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Does anyone else have MGUS?

Posted by mjlandin @mjlandin, Jun 4, 2022

I was diagnosed with MGUS last October and although I've done a lot of research, I feel there's still so much I don't know. Does anyone else have MGUS?

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Mentor
Patty, Volunteer Mentor | @pmm | 5 hours ago
In reply to @dcuste "Knowing that you had a positive result is real encouraging. I have a real trouble following..." + (show)
@dcuste

Knowing that you had a positive result is real encouraging. I have a real trouble following the watchful waiting program.
My M-protein and IgM values have been doubling every 6 months and I went through the same reaction as you and also decided to give Curcumin a try. My oncologist had the same reaction as yours. I interpreted her reaction as she was just a going by the book type person and would never encourage deviation from the standard protocol most likely due to liability concerns. Can't really blame her for that.
I had read about an ongoing trial that was using 8 grams/day but couldn't find out any other specifics. So for the last few months I slowly ramped up using the C3 complex formula. I'm currently up to about 6 grams/day of 95% curcuminoids per day.
Can you tell me more details about your situation regarding blood tests results and curcumin/turmeric protocol?

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@dcuste
I think there's a lot of interest in this. Leslie and I were just discussing it so I won't be repetitious, but I would add that I think given what some of the others are taking, my curcumin dose is fairly modest. I've had two rounds of blood analysis since I started. I hope the numbers continue to go down. If I plateau I might consider upping the dosage if my docs are on board.
I have another round of bloodwork and scans in May and we'll see how it goes.

REPLY
2121 | @leslie2121 | 4 hours ago

I have been taking 1-2 grams lately. Doesn’t seem to have any downsides so I am going to keep taking that amount. My doctor kind of shrugged too.
I have read those studies too which are promising but not conclusive. And some people seem to respond more than others. Time will tell.

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