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Neuropathy: What works and what are scams?
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.
What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
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Had two stents put in me two months ago on left leg. Now my right leg numb all the time . Going no where with this neuropathy. Pills and garbage never had this problem before. I’m lucky I get two hours of sleep a night.
Is there anything that works for peripheral neuropathy?
I’ve had neuropathy on my hands, feet and legs. I’m thinking of trying the scrambler treatment. Has anyone tried this? It’s supposed to scramble pain signals and get rid of pain or decrease it.
Welcome @extet, While there is no real cure for neuropathy there are many available treatments that offer some level of relief. It can be a confusing journey trying to find what helps each of us and there are a lot of members on Connect that have shared what has helped them. I shared my neuropathy journey in another discussion along with other members here - Member Neuropathy Journey Stories: What's Yours? - https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/.
There are also many other discussions and member comments on what has helped. Here's a link to the list of discussions and comments - https://connect.mayoclinic.org/search/?search=neuropathy+what+helps.
The Foundation for Peripheral Neuropathy has a pretty comprehensive list of treatments including complementary and alternative ones here - https://www.foundationforpn.org/treatments/.
If you don't mind sharing, how long have had neuropathy and what symptoms do you have that bother you the most?
@kgitti
Has Topamax and gabapentin affeted your vision?
Jake
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1 Reactionaccupuncture helped me with pain - it's gone. I still have numbness. For the past 8 months I have been weating barefoot shoes exclusively and for the past month or so, I have been using magnesium lotion mixed with a drizzle of castor oil on my feet (careful, it makes them slippery). I have found both helped. I still have numbness but it seems to have improved.
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1 ReactionI was having really sharp pain in my feet at night for about 2 years, then about 6 months ago the sharp pain stopped, but continued to have pain and tingling in toes, especially big toe. Diagnosed with peripheral neuropathy. I don't want to use drugs so have been trying lots of creams, etc. with no luck. But someone in this group mentioned they had success with Ananda Professional CBD Topical Salve, so I ordered it.
Just this past week had so much discomfort I couldn't sleep so rubbed on some of the salve, fell asleep shortly and slept all night which is unusual for me. Did this for 2 nights and it was successful. The salve is about $25. I want to see if the magnesium creams that people recommend work and maybe a little cheaper, but if not at least I found something for relief.
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1 ReactionWhich item was that? It’s bad companies give $ for a good review. Imho
My wife has peripheral neuropathy, and she has found that the vitamins and supplements recommended by Mayo do seem to provide some relief from her worst symptoms, but only if taken daily.
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1 ReactionI have tried everything from supplements to electric pulse, spent hundreds of dollars, nothing I have tried has helped, if anyone knows of something that will help please let me and others know
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