bone pain four months after Reclast Infusion

Posted by newenglandseasons @newenglandseasons, Aug 25, 2024

Does anyone have a story

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@njx58

Most people who take Reclast do just fine. The problem is that the people who have problems are much more likely to post about it. If you read the message boards on just about any medication, you'd think the pharmaceutical industry is actively trying to kill everyone. 🙂

Diet and walking aren't going to do the job.

There are many threads here about Reclast. Here's a search result.
https://connect.mayoclinic.org/search/?search=reclast

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You made me feel better and I thank you. I am going to go thru with it and do what people have said as far as drinking a lot of water and taking tylenol than hope and pray for the best. I have until end of August to agonize over this but you gave me a good perspective and I think I am going to steer clear of google reviews.

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@tummis05

I am 62 yo woman. I went thru very strong cancer treatments at age 44 and long story short I now have osteoperosis, severe in the spine and moderate in both hips. Doctor wants me to get Reclast infusion. I am so overwhelmed and scared by everyone's stories of pain afterwards and i don't know what to do. I want to back out and try changing my diet and walking every day but I am scared that I will end up hunched over or with broken back or whatever is going to happen. This infusion reminds me of my chemo days and I don't ever want to feel that way again. My main question is that after the pain and agony of the infusion were there positive results in a years time???? Does it even work????

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I'm 86. I had terrible bone pain from Reclast and opted not to have it again.
This year my rheumatologist had me try Prolia. Some bone soreness, hair falling out, & some edema. I'm not going to take the next shot. However, I will continue going to Pilates twice a week. Also, I have eaten a whole foods plant based diet for 15 years. My numbers are all good & I don't have to take meds. I am allergic to statins anyway. I had to be on prednisone for two years due to an autoimmune issue. The prednisone did a number on my bones. Stay healthy!

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I had both hips replaced 6 years ago. I had Reclast done in 2020 and another 2021. I don’t really think it helps. My surgeon said you can only have 5 of these in your lifetime. I had no side effects from it. The only thing is, I needed a tooth pulled and my regular dentist wouldn’t pull it due to Reclast. I went to an oral surgeon who did pull it. He said that after 5 years Reclast is out of your system

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@4corazon

I just received a Reclast infusion yesterday. So far, no problem.

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Day 5 of Reclast and still no problems. Yay!

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@tummis05

You made me feel better and I thank you. I am going to go thru with it and do what people have said as far as drinking a lot of water and taking tylenol than hope and pray for the best. I have until end of August to agonize over this but you gave me a good perspective and I think I am going to steer clear of google reviews.

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Thank you for your post. I have collected all of the information I think I need about Reclast. My googling days are over!! Most of my info is from this wonderful forum. I asked my PCP one last question about it. I talked with my electrophysiologist about AFIB as as a side effect, I have a dental exam next week and I am going on vacation the following a week. When I return, I will be asking the endo several more questions. I know, that like you, I am going to thru with it!! I am going to ask that the order be for a 60 minute infusion followed by a 1/2 hour saline rinse. Based on what I read here, I will be insisting on that. I will be doing the water and Tylenol and, like you, pray for the best!!! What a way to think about this, isn’t it?? My infusion will most likely be in August, also. Maybe we could “compare notes” after we get it!!!! Whew….I really want this over with!!

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@lee1447

Thank you for your post. I have collected all of the information I think I need about Reclast. My googling days are over!! Most of my info is from this wonderful forum. I asked my PCP one last question about it. I talked with my electrophysiologist about AFIB as as a side effect, I have a dental exam next week and I am going on vacation the following a week. When I return, I will be asking the endo several more questions. I know, that like you, I am going to thru with it!! I am going to ask that the order be for a 60 minute infusion followed by a 1/2 hour saline rinse. Based on what I read here, I will be insisting on that. I will be doing the water and Tylenol and, like you, pray for the best!!! What a way to think about this, isn’t it?? My infusion will most likely be in August, also. Maybe we could “compare notes” after we get it!!!! Whew….I really want this over with!!

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AFIB?? I didn't read about that side affect. Ugh! I read about the 60 min infusion and saline rinse also. I have bugged my endo so many times with questions that I am starting to feel like a pain in the neck. I wish I didn't have to wait until end of August as I also just want it over and done! I will def post here after Aug 28th and let you know how it goes. Good luck to you!

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@tummis05

I am 62 yo woman. I went thru very strong cancer treatments at age 44 and long story short I now have osteoperosis, severe in the spine and moderate in both hips. Doctor wants me to get Reclast infusion. I am so overwhelmed and scared by everyone's stories of pain afterwards and i don't know what to do. I want to back out and try changing my diet and walking every day but I am scared that I will end up hunched over or with broken back or whatever is going to happen. This infusion reminds me of my chemo days and I don't ever want to feel that way again. My main question is that after the pain and agony of the infusion were there positive results in a years time???? Does it even work????

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It has been just one year for me and since the day after the infusion I have been experiencing sharp pain in both shoulder and my left foot. I’ve been going to Physical therapy and it has helped. I’ve also found that the more active I try to be the less the pain. One day the weather was awful so I spent a good share of the day laying low and I could hardly move my arms by days end. My “ T” score is a little better and my endocrinologist wants me to have another infusion but I have decided to not go this root. He doesn’t feel that the Reclast caused this issue and has referred me to a rheumatologist. I’ll decide more after I go there, only issue is my appointment with the rheumatologist is not until 01/29/2026; booked way out! Good luck whatever way you go! I too have had cancer with chemo treatment each time (5 times now, bladder cancer) I feel terrible and have issues with respiratory issues for like 6 month with antibiotics.

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I don't understand why doctors don't seem to think the pains experienced after the infusion are not associated with the infusion. I have read many posts like yours that patients are referred here and there and probably end up going through a whole series of other doctor appointments, imaging and tests to try to figure out what's wrong. It is sad and I feel bad for anyone going through this. We are at the mercy of an overwhelmed and lousy healthcare system. My best to you!

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@tummis05

I don't understand why doctors don't seem to think the pains experienced after the infusion are not associated with the infusion. I have read many posts like yours that patients are referred here and there and probably end up going through a whole series of other doctor appointments, imaging and tests to try to figure out what's wrong. It is sad and I feel bad for anyone going through this. We are at the mercy of an overwhelmed and lousy healthcare system. My best to you!

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My opinion is that doctors don't want to admit pain can be caused by infusions because then they'd have to deal with it. It's listed as a side effect in the drug literature, so to have doctors deny that patients experience pain seems like malpractice.

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@daisy17

My opinion is that doctors don't want to admit pain can be caused by infusions because then they'd have to deal with it. It's listed as a side effect in the drug literature, so to have doctors deny that patients experience pain seems like malpractice.

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Try a malpractice case is a joke! They all cover each others Tush

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