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Does anyone else have MGUS?

Posted by mjlandin @mjlandin, Jun 4, 2022

I was diagnosed with MGUS last October and although I've done a lot of research, I feel there's still so much I don't know. Does anyone else have MGUS?

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Mentor
Patty, Volunteer Mentor | @pmm | 21 hours ago
In reply to @greenlantern "Yes, blood tests for the usual markers... immunoglobulins A, M, -- the alphabet. No, trends, but..." + (show)
@greenlantern

Yes, blood tests for the usual markers... immunoglobulins A, M, -- the alphabet. No, trends, but I've had Myasthenia Gravis for 22 years, so that is the king of comorbidities.

If you haven't heard of MG, I explain it like this: if i see a curb while walking, my brain says to my nerves "send a message to your legs to step up" -- but my legs say "never got the message". So, I stumble.

Damn acetylcholine receptors. I'm not drunk, I'm just uncoordinated.

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@greenlantern Best description of MG I’ve ever heard. Thanks!

REPLY
harley22 | @harley22 | 19 hours ago
In reply to @4kleo "I do not have my senior gravis. I have M GUS. But I have extreme pain..." + (show)
@4kleo

I do not have my senior gravis. I have M GUS. But I have extreme pain in my hands, nerve pain, and now it’s in my feet and I am Woopsie, which is just a cute word for not steady on my feet. I’m 76 and I have been active all of my life and this has totally thrown me a curve. I just don’t know what can be done for the pain, neuropathy, unbalance. I just don’t know what to do. ? I do pray a lot.

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I’m same as you.
Very frustrating,isn’t it?

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