Neuropathy: What works and what are scams?

Posted by bigjohnscho @bigjohnscho, May 2, 2024

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.
What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

Interested in more discussions like this? Go to the Neuropathy Support Group.

John, Volunteer Mentor | @johnbishop | Jan 25 6:25pm

In reply to @mtn9pr "Can someone tell me if nerve forte helps with neuropathy" + (show)

Another member asked the same question about Nerve Forte in the Neuropathy: What works and what are scams discussion here. Here's a link and information that I shared - https://connect.mayoclinic.org/comment/1177721/

bruizersmom | @bruizersmom | Jan 26 12:05am

Scams??? I got taken for 10 grand because I didn't research the Doctor. Oh, yeah, he was sort of a doctor (I learned too late): a chiropracter.
Don't sign a contract.
PAy upfront?? It's a SCAM.
Did anyone mention amputation in your near future unless you did/bought/tried xyz?? Go see a podiatrist before you get into something new

I did all the wrong things, because I was desperate.
If you're desperate, you're gonna find yojurself with a low checking balance soon, but no cure. Like me.

Leonard | @jakedduck1 | Jan 26 1:17am

@bruizersmom
I watched a video by a doctor (supposedly) and even if he was a legitimate doctor doesn't mean that he's not out to take advantage of you.
He was talking a lot about possible amputation which to me was a scare tactic praying on desperate people.
I have had neuropathy for 40 years or more. Lack of blood flow, gangrene, and possible amputation, and other potential complications have crossed my mind, but it's not something I worry about. I ignore all commercials & infomercials and the like. I have just delt with the pain and currently only numbness without any treatments. I don't have confidence they work. If they did I think there would be a flood of positive results instead of so many people asking how to relieve neuropathy symptoms.
Take care,
Jake

eeriwa | @eeriwa | Jan 26 3:21am

interested in neuropathy support group

haj | @haj | Jan 26 6:36am

In reply to @jakedduck1 "@kgitti Has Topamax and gabapentin affeted your vision? Jake" + (show)

Jake taken it for about a month Gabapentin my left eye acts up with vision blurry. Don’t know why

haj | @haj | Jan 26 6:39am

In reply to @peg8842 "I was having really sharp pain in my feet at night for about 2 years, then..." + (show)

Hi Peg the cream works with know skin problems, itchy burning feelings.

John, Volunteer Mentor | @johnbishop | Jan 26 6:50am

In reply to @eeriwa "interested in neuropathy support group" + (show)

Welcome @eeriwa, Here's a list of discussions currently in the Neuropathy Support Group - https://connect.mayoclinic.org/group/neuropathy/.

What type of neuropathy and symptoms do you have?

kidnurse1 | @kidnurse1 | Jan 26 7:12am

In reply to @johnbishop "Welcome @eeriwa, Here's a list of discussions currently in the Neuropathy Support Group - https://connect.mayoclinic.org/group/neuropathy/. What..." + (show)

Pudendal pain

John, Volunteer Mentor | @johnbishop | Jan 26 7:50am

In reply to @kidnurse1 "Pudendal pain" + (show)

Welcome @kidnurse1, Here's what a quick search of Connect found for pudendal pain - https://connect.mayoclinic.org/search/discussions/?search=pudendal%20pain. Has your doctor provided any suggestions to help with the pain?

marthadean | @marthadean | Jan 26 9:08am

In reply to @mtn9pr "Can someone tell me if nerve forte helps with neuropathy" + (show)

According to their website the among the main ingredients are pyridoxine and niacinamide both of which are known to cause pain for peripheral neuropathy