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Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Posted by Terri Martin, Volunteer Mentor @windwalker, Apr 27, 2018

Anyone want to talk about Raynaud's Syndrome? My daughter has a severe case of it. I would like to start a support group here on Connect to find others, share our stories, treatments and managing daily life.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

gently | @gently | 2 days ago
In reply to @bruizersmom "Working outdoors in Northern California sounds like you need to go to a specialty store for..." + (show)
@bruizersmom

Working outdoors in Northern California sounds like you need to go to a specialty store for Antartica gear to save your toes from frostbite!!!!
ps I take Magnesium. And my feet still have purple toes. And my vascular specialist told me I have excellant circulation. And I really, truly have Raynaud's.

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bruizersmom, do you know if your Raynaud's is primary or secondary?

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bruizersmom | @bruizersmom | 2 days ago
In reply to @gently "bruizersmom, do you know if your Raynaud's is primary or secondary?" + (show)
@gently

bruizersmom, do you know if your Raynaud's is primary or secondary?

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I don't even know the term. I was diagnosed after a teensie bit of frostbite...does that mean anything??

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rosemargaret | @rosemargaret | 1 day ago

My granddaughter suffers terribly from Raynauds. However a couple of weeks ago she had a reverse symptom. Her fingertips became red and swollen and hot to the touch. She was treated with steroids and antibiotics. Is this the same thing or what could it have been?

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barbfe | @barbfe | 1 day ago

I've had it for 30 years, it's worse in the winter with the cold weather as well as picking up ice cubes. I take beet root powder daily to increase my circulations, and I use a ball that I squeeze to keep the circulation moving. It's really helped me.

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kelvinthomas | @kelvinthomas | 1 day ago
In reply to @mireckij "Please protect your fingers. Amazon sells heated gloves for Reynaud's syndrome. When you see red, then..." + (show)
@mireckij

Please protect your fingers. Amazon sells heated gloves for Reynaud's syndrome. When you see red, then white, then blue, it means that blood flow is being restricted to your capillaries. It can be painful when your hands warm up again.

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Hi mireckij
I've had Reynaud's for 60's years. My fingers turn Red, Blue,Green. I used to hunt and fish a lot in the Northern States including Canada (born in Quebec). When fingers get Blue or Green I can do very little. Never use hot water to warm fingers. Thank's for tip on heated gloves from Amazon.
Kevin

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