Raynaud's Syndrome: Anyone want to talk about Raynaud’s?
Anyone want to talk about Raynaud's Syndrome? My daughter has a severe case of it. I would like to start a support group here on Connect to find others, share our stories, treatments and managing daily life.
Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.
bruizersmom, do you know if your Raynaud's is primary or secondary?
I don't even know the term. I was diagnosed after a teensie bit of frostbite...does that mean anything??
My granddaughter suffers terribly from Raynauds. However a couple of weeks ago she had a reverse symptom. Her fingertips became red and swollen and hot to the touch. She was treated with steroids and antibiotics. Is this the same thing or what could it have been?
I've had it for 30 years, it's worse in the winter with the cold weather as well as picking up ice cubes. I take beet root powder daily to increase my circulations, and I use a ball that I squeeze to keep the circulation moving. It's really helped me.
Hi mireckij
I've had Reynaud's for 60's years. My fingers turn Red, Blue,Green. I used to hunt and fish a lot in the Northern States including Canada (born in Quebec). When fingers get Blue or Green I can do very little. Never use hot water to warm fingers. Thank's for tip on heated gloves from Amazon.
Kevin
I have the same. A hot bath will activate the pain so I keep my toes out of the tub. Volteran on the toes does help, and also arnica. Finally, I take a lot of Tylenol. I've started to wear silk inner socks inside my socks. joank
Please define "primary or secondary"....new to me. Thanks.
bruizersmom,
Raynaud's can be the result of an autoimmune disease, or it can be primary a disease on it own.
I missed your earlier response. Frostbite can happen without Raynaud's or secondary to Raynaud's, so frostbite can't give you an indication of autoimmune status.
Raynaud's is commonly associated with lupus.
I am sorry about your toes. Do they recover completely from frostbite.
I think I intended to ask if you were employing any medication.
I get the white fingertips when working with cold food--cutting frozen fruit or very cold chicken. But not when walking in freezing temperatures.