bone pain four months after Reclast Infusion

I just had my first one three weeks ago and I do have the same pains as you do. I did not get sick or anything like that. I hope it’s not long-term and I agree with you. I probably will not do it again and try a different route I hope you get better thank you for responding. It means a lot to me to know their support out here. I see my doctor on Tuesday but I’m afraid I might not get the acknowledgment of the pain I feel.

I normally don’t call my doctors. I just deal with things but I was in so much pain that I did call both the endocrinologist and my PCP and my PCP sent in a script for some medicine but the pharmacist says it can cause gut bleeding so I decided not to take it. At this point, I don’t have any arthritis and 57 years old and I’m sure that’s coming sooner than later. I hope I have a good outcome where the pain just stops as fast as it started. Thank you for responding. It truly helps.

I'm so sorry you are dealing with this! I had my infusion mid November with similar symptoms. Like you, I'm not one to reach out to my doctors but the pain was so intense that I had too. The pain started to subside after about two weeks. I don't like to take medications but alternated acetaminophen and ibuprofen every 6 hours. By week 3, I started to feel like myself again.
I am a pediatric physical therapist and have a physical job. I still notice weakness in my hands, intermittent neck stiffness and low back pain but it is mild. I am still building back up to my regular exercise levels after two months. I can't imagine going through this again so will find an alternative.
I hope you feel better soon!!

I've been taking Fosamax off and on for years. No side effects. You must be compliant and take it once a week or your won't see good results. Follow the directions carefully. I always wait an hour before I eat or drink. I don't take any calcium for at least 2 hours. Good luck!

I had Reclast on Oct. 31. I was in bed for 3 days with flu like pain. Now I do have neck pain at top of spine. I did start this about a week after infusion. Another weird thing I got the next day was inflammation of the eyelids. I just took Benadryl and it subsided in 2 days. The only real side effect that I have now is that neck pain. I am 69 years old and usually very active. The tough thing is finding a doctor that deals with the individual areas.

For about 3 months after my first Reclast infusions, I had intermittent pains moving through different parts of my body. One shoulder locked up on me, I wasn't able to turn my head for a few days, there was pretty intense pain in my right calf muscle. After about 3 months this ' floating' pain disappeared. I had the other 2 infusions the following 2 years with no side effects at all. With bone density testing afterwards, there was quite a notable strengthening of both my right hip and spine. It is a big decision getting infusions and also continuing with the whole course. I hope that your discomfort subsides and that your final outcome is as positive as mine.

So you received 3 Reclast infusions. May I ask what is next?

Yes, a Reclast infusion once a year for 3 years. There will be no more. Apparently Reclast stays in the body well after the series of infusions. At least with my medical plan that seems to be the norm.

Hello @predni, I combined your discussion with an existing discussion titled:

"bone pain four months after Reclast Infusion"
- https://connect.mayoclinic.org/discussion/bone-pain-for-months-after-reclast-infusion/

Here you can meet other members discussion bone pain. @predni, have you had a chance to talk with your provider about the bone pain? Was this a potential side-effect that was discussed prior to treatment?

Hello @mawde20,

It is perfectly reasonable to be tepid and hesitant when approaching a major medication decision, especially power medications like ones for osteoporosis. Weighing the pros and cons of starting treatment can play a large role in decision-making. Do potential side-effects outweigh the risks of not taking medication and risking fractures that could be more detrimental to your long-term health?

Mayo Clinic Connect is a great place for members to get real-life experiences from others who have been in their situation. It is also important to note that when discussing medications we often read about the negative experiences more than the positive ones. You may find the following discussion worth reading where a member shares their experience with delaying treatment after reading negative experiences on Connect and wishing they had started treatment sooner:

"Evenity worked for me: Why I chose medication for osteoporosis"
- https://connect.mayoclinic.org/discussion/evenity-worked-for-me/

It can be helpful to see positive experiences to help balance those that unfortunately experienced side-effects.