So its been approximately 4 moths since my Reclast infusion, and I continue to have issues from it. I had a very negative situation, and I realize everyone’s situation is different, people react differently, but, I have had what I call fallout from it. I was extremely sick for 5 days, and doctors think I may have had an allergic reaction. I am experiencing bone pain in feet, ankles, legs, knees, hips, joints. I notice issues relating to pain in teeth, jaws, and am so worried that maybe it could cause or is causing teeth issues now. I know I personally would not take the infusion again, But I realize that talking with many people, listening to the stories, will help me on the path to what I try next. All these stories and experiences has been so valuable and Im so thankful.
I just had my first one three weeks ago and I do have the same pains as you do. I did not get sick or anything like that. I hope it’s not long-term and I agree with you. I probably will not do it again and try a different route I hope you get better thank you for responding. It means a lot to me to know their support out here. I see my doctor on Tuesday but I’m afraid I might not get the acknowledgment of the pain I feel.
I had Reclast infusion Nov 12th, went thru flu like symptoms for 3 days, end of day 3 started with worst bone and joint pain ever. I was ready to go to the ER. Called clinic and was told to take Claritin along with ibuprofen and Tylenol. I took it for a month and started feeling better. So stopped to test if I still needed it. So far I've been good. Just normal arthritis pain I've always had. I told my NP that I won't be taking it again. I have a year, but next time it'll be something different for sure.
I normally don’t call my doctors. I just deal with things but I was in so much pain that I did call both the endocrinologist and my PCP and my PCP sent in a script for some medicine but the pharmacist says it can cause gut bleeding so I decided not to take it. At this point, I don’t have any arthritis and 57 years old and I’m sure that’s coming sooner than later. I hope I have a good outcome where the pain just stops as fast as it started. Thank you for responding. It truly helps.
I normally don’t call my doctors. I just deal with things but I was in so much pain that I did call both the endocrinologist and my PCP and my PCP sent in a script for some medicine but the pharmacist says it can cause gut bleeding so I decided not to take it. At this point, I don’t have any arthritis and 57 years old and I’m sure that’s coming sooner than later. I hope I have a good outcome where the pain just stops as fast as it started. Thank you for responding. It truly helps.
I'm so sorry you are dealing with this! I had my infusion mid November with similar symptoms. Like you, I'm not one to reach out to my doctors but the pain was so intense that I had too. The pain started to subside after about two weeks. I don't like to take medications but alternated acetaminophen and ibuprofen every 6 hours. By week 3, I started to feel like myself again.
I am a pediatric physical therapist and have a physical job. I still notice weakness in my hands, intermittent neck stiffness and low back pain but it is mild. I am still building back up to my regular exercise levels after two months. I can't imagine going through this again so will find an alternative.
I hope you feel better soon!!
I have an endo appt this week. I am finishing up 18 months of tymlos. I know my doc will be discussing another medication. After reading up on Prolia and Reclast I am scared of these medications. Anyone here have experience with Fosomax?
I've been taking Fosamax off and on for years. No side effects. You must be compliant and take it once a week or your won't see good results. Follow the directions carefully. I always wait an hour before I eat or drink. I don't take any calcium for at least 2 hours. Good luck!
I just had my first one three weeks ago and I do have the same pains as you do. I did not get sick or anything like that. I hope it’s not long-term and I agree with you. I probably will not do it again and try a different route I hope you get better thank you for responding. It means a lot to me to know their support out here. I see my doctor on Tuesday but I’m afraid I might not get the acknowledgment of the pain I feel.
I had Reclast on Oct. 31. I was in bed for 3 days with flu like pain. Now I do have neck pain at top of spine. I did start this about a week after infusion. Another weird thing I got the next day was inflammation of the eyelids. I just took Benadryl and it subsided in 2 days. The only real side effect that I have now is that neck pain. I am 69 years old and usually very active. The tough thing is finding a doctor that deals with the individual areas.
Hi, i am reaching out to anyone who has had or having major bone pain after receiving reclast. Three days after receiving my first infusion, I started having pain in my feet And ankles and it proceeded to move up through my calves, my legs and my hips and I’m trying to do some reading and how long that might last. I’m just trying to get some support. I appreciate any comments. Thank you.
For about 3 months after my first Reclast infusions, I had intermittent pains moving through different parts of my body. One shoulder locked up on me, I wasn't able to turn my head for a few days, there was pretty intense pain in my right calf muscle. After about 3 months this ' floating' pain disappeared. I had the other 2 infusions the following 2 years with no side effects at all. With bone density testing afterwards, there was quite a notable strengthening of both my right hip and spine. It is a big decision getting infusions and also continuing with the whole course. I hope that your discomfort subsides and that your final outcome is as positive as mine.
For about 3 months after my first Reclast infusions, I had intermittent pains moving through different parts of my body. One shoulder locked up on me, I wasn't able to turn my head for a few days, there was pretty intense pain in my right calf muscle. After about 3 months this ' floating' pain disappeared. I had the other 2 infusions the following 2 years with no side effects at all. With bone density testing afterwards, there was quite a notable strengthening of both my right hip and spine. It is a big decision getting infusions and also continuing with the whole course. I hope that your discomfort subsides and that your final outcome is as positive as mine.
Yes, a Reclast infusion once a year for 3 years. There will be no more. Apparently Reclast stays in the body well after the series of infusions. At least with my medical plan that seems to be the norm.
