with no symptoms.)
Hi, from what I've read from others, it seems that doctors either don't understand or don't want to acknowledge that these symptoms come as a result of the infusion. It's too coincidental that odd pains in various parts of the body only start after Reclast. It seems possible to me that your headaches are a result too. If you can wait it out perhaps your experience will be similar to mine and abate after a few months. Wishing you the best!
After 9 years on Prolia, I had my first Reclast infusion on December 26th. I had severe acid reflux for several days. A few weeks later, I started having bone pain in my back, neck, and shoulders. It feels like my bones are disintegrating. I have been taking ibuprofen and it does help. Also, the muscles in my legs hurt at night. I would like to find another treatment option. I hope that I can find a doctor who will help me.
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Hopefully my first and last infusion; been 7 months and the pain is still strong. Continue to have many sluggish days, both shoulders, right more than left awful pain, and left foot, all worse at night! I do not think I have slept a full night since having the infusion. Dr wants to do another infusion in June and recommend I go to Rheumatology because Reclast doesn’t have these side effects, well, yes it does! One thing that seems to stand out, stay very hydrated , might help. I have complications that prevent me from consuming large amounts of fluid and that might be some of my problem! Not sure how long this aches and pain is here for but it has already over stayed it welcome!
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1 ReactionI agree! This place has been very helpful in helping me make my decision. One woman posted her MD told her after her Reclast and continuing severe pain that 40% of people have severe side effects with Reclast.
As I currently have a 15% fracture risk over ten years, and Reclast has a 40% chance of serious side effects, it made my decision to not take it much easier.
I'm not ruling it out altogether for the furture (or other bisphosphonates) and I do know that reviews are skewed towards the negatives.
This is a great resource! Thanks very much for your thoughts.
-
Like -
Helpful -
Hug
2 ReactionsThank you. I, too, have had intermittent floating pain since my since my first Reclast infusion three weeks ago. My first symptom appeared 6 hours after the infusion: abdominal pain so severe, I considered going to the ER. It was then accompanied by the common side effects that I was warned about by my doctor: chills, fever, headache. I also had and scary moment of an elevated heart rate. Everything subsided within two to three days, except for the headaches which developed into more severe headaches everyday for 12 days that correlated with severe neck pain. The headaches are gone but not my neck pain although it’s getting better. As far as intermittent, floating pain, I experienced them once on my right thigh, once my left hip, and once my lower back — the strange thing is that they came on strong out of nowhere and lasted for an hour and disappeared. Desperate for relief for my ongoing neck pain, I went to a chiropractor who suspected the headaches were due to occipital neuralgia. I am someone who rarely gets headaches or neck pain so I’m convinced this is all because of the infusion. I have a neurology appointment for an explanation about the headaches and a follow-up endocrinology appointment this week. I’n only three weeks in since Reclast but I’m going to share your experience with my endocrinologist when I see her. After this infusion, I’m really concerned about staying on it but I’m happy to hear that you didn’t have any symptoms after your subsequent ones. What did your doctor say about your floating pain?
(BTW, I’m 60 years old. Very petite. Healthy and active. I was diagnosed with osteoporosis last year. I did the full course of Evenity as my first osteoporosis treatment last year with no symptoms.)
No actually very little was discussed with me prior to the infusion. I always do a lot of research before deciding, and I read that this intermittent pain was experienced by many other people.
Hi, from what I've read from others, it seems that doctors either don't understand or don't want to acknowledge that these symptoms come as a result of the infusion. It's too coincidental that odd pains in various parts of the body only start after Reclast. It seems possible to me that your headaches are a result too. If you can wait it out perhaps your experience will be similar to mine and abate after a few months. Wishing you the best!
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4 ReactionsAfter 9 years on Prolia, I had my first Reclast infusion on December 26th. I had severe acid reflux for several days. A few weeks later, I started having bone pain in my back, neck, and shoulders. It feels like my bones are disintegrating. I have been taking ibuprofen and it does help. Also, the muscles in my legs hurt at night. I would like to find another treatment option. I hope that I can find a doctor who will help me.
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Like -
Helpful -
Hug
2 Reactions