Taylor, type into search engine, "benefits of N-Acetyle Choline." I found it by accident about 2 weeks ago in a pill to support the liver. There is 800 mg in this liver pill, and this is a supplement. It stopped my internal tremors on the first day I took the pill. I had a few that night in bed, but now they are gone. I have awakened in the morning while laying in bed and get a light one while watching the news, but I have to concentrate to see if there are any because my bed is no longer vibrating. They are gone and look at the benefits of this natural supplement.
I need to do an edit to my own post. It is N-Acetyl Cysteine or (NAC) that one has to put into search engine to learn the benefits of this one little capsule that stopped my tremors.
Babby, Have you ever tried the
N-Acetyl Cysteine (NAC)? This stuff is in a liver support pill that I take and is all natural and stopped my tremors day one. My tremors are not as extreme as yours, but I was waking up thinking my bed was vibrating and kept covering my little dog up, thinking he was shivering. Vet visit brought it to my attention nothing wrong with Cubby, and I was not believing this could be me vibrating my bed and I didn't know it. It sounds like even if you could get some relief it would be good. I do not have any external shaking. I was all internal. NAC can be purchased at health food stores and the liver support pill I take has 800 mg in each pill. I am supposed to take 2 a day but I only take one as they tend to constipate me so I stick with one in the morning. I have no tremors all day, and most nights. Some mornings when I first wake up I still have slight tremors, but nothing vibrating the bed and if I could take the 2nd pill in the evening I have no doubt mine would be gone.
Babby, I have to do an edit to my own post it is N-Acetyl Cysteine or NAC that one has to put into search engine to learn the benefits of this one little all natural supplement that stopped my tremors. It is sold on its own in health food stores. The capsule I get to support my liver is made in the USA and 800 mg. of NAC in each capsule. When I look online for purchasing NAC alone it comes in 1,000 mg capsules.
I have had familial essential tremor for years. My mother and two aunts had it. Two of my cousins have it. It is becoming worse as I age, and I had a neurological visit about a month ago to rule out any other conditions. He offered a couple of medication options which I declined at this time. I can revisit those options later if it becomes totally unmanageable.
The main times that I experience it is when I am task focused such as writing, putting on makeup, fastening jewelry, or at times my voice shakes when I speak for long periods of time. It is mostly my head and hands that shake, although at times it feels like I am shaking internally. It can be very frustrating and aggravating, but it is not terminal so I just deal with it.
I can relate; I was diagnosed with familial essential tremor in August 2024. I am 53, and I get internal shaking, and my hands shake after certain types of movement, especially after mowing the lawn or any yard work. So far, I have been lucky with typing and writing; there are few issues there yet. The neurologist joked and said see you in ten years. At this time, I am not ready for medication and any side effects. I am hoping there will be better ones in ten year. I am seeing a relationship between anxiety and ET, and for me, anxiety does make it worse. I was told to avoid caffeine, alcohol, and stress (how do you do that!). Question: has anyone had issues with waking up shaky? Usually, movement triggers it for me, but the first thing I get when I wake up is feeling shaky. I read that low blood sugar can make it worse. Has anyone looked into nutrition for this condition? I will try having my cranberry juice first thing and see if that helps. I drink it to anyone, but maybe drinking it right away will help with that.
May you find something that helps without any side effects. I like very gentle seated yoga. It helps the shaking some. T’ai Chi is gentle by nature, and it also helps some. Both may help with pain. Both help me some with shaking and pain. Every Tylenol I don’t have to take feels like winning a battle.
I do chair exercises and stretch as much as possible...
Your right about treatments. It's crazy how many things a person can deal
with , with no pain relief. I don't take anything , but Tylenol when it's
a high level.. it helps just a bit to handle it..
Tylenol does nothing for me. I refuse other pain meds except ibuprofen and then only as really needed. I have chronic kidney disease as well as all my other issues. It will make the kidneys worse if to often taking them.
May you find something that helps without any side effects. I like very gentle seated yoga. It helps the shaking some. T’ai Chi is gentle by nature, and it also helps some. Both may help with pain. Both help me some with shaking and pain. Every Tylenol I don’t have to take feels like winning a battle.
kittysweetc,
I just wanted to let you know there is an error in what I wrote. It is N-Acetyl Cysteine (NAC), not choline!! I had to start taking half or 400 mg of what I was taking in my Liverwell. I cut the pill in half and have to put 1/2 in empty capsules to take, but the 800 mg dries me out too much. I have small amounts of tremors that are neglible yet to this day, but they completely quit when I was able to take the whole pill. I went for over a month taking none and they didn't come back during that entire time. I started taking half and it took about another month before I started feeling slight tremors, but they are not anything like I was having. I am going to try to take 1 whole pill 3 days a week and see if that works better for me, but I wanted to let you know there was an error in that post.
I can relate; I was diagnosed with familial essential tremor in August 2024. I am 53, and I get internal shaking, and my hands shake after certain types of movement, especially after mowing the lawn or any yard work. So far, I have been lucky with typing and writing; there are few issues there yet. The neurologist joked and said see you in ten years. At this time, I am not ready for medication and any side effects. I am hoping there will be better ones in ten year. I am seeing a relationship between anxiety and ET, and for me, anxiety does make it worse. I was told to avoid caffeine, alcohol, and stress (how do you do that!). Question: has anyone had issues with waking up shaky? Usually, movement triggers it for me, but the first thing I get when I wake up is feeling shaky. I read that low blood sugar can make it worse. Has anyone looked into nutrition for this condition? I will try having my cranberry juice first thing and see if that helps. I drink it to anyone, but maybe drinking it right away will help with that.
@mclaughlinkaren,
I have posted here before trying to reach out to others to what I found by accident when I woke up every morning and in the middle of the night thinking it was my little dog shivering, when it