Why Camzyos instead of surgery?

I understand where you are coming
After alot of back on CAMZYOS my Cardiologist will not
Commit to the drug or surgery
I will go to Mayo Clinic for their review

I was diagnosed with HCM
Because of the distance i live from Mayo 400+ miles it was suggested myectomy would be a better option.
They pit me on camzyos to get me to feeling better, 122mmHg gradient on stress test.
After 4 weeks on camzyos im riding my mountain bike 10+ miles 70% improvement on gradient!
Alcohol ablasion was not recommended because of my active life style! If i was in my 70’s it would be a great way to go!
Good luck with your decisions and treatment

It has been a very frustrating period for sure
Im now 4 weeks into camzyos and riding my mountain bike 10+miles

You must feel amazing. Glad it’s working for you.

Please do not let distance be a factor in going to Mayo. People travel to there from all around the world, participants in this blog included. Rochester MN is a 2-3 day drive from home, was important to be there.

The myectomy will be performed at Rochester.
The dr and i talked about my lifestyle, 56 yr old active out doors person.
I feel the back and fourth to the mayo every month for the first few months then every qtr then twice a year for the rest of my life will be a burden, if I do myectomy no medication and no more visits for imaging.
Thanks for the encouragement

For those of you who are doing so well on Camzyos - are you willing to share more about how you are paying for it? I know Bristol-Myers helps for people at certain income levels and supplemental insurance is probably paying some of it afer pre-authorizations - but I can't seem to uncover what the average out-of-pocket cost is typically. Any thoughts or information is welcome!

I am so glad you will be going to Mayo, a COE! I was there 2.5 years ago at age 75 for the same surgery. Now, is it possible that you can find a HCM-HOCM cardiologist near you? Mine sent all test results ahead of time and the only time I was at Mayo was for preliminary tests and interviews and the surgery. I was home a week later back under my home cardiologist's care, never went back to Mayo for any follow ups. Another thing, please talk to your doctor about the possible different new adjustments that may be necessary post operation, I had two as well as blood pressure meds. Your active lifestyle will serve you well in recovery (mine did). Best wishes for a speedy and successful recovery.

I have had two prescriptions of Camzyos The first was zero out-of-pocket that was in December where I had met my maximum out-of-pocket on insurance and then the new refill in January cost me $10 camzyos or bristol myers gives you a co-pay card that helps offset some of those cost. I know the Mayo Clinic had told me if I did not like the cost to reach out to them and they would help me find other ways to offset that cost best of luck to you.

Thank you - that is very helpful. I'm surprised that the cap or "maximum out-of-pocket" applied since Camzyos isn't covered at all by medicare. I didn't realize that Tier 5 uncovered meds could be capped - oh well - easy to get confused. Your situation sounds great and is a relief to know that this can happen. I hope you continue to do well on the Camzyos.