I have severe muscle contractions and tremors during sleep. They occur when I attempt to change position and only after I have been asleep for at least six hours. This began in October of 2023 and happens virtually every night. I went to see a neurologist who said she had never heard of any such thing and dismissed me saying maybe it would self resolve.
I hate when I hear that their doctor has dismissed them! It’s frustrating! I too have long covid (over 2 years no taste or smell) and on occasion will get these severe cramping in my lower extremities and body tremors. It will usually happen when I’m over tired and have been on my feet a lot. I have been using LMNT Electrolyte Hydration packets pretty regularly and they seem to help as they’re loaded with magnesium, potassium and sodium. I also try not to get over tired. I wish you well on your health journey!
Hello,
I have had similar experiences with muscle cramps (severe and debilitating), twitching at times, spasms so bad my feet or leg or fingers will lock in a spasm, very painful. Usually, it is in my foot or leg area and wakes me up in middle of night. Worse since having long covid. My doctor told me to take Magnesium Glycinate and Magnesium Oxide. Glycinate for muscle cramps, Oxide for Constipation. Might sound weird, but the problems seem to be related. I added in LMNT electrolytes and plenty of water all day. It seems dehydration and low magnesium in my system triggers these events. When they happen in the middle done, as painful as it is to get up and walk, I go get magnesium and drink at least 16 ounces of water and put a heating pad on the area. This has been a tremendous help. Hope this helps!
I have taken magnesium for a long while. It has been so helpful, especially for RLS which could be part of your problem. Foods high in MSG should also be avoided, especially late in the day.
Hello,
I have had similar experiences with muscle cramps (severe and debilitating), twitching at times, spasms so bad my feet or leg or fingers will lock in a spasm, very painful. Usually, it is in my foot or leg area and wakes me up in middle of night. Worse since having long covid. My doctor told me to take Magnesium Glycinate and Magnesium Oxide. Glycinate for muscle cramps, Oxide for Constipation. Might sound weird, but the problems seem to be related. I added in LMNT electrolytes and plenty of water all day. It seems dehydration and low magnesium in my system triggers these events. When they happen in the middle done, as painful as it is to get up and walk, I go get magnesium and drink at least 16 ounces of water and put a heating pad on the area. This has been a tremendous help. Hope this helps!
i have also found compression socks to be very helpful. i wear them day and night. i have a drawer full of them now (from Amazon). some up to the knee some above. it really helps at night.
I get this crazy spasm like my stomach sucks in by itself and out..I feel like a crazy person when I tell my Dr this..he has absolutely no reply. The muscles in my stomach just go crazy like contractions. I'm so tired od all this. Could be my diaphragm who knows, it does scare me. It only happens when I'm laying down. I start to massage my stomach and change position. Just another thing on my long covid list. I'd like to know if anyone else gets this. Thanks.
I get this crazy spasm like my stomach sucks in by itself and out..I feel like a crazy person when I tell my Dr this..he has absolutely no reply. The muscles in my stomach just go crazy like contractions. I'm so tired od all this. Could be my diaphragm who knows, it does scare me. It only happens when I'm laying down. I start to massage my stomach and change position. Just another thing on my long covid list. I'd like to know if anyone else gets this. Thanks.
I have tremors I had benign tremors coming into Covid and now it's so much worse and also bad muscle weakness. I've been to five neurologist and they give me the usual test and they either say I'm fine or there's nothing they can do. So I have no advice on this matter except that it's important to keep moving try walking if you can and I have to use my arms so there you go. Good luck to us all
Has anyone found anything that worked for interal vibration tremors? I've had then in my trunk since July, initially along my spine while lying in bed but now full body and also now daytime, full body. Theyre not visible. Ive made progress with other Long Covid symptoms of fatigue and neuro pain with LDN, physical therapy, red light therapy, functional medicine docs. Nothing helps this. Any suggestions?
Please pass along any help for this you recieve.
I'm going on 3 years of the same, and all tests, mri, emg are all good, not explaining the spasms and pain.
THANKS NORBERT
Hi Norbert,
Here’s a quick recap of the pieces I think have had the greatest impact:
- Post-Covid syndrome education classes (understanding exactly what you’re up against from a viral infection is so important)
- One-on-one work with a wellness coach to assist with developing the best habits to handle the common setbacks from a viral infection
- The above work really helped stabilize my vitals, i.e. heart rate, blood pressure (Mayo did a great job with the tests they put me through and use the information to guide the treatment plan)
- Am working with a cardiologist on an exercise program developed for Covid patients with heart arrhythmia issues
- Assessed all my previous meds and worked on a plan to taper off my prior meds to eliminate side effects
- Started me on a new med they have been experimenting with Long Haul patients, Low Dose Naltrexone - this has been a game-changer for me to help manage the previous symptoms holding me back (she could internet search the med and Long Covid to pull up the details on how it helps)
Sorry for the rather lengthy msg…let me know if I could help with anything specific.
Steve
@itsmeagain
Yes, Gabapentin helped but I don’t need it anymore. Dr prescribed it because he thought I had Parkinson’s but that turned out to not be the case. I was on 200 mg 3x/wk.
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I hate when I hear that their doctor has dismissed them! It’s frustrating! I too have long covid (over 2 years no taste or smell) and on occasion will get these severe cramping in my lower extremities and body tremors. It will usually happen when I’m over tired and have been on my feet a lot. I have been using LMNT Electrolyte Hydration packets pretty regularly and they seem to help as they’re loaded with magnesium, potassium and sodium. I also try not to get over tired. I wish you well on your health journey!
Elliep
Yes, I tried this protocol. It did not help any of my symptoms.
However everybody is different and I think it helps some people.
I have taken magnesium for a long while. It has been so helpful, especially for RLS which could be part of your problem. Foods high in MSG should also be avoided, especially late in the day.
i have also found compression socks to be very helpful. i wear them day and night. i have a drawer full of them now (from Amazon). some up to the knee some above. it really helps at night.
I get this crazy spasm like my stomach sucks in by itself and out..I feel like a crazy person when I tell my Dr this..he has absolutely no reply. The muscles in my stomach just go crazy like contractions. I'm so tired od all this. Could be my diaphragm who knows, it does scare me. It only happens when I'm laying down. I start to massage my stomach and change position. Just another thing on my long covid list. I'd like to know if anyone else gets this. Thanks.
that should not be dismissed!
I have tremors I had benign tremors coming into Covid and now it's so much worse and also bad muscle weakness. I've been to five neurologist and they give me the usual test and they either say I'm fine or there's nothing they can do. So I have no advice on this matter except that it's important to keep moving try walking if you can and I have to use my arms so there you go. Good luck to us all
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2 ReactionsHas anyone found anything that worked for interal vibration tremors? I've had then in my trunk since July, initially along my spine while lying in bed but now full body and also now daytime, full body. Theyre not visible. Ive made progress with other Long Covid symptoms of fatigue and neuro pain with LDN, physical therapy, red light therapy, functional medicine docs. Nothing helps this. Any suggestions?
Hi Norbert,
Here’s a quick recap of the pieces I think have had the greatest impact:
- Post-Covid syndrome education classes (understanding exactly what you’re up against from a viral infection is so important)
- One-on-one work with a wellness coach to assist with developing the best habits to handle the common setbacks from a viral infection
- The above work really helped stabilize my vitals, i.e. heart rate, blood pressure (Mayo did a great job with the tests they put me through and use the information to guide the treatment plan)
- Am working with a cardiologist on an exercise program developed for Covid patients with heart arrhythmia issues
- Assessed all my previous meds and worked on a plan to taper off my prior meds to eliminate side effects
- Started me on a new med they have been experimenting with Long Haul patients, Low Dose Naltrexone - this has been a game-changer for me to help manage the previous symptoms holding me back (she could internet search the med and Long Covid to pull up the details on how it helps)
Sorry for the rather lengthy msg…let me know if I could help with anything specific.
Steve
@itsmeagain
Yes, Gabapentin helped but I don’t need it anymore. Dr prescribed it because he thought I had Parkinson’s but that turned out to not be the case. I was on 200 mg 3x/wk.