Anyone with multiple aneurysms??

Posted by wonkyheart @wonkyheart, Jan 26 9:11am

Hello everyone 😊
This is my 1st post. I’m a 50 year old woman that went in for hand surgery pre op echo and they discovered multiple TAAs. I went in for a TEE and they discovered that I have an Aneurysmal membranous interventricular septum and an atrial septal aneurysm with PFO. I also have an enlarged aortic valve. So, I was wondering if anyone else has issues going on?

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

Hello, I am sorry to hear about your recent findings. I know how much of a shock that can be when you first get test results back... especially if you're younger and have seemingly no known issues. I am 52 year old woman who has a dilated Ascending Aorta measured on echo at 3.74 cm then ct scan a year later says 3.92 cm. Now ct scan six months after that just says "no aneurysm." All tests done at same center. You don't mention the sizes of your aneurysms but if they are on the small size, regular surveillance is usually the first course of action along with lifestyle, diet modifications to support healthy weight, normal blood pressure, etc. I've read where many people that have small ones that are slow growing or stable may not ever need the procedure to correct it. Which is nice to hope for since the repair and recovery of such things sounds pretty daunting. Although people do get through it wonderfully as well. Also helpful to remember. Wishing you good luck as you navigate your situation and good health all along the way!

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I’m 60 now. I had a complete sudden dissection at 50. I understand how worried you are but now you know you have a problem and can fix it. It’s a lot to take in—I’m so sorry you’re going through this. I’m not a doctor, but I can absolutely relate to how overwhelming this kind of news can feel. It sounds like your pre-op testing uncovered more than you expected, and now you’re left processing these new diagnoses while trying to figure out what’s next.

From what you’ve shared, it seems like there’s a lot happening with your heart and blood vessels, and while that can feel scary, it’s good that this was caught before your hand surgery. Aneurysms, especially multiple ones, definitely need close monitoring. And the atrial septal aneurysm with a PFO adds another layer to manage. The good news is, these kinds of findings are often well-documented, and specialists (usually cardiologists or cardio-thoracic surgeons) can guide you on what to watch for and how to treat them.

You might want to look into connecting with people who have similar conditions. Communities like Aortic Hope or Marfan Foundation (even if you don’t have Marfan syndrome, they deal with connective tissue and aortic conditions) could be helpful. They’re full of people who’ve been through similar situations and can give you advice or just a little reassurance.

The most important thing right now is probably building a solid care team. If you haven’t already, find a cardiologist or even a specialist at a major heart center who deals with aortic and structural heart issues. They’ll know how to track these conditions and help you figure out the best plan moving forward.

Hang in there—it’s okay to feel all the emotions. If you want to share more about how you’re doing or what your doctors have recommended so far, I’d be happy to help where I can. Peace.

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