Is this ALS?
Hi everyone. Please feel free to be honest with me because I am driving myself crazy trying to figure out what is going on with my body. A few months ago I started having what feel like internal vibrations in my legs and then a month ago I started having twitching and spasms in my feet especially the arches and my thighs and upper back. I also have been having fatigued forearms and cramps in my hands and feet. I can’t sleep at night because my hands and feet cramp so bad and my body twitches in random places. I had an emg done last year that did show denerveration but I havent had a new one. I have an appointment with neurology next week but any insight would be greatly appreciated because I’m stressing myself out. Thank you.
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I would not be too concerned. ALS usually manifests with fasciculations in multiple muscles, and since you are only experiencing infrequent fasciculations in a single location a neurologist would likely just follow your situation for several months to see if there are any changes. If you do not have any muscle weakness or atrophy that would also be a good sign. It could be nothing, or it could be something innocuous like BFS.
While you shouldn't ignore it, I doubt that you have reason to panic.
I have to have a three limb EMG on Feb. 11 since I am having nonstop fasciculations in several muscle groups and have been having sporadic facsiculations in various muscles. I'm crossing my fingers that it is BFS rather than ALS. All other causes have been ruled out is it coming done to one or the other.
Good Luck!
There are motor neuron diseases besides ALS. Mine started in May 24 when I was lifting some dishes to put away. All of a sudden there seemed not enough strength. I also had some nerve twitching and my left arm got worse. My right arm is still pretty strong and although my legs are weak, I can still walk short distances, need help with steps. I won't bore you with further info.
Specific info I am glad to answer. It is good to get nerve testing done. Also get your neurologist
to get you into PT and OT, physical therapy and occupational therapy. If you have ALS, the plan is to try and keep your strength but NOT to overdo it. Keep busy, don't be a couch potato. Best to you.
Thank you everyone for your support, the ALS is diagnosed at the Mayo Clinic and our cousin is showing more and more symptoms.
She has a feeding tube since months, she started to write everything up instead of speaking, she can hardly walk…
But she is a strong believer, always in a good mood and very creative when it comes to changing habits to make it easier for her and others.
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4 ReactionsHi my names wez I'm 36 and I'm worried sick I might have als , about 7 or 8 years ago I noticed my left triceps had disappeared overnight and I was much weaker in the gym on 1 side as started physio for a while and wasn't getting better any about 3 years later I had an emg test which came back good as far as I know there was no mention of ALS, but my arm is getting smaller I've got twitches all over , it's now Been atleast 7 years since my first symptom n now I've just had an MRI n there saying they think I've had c7 nerve compression and I meed another emg , now I'm confused I'm worried I feel like I'm wasting away and counting down the days
Good luck to you! I hope BF’s diagnosis!
What are the minimum tests that should be conducted to determine if someone had ALS?
4 limb EMG's and nerve conductivity study. Most of the other tests are to exclude other possible causes, not confirm ALS.
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1 ReactionPlease see Dr. Kumar Mayo Minnesota
So sorry for her diagnosis. Please tell her that someone she does not know is praying for her, and also all who love her. She sounds like a terrific person. May God bless you all. ❤️
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2 ReactionsSadly she died a few weeks ago, patient and believing in the Lord until her last breath.
We all loved her so much, never forget her beautiful smile.
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