Hi, i am reaching out to anyone who has had or having major bone pain after receiving reclast. Three days after receiving my first infusion, I started having pain in my feet And ankles and it proceeded to move up through my calves, my legs and my hips and I’m trying to do some reading and how long that might last. I’m just trying to get some support. I appreciate any comments. Thank you.
Here you can meet other members discussion bone pain. @predni, have you had a chance to talk with your provider about the bone pain? Was this a potential side-effect that was discussed prior to treatment?
I'm very grateful to you and your doctor. I've been on the fence with bisphosphonates, but the more I read, the more I'm leaning towards natural help.
Doctors and clinical pharmacists always talk about side effects being rare. 40% does not sound rare.
Thank you for this post!
It is perfectly reasonable to be tepid and hesitant when approaching a major medication decision, especially power medications like ones for osteoporosis. Weighing the pros and cons of starting treatment can play a large role in decision-making. Do potential side-effects outweigh the risks of not taking medication and risking fractures that could be more detrimental to your long-term health?
Mayo Clinic Connect is a great place for members to get real-life experiences from others who have been in their situation. It is also important to note that when discussing medications we often read about the negative experiences more than the positive ones. You may find the following discussion worth reading where a member shares their experience with delaying treatment after reading negative experiences on Connect and wishing they had started treatment sooner:
Connect
Connect
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I just had my first one three weeks ago and I do have the same pains as you do. I did not get sick or anything like that. I hope it’s not long-term and I agree with you. I probably will not do it again and try a different route I hope you get better thank you for responding. It means a lot to me to know their support out here. I see my doctor on Tuesday but I’m afraid I might not get the acknowledgment of the pain I feel.
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2 ReactionsI normally don’t call my doctors. I just deal with things but I was in so much pain that I did call both the endocrinologist and my PCP and my PCP sent in a script for some medicine but the pharmacist says it can cause gut bleeding so I decided not to take it. At this point, I don’t have any arthritis and 57 years old and I’m sure that’s coming sooner than later. I hope I have a good outcome where the pain just stops as fast as it started. Thank you for responding. It truly helps.
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Helpful -
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1 ReactionI'm so sorry you are dealing with this! I had my infusion mid November with similar symptoms. Like you, I'm not one to reach out to my doctors but the pain was so intense that I had too. The pain started to subside after about two weeks. I don't like to take medications but alternated acetaminophen and ibuprofen every 6 hours. By week 3, I started to feel like myself again.
I am a pediatric physical therapist and have a physical job. I still notice weakness in my hands, intermittent neck stiffness and low back pain but it is mild. I am still building back up to my regular exercise levels after two months. I can't imagine going through this again so will find an alternative.
I hope you feel better soon!!
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Helpful -
Hug
1 ReactionI've been taking Fosamax off and on for years. No side effects. You must be compliant and take it once a week or your won't see good results. Follow the directions carefully. I always wait an hour before I eat or drink. I don't take any calcium for at least 2 hours. Good luck!
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Helpful -
Hug
2 ReactionsI had Reclast on Oct. 31. I was in bed for 3 days with flu like pain. Now I do have neck pain at top of spine. I did start this about a week after infusion. Another weird thing I got the next day was inflammation of the eyelids. I just took Benadryl and it subsided in 2 days. The only real side effect that I have now is that neck pain. I am 69 years old and usually very active. The tough thing is finding a doctor that deals with the individual areas.
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Like -
Helpful -
Hug
1 ReactionFor about 3 months after my first Reclast infusions, I had intermittent pains moving through different parts of my body. One shoulder locked up on me, I wasn't able to turn my head for a few days, there was pretty intense pain in my right calf muscle. After about 3 months this ' floating' pain disappeared. I had the other 2 infusions the following 2 years with no side effects at all. With bone density testing afterwards, there was quite a notable strengthening of both my right hip and spine. It is a big decision getting infusions and also continuing with the whole course. I hope that your discomfort subsides and that your final outcome is as positive as mine.
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Helpful -
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4 ReactionsSo you received 3 Reclast infusions. May I ask what is next?
Yes, a Reclast infusion once a year for 3 years. There will be no more. Apparently Reclast stays in the body well after the series of infusions. At least with my medical plan that seems to be the norm.
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1 ReactionHello @predni, I combined your discussion with an existing discussion titled:
"bone pain four months after Reclast Infusion"
- https://connect.mayoclinic.org/discussion/bone-pain-for-months-after-reclast-infusion/
Here you can meet other members discussion bone pain. @predni, have you had a chance to talk with your provider about the bone pain? Was this a potential side-effect that was discussed prior to treatment?
Hello @mawde20,
It is perfectly reasonable to be tepid and hesitant when approaching a major medication decision, especially power medications like ones for osteoporosis. Weighing the pros and cons of starting treatment can play a large role in decision-making. Do potential side-effects outweigh the risks of not taking medication and risking fractures that could be more detrimental to your long-term health?
Mayo Clinic Connect is a great place for members to get real-life experiences from others who have been in their situation. It is also important to note that when discussing medications we often read about the negative experiences more than the positive ones. You may find the following discussion worth reading where a member shares their experience with delaying treatment after reading negative experiences on Connect and wishing they had started treatment sooner:
"Evenity worked for me: Why I chose medication for osteoporosis"
- https://connect.mayoclinic.org/discussion/evenity-worked-for-me/
It can be helpful to see positive experiences to help balance those that unfortunately experienced side-effects.
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