1. < Blood Cancers & Disorders

Does anyone else have MGUS?

Posted by mjlandin @mjlandin, Jun 4, 2022

I was diagnosed with MGUS last October and although I've done a lot of research, I feel there's still so much I don't know. Does anyone else have MGUS?

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karishmagupta | @karishmagupta | 3 days ago
In reply to @colleenyoung "@karishmagupta, going through the diagnostic process is hard, especially the waiting. It sounds like you have..." + (show)
@colleenyoung

@karishmagupta, going through the diagnostic process is hard, especially the waiting. It sounds like you have received the results of your mother's bone marrow biopsy before meeting her medical team to discuss the results and next steps. Fellow patients can't interpret these results for you on a forum like this one.

Biopsy results are only one piece of the puzzle in the diagnostic process. Your mother's medical team is the only one who can interpret the results along with her medical history, other studies and clinical exam.

I know you are worried. When does your mom have an appointment to review the results and next steps with her doctor?

When is your next appointment?

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Can anybody please explain these biopsy reports .I shall be highly grateful to you

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karishmagupta | @karishmagupta | 3 days ago
In reply to @karishmagupta "She will be getting her appointment till Friday 3rd January.I got this aspiration report from lab..." + (show)
@karishmagupta

She will be getting her appointment till Friday 3rd January.I got this aspiration report from lab today only but the biopsy report will be coming on Friday ..i am not able get the meaning of these ones .So was a bit worried .I asked here with the hope that if someone gives me some clarity and I can have a bit peaceful sleep at night ..It's ok I can understand here the consultation is more important

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Pls somebody decode my reports of biopsy for my mother ..I am completely worried kindly please let me know

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2 replies
wesleym | @wesleym | 3 days ago
In reply to @karishmagupta "Pls somebody decode my reports of biopsy for my mother ..I am completely worried kindly please..." + (show)
@karishmagupta

Pls somebody decode my reports of biopsy for my mother ..I am completely worried kindly please let me know

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Viewpoint from a patient who was diagnosed with high-risk MGUS (6-8% plasma cells in 2 BMBs, light chains 100:1 lambda:kappa, M-spike, BJ proteins in urine) about 9 months ago, teetering on edge of treat / watch closely): you DO NOT NEED anyone here to "decode" your mother's labs. You need your mother's doctor (preferably hemo/onco) to do so. This is complex stuff. The most people here can do is wish her (and you) well.

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Mentor
Ginger, Volunteer Mentor | @gingerw | 3 days ago
In reply to @karishmagupta "Pls somebody decode my reports of biopsy for my mother ..I am completely worried kindly please..." + (show)
@karishmagupta

Pls somebody decode my reports of biopsy for my mother ..I am completely worried kindly please let me know

Jump to this post

@karishmagupta We are not medical professional here. We are fellow patents and caregivers who share our experiences and offer support to others going through the same thing.

Please take to your mother's doctors for them to tell you what the biopsy results indicate. They are your best source for information for your mother's individual case.
Ginger

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donna195 | @donna195 | 8 hours ago

I was diagnosed with MGUS IgG lambda in June 2023. My abnormal protein band 1 was 1.6 g/dl , was 1.6 in December 2023 and in December 2024 it has increased to 2.0 g/dl. I am a 59 year old female. I have a weakened immune system, Factor V Leiden (genetic clotting disorder) and recently had surgery to repair gluteal tendons after a bone in my femur splintered from my greater trochanter taking my tendons with it.

I am concerned about the increase in my monoclonal values and return to hem/onc in April for retesting and scheduling bone marrow biopsy and CT body scan. I have 4 grandchildren and amazing family but I do not share my concerns because I do not want them to see me as anything less than a vibrant healthy human being. How do you stay positive. I meditate, walk, paint but I am always thinking about how i can get rid of this.

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