Seeing child-like behaviors in loved one, anyone else?
Wondering if anyone else is seeing regression to child-like behaviors in their loved one? My husband is now watching children's cartoons, and has similar reactions to content that a child would.
When not watching cartoons, when he's happy or excited about something he says, "yeah!" The something may be that we are going out to run errands, or that dinner is served.
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@judimahoney I am only doing things that make me happy now. If I want to eat sweets, or snacks I do so.
I have Alzheimer’s dementia.How much longer am I going to be able to do what I love?
My husband complains that I am treating him like a baby, does some odd things that he would never have done before. You can request a neuro-psych evaluation to determine deficits in thinking. These behaviors are especially evident when he has a UTI, so check for that. Two years later, some of the behaviors are no longer intermittent. https://teepasnow.com/blog/stop-the-baby-talk-3-reasons-why-you-should-not-treat-people-living-with-dementia-like-children/ Another great resource I've found is on Facebook: AARP Family Caregiving site. It is awesome, wonderful sharing of the journey and helpful advice. Council on Aging has a class called Caregiving Essentials, which presents various resources for the future.
Thanks, I've listed those helpful resources.
My husband had the battery of tests at Neuro doc earlier this year and returns January, so we'll know later how much he's declined.
Thanks again.
Hi @judimahoney
My husband, also has some personality changes and childlike behaviors. He has Vascular Dementia following 5 known strokes, since 2018, and MRIs showing chronic, ongoing “silent” lacunar strokes, secondary to CAD. His strokes have each been in different areas of his brain, including the Frontal Lobe, which affects inhibition ( no or less filter) and thought processing. Our loved ones with cognitive decline can have these changes due to different areas being damaged, chemical changes affecting neurotransmitters - and a phenomenon called TIMESHIFTING. At times believing/perceiving they are in another, simpler time of their life.
With his Vascular Dementia, until his last stroke in October, he was having mostly slower, executive functioning, and thought process processing. However, he’s had a sharp decline in short term memory the last couple months, and what I’ve noticed, especially when our kids or grands visit, is that he perks up and tries harder than the apathy that we know comes with dementia. This “ show timing” is his attempt to appear to be doing better for them ( also doctors), and it results in him making up for the short-term memory by telling them stories from childhood and his teens and 20s. When in this mode, his personality is different and he will laugh inappropriately. Like in pseudo-bulbar effect, but this isn’t a constant symptom for him.
Like you’ve mentioned here and any other posts, a huge sugar craving. Making any dietary changes at this point isn’t going to reverse my husband‘s decline, and eating what he likes is one of the few pleasures he has at this point, so it’s not an issue. He otherwise will say he doesn’t have an appetite is eating much less. However, if I just prepare and provide him snacks and meals he likes, he eats them.
Our brains and memory are interesting and complex! Watching the changes in our loved, as they lose part of themselves and become someone we don’t recognize is debilitating and exhausting. I don’t know about you, and other others here, Judi, but I feel like I’ve been living in a state of limbo and anticipatory grief, since 2018.
But I/ we are blessed to have 5 grown children, 3 in our local area, and also grandchildren, who are all supportive and have been a big help to me as a caregiver. Until the last two strokes, I think they were in a state of denial and also just not seeing the changes in their father in short visits and phone calls that we as caregivers see on a daily basis, so that was a huge stressor for me.
Finding this community of caregivers has really helped, along with making self-care and interests a priority, especially knowing that as he declines, these will become even more challenging.
“Dementia Darling” on Facebook and Instagram is also a positive and helpful resource.Take care all
Thanks for sharing all of this. It is great to have this virtual support. 🙂
Another great resource I’ve encountered for caregivers is provided by geropsychologist, Sr. Natali Edmonds, with Facebook and Instagram profiles both named Dementia_Careblazers. Here is her website - https://careblazers.com/.
I really related to your well-chosen description “living in a state of limbo and anticipatory grief”. My husband of 14 years (second marriage for both) was diagnosed with MCI due to Alzheimer’s disease in 2019 and now it’s Moderate Dementia due to AD. Typically I’m very much a planner but now everything is fluid. It’s so anxiety provoking. I’m trying to make plans about future care, including possibly going into a memory care unit but the variables are monumental in trying to assess what’s next. One day life is uneventful and the next his symptoms are exacerbated. His balance and gait problems resulted in 9 falls in the last 6 months, 2 into the lagoon in our back yard in Florida. (We have a yard man now so that’s fixed that problem.) One night at 2 am he fell getting out of bed because he had a fever that results in a spike in all dementia symptoms. I was overwhelmed and called the fire dept non emergency basis for help with fallen individual. I laugh now but imagine … 2 fire/rescue trucks arrived and I had 8 very large (quite handsome) firefighters all in my bedroom at one time. So there are moments of humor along the journey 🤪. I’m still trying to make plans though …..
It's a lot to bear sometimes, right? It's no fun making all the decisions by yourself, hugs to you.
I hope you find a care facility that is a wonderful fit. All the best to you and here's some virtual support. 🫂
@karen285
It sounds like our journeys and experiences with our husbands’ neuro degenerative conditions are all too similar. I am also a planner learning to adjust and flow each day to his symptoms. Since the 2 strokes 9 days apart, summer of 2021, he also has 3PD, motion oriented dizziness, from the moment he plants his feet on the floor. Amazingly, he hasn’t yet had falls, yet he has a Parkinsonian type of gait and shuffle. He fits the symptoms of Subcortical Vascular Dementia, Binswanger’s type. While his neuropsychological assessment suggested MCI, last April, from my observations he is moderate cognitive impairment. On his best days. Truthfully, the only distinction between MCI and the label of any type of Dementia, as doctors have told us, is that with MCI, an individual can still complete ADLs. Regardless, as we know, it is devastating watching our loved ones slowly lose pieces of their personalities and abilities. Sending love and prayers to all, and I hope you are able to get the placement you are hoping for to give your husband the best quality of life, you as well, and peace of mind.