Looking for a decent portable nebulizer
So many of these look the same with a different name and fizz out in short order. I’m taking a long trip soon and need one for those times you are not in your room. Suggestions?
Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.
Sue-
Just came across your "I will be travelling to Europe" .
I will be interested in hearing all you will be doing and all you were able to do for yourself in view of what you will need to do for your BE, etc.
Will it be air, cruise, land etc? Have you ventured on a trip like this planned summer trip since the BE diagnosis?
I just renewed my global entry and passport in the last couple of months and want to put them to use in the near future. I'm becoming less frightened and more on the braver scale side about this whole BE/MAC and living life. Finding the right/best travel nebulizer/compressor plays a big role. It appears you have tried several in your years of dealing with nebulizing/compressors.
With a great big thanks for my better attitude and feeling of what we can do with having BE/MAC due to your posts and all other individual's posts on the site. THANKS.
Barbara
Hello, I will be traveling to Africa/Tanzania is a few weeks. I use an Aerobika with an AeroEclipse . I recently purchased a Pari Trek S Combo pack with the battery pack. I am a bit concerned with being able to effectively clean the Aerobika and the AeroEclipse. Has anyone used a spray disinfectant that is made for CPAP masks? Would this provide enough disinfectant? Anyone have any other ideas to disinfect?
Thanks for the help.
Julie
Disposable neb cups come to mind for your travel. Try them ahead of time to see if they might be a possible solution for you. That way you'll eliminate sterilization of neb cups altogether. For the Aerobika, consider breathing out only through it rather than in and out. Still mouthpiece would need some cleaning. And/or research and practice new airway clearance techniques that eliminate Aerobika. Although I use Aerobika from time to time the majority of the time I use the autogenic drainage app with a plastic tube in my mouth followed by active cycle of breathing. The Dr. McShane Airway Clearance video demonstrates this. I think.
Thank you so much for the suggestions. I was only diagnosed with Bronchiectasis a few months ago, so I am still learning how to live with it and still live the life I want. I will certainly watch the video because any help with airway clearance techniques is very much appreciated.
Julie
Julienneh. A good portable nebulizer is Pari TrackS. It’s small and you can use an adapter to plug it into 220 volts( European). I don’t know about Africa. If you purchase it with a battery you can charge it and use it while traveling. Enjoy you trip and stay healthy.
julienneh Are you getting up a lot of secretions with clearance? I ask because I don’t. I neb at home to keep things moving and stay healthy. My bronchiectasis is mild. My pulmonologist ok’d me using albuterol via inhaler when I travel. Less to clean.
I took my first trip abroad in the fall. I took a collapsible silicone bowl and an immersion heater-the latter worked fine at home, but lasted 1 use on trip. Our hotels usually had hot pots for boiling and I used those when available. Our last and nicest did not have hot pots and I asked kitchen for boiling water in a stainless thermos just used for that. .
Do you have any recommendations for disposable neb cups (brand)? I’m looking at them now and there are a few brands out there and I want to make sure i get something that is compatible with my Pari Trek.
Thanks,
Some people like to take a back up compressor just in case theirs breaks down when they’re away. It happens. I have a Pari Trek with battery (2 years old) and buying another Pari Trek compressor (without battery) just in case I need it. The battery is almost as heavy as the compressor so I don’t want two batteries. Plus I’m going to Europe so will be able to plug it in if the battery dies (2 year warranty on the compressor but 6 month warranty on the battery)
You'll need to check around and try disposable cups ahead of time to see what works. I found the tubing that came with the disposables was too small for the Trek so I used a wider diameter tubing (Pari wing tip). Also, it depends on the quantity of what you're nebulizing. There are a few variables to consider. Be prepared that you will likely spend more time nebulizing than with your larger compressor at home. It's a trade off.
If it were I, I would also pack reusable nebulizers with a Drizzle pot (Amazon) for boiling (ramen pot) and a container to soak the stuff in prior to boiling. I tend to be over prepared when I travel. It all really depends on your disease condition and how often you need to nebulize.
Disposable nebs
https://www.directhomemedical.com/vixone-disposable-nebulizer-devilbiss-3655d-621.html
https://www.directhomemedical.com/8900-7-foot-disposable-jet-nebulizer-salter.html
The ultimate travel nebulizer, IMO, is the eFlow. very pricey. It occasionally goes 25% off. Needs to be boiled or baby bottle sterilizer.
https://nebology.com/products/pari-erapid-nebulizer-system-with-eflow-technology?_pos=1&_sid=300a52d2b&_ss=r
Albuterol does not help me (they used it during pulmonary function tests and no difference).
I use a 3% saline connected to my Aerobika, so I breathe in the saline hold for 3, then breathe out through the aerobika and generally cough up a lot of secretions, twice a day. I also use Dulear inhaler twice a day.
I found a CPAP disinfectant spray that I am going to ask my pulmonologist about. If I can't get very hot water in Africa, I hope this spray will work.
I have also thought of asking the kitchen for boiling water and I am bring a small thermos for that as well.