Burning mouth syndrome – anyone else have this?

Have you been diagnosed with Barrett’s. The PPI you are taking is suppose to be the safest PPI. I tried taking it two different times and each time had swollen ankles and feet. The sucralfate liquid helps with the burning mouth also.

The past timelines and details are getting fuzzy. I usually get an upper scope when I’m already out for a colonoscopy but have had a separate scope before. Have colonoscopies every 3-5 years due to polyp history and genetics. It has been 5.5 years for both but coming soon. I go to a GI specialist but just have my PCP order the protonix now. No Barrett’s so far. My brother had it but didn’t know till dx with stage III cancer. The cancer was only discovered because he had a massive heart attack and was put on blood thinners after heart surgery. The previously unknown esophageal tumor started hemorrhaging. Scary to know you can be so far along with no symptoms. He passed away 2 years after diagnosis.

I’m so hesitant to try new meds because I usually react. If protonix is causing any of my issues I haven’t made the connection. Sorry you weren’t able to take it. Best of luck to you.

4 of my doctors asked me if I had reflux and I said no. I was shocked to find out not only did I have reflux but it had advanced to Barrett’s esophagus. It took almost 4 weeks for reflux medications to help calm the burning mouth. In hindsight the reflux and Barrett’s esophagus were screaming symptoms at me as a burning mouth, tongue, and tooth! I hope my experience helps other doctors and patients!

I've included this discussion in the Skin Health support group. At Mayo Clinic, specialists in dermatology treat burning mouth syndrome. Depending on your needs, specialists in ear, nose and throat (ENT), dentistry, pain medicine and other areas work together as a multispecialty team to evaluate and treat this condition.

Burning mouth syndrome is the medical term for ongoing or recurring burning in the mouth without an obvious cause. You may feel this burning on your tongue, gums, lips, inside of your cheeks, roof of your mouth or large areas of your whole mouth. The feeling of burning can be severe, as if you injured your mouth with a very hot drink.

Burning mouth syndrome usually comes on suddenly, but it can develop slowly over time. Often the specific cause can't be found. Although that makes treatment more challenging, working closely with your health care team can help you reduce symptoms. Read more here: https://www.mayoclinic.org/diseases-conditions/burning-mouth-syndrome/symptoms-causes/syc-20350911

Here is a list of discussions in the Skin Health group related to burning mouth syndrome:
https://connect.mayoclinic.org/search/discussions/?search=Burning%20mouth

It sounds like what I experience with food allergies.

YES! Suffered almost 3.5 years. Took hydrocone-act, pregabalin, baclofen and other meds. The burning mouth and tongue really made me feel bad! Finally I went to emergency room and that lady had my burning stopped quickly and suggested I get scope of esophagus. No one thought it would help. I have silent reflux with Barrett’s. Taking sucralfate 20 mg 1 hr before meals and bedtime and ppi. First tried pantapazole then switched to prilosec, then switched to nexium each were taken at 40 mg twice daily. Took two weeks for me to notice the sucralfate seemed to help the burning a little at night. Took a good 30 days and I was getting lots of relief from the burning. 45 days after starting these medications I was able to stop the pain pills and pregabalin. It’s truly wonderful and has been almost 4 months. Sometimes during day when burning would come thru I also took a Pepcid complete but no more than 2 a day. You can try the pepsid complete to see if it helps your burning as it OTC. Just know that it might take 30 days to make a difference in the burning. PPI’s are OTC too. You can discuss with your Dr. My acid reflux was silent I had no idea I had it. I don’t smoke and don’t drink. I don’t eat big meals. I stay away from spicy food, fried foods and fatty foods and no pop or sports drinks now. I only drink water heated up. Remember if you are going to try acid reducers it’s not instant relief. Your Dr will have to write a prescription for sucralfate liquid. I tried many things…replace new crowns, tested for allergy and tested positive so replace crowns. Had a root canal and then I had a tooth pulled. My tooth would burn when my tongue touched it. Good luck!

I solved my burning mouth and tongue. Silent reflux and Barrett’s. Ppi’s, sucralfate liquid and pepsid complete stopped my burning but took a good 30 days to start seeing results. I feel so much better.

Too early to tell how my Barrett’s is looking like as only been treating 4 months. Getting the reflux under control and the burning mouth stopped is first step. I am taking folate for the Barrett’s. Hopefully when I have my next scope Barrett’s looks better but Barrett’s might take other treatments to eliminate.

Ask your Dr about trying sucralfate liquid 10 ml 4 times a day that includes before bedtime, and take a ppi like Prilosec or others 40 mg twice daily and pepsid complete twice daily when burn comes out. Take for at least 30 days before u get beginning results…..keep hanging in there. I had several medical specialists and 3 dentists plus allergist trying to help me past 3 plus years. I was asked several times if I had reflux and always said “no”. So surprised to have silent reflux with Barrett’s. It was a Dr. at emergency room who had my burning stopped quickly and recommended treatment for acid and a scope of esophagus. I do hope this works for others. Burning mouth is miserable.

The biggest thing is when the burning stops my body is so relaxed which is wonderful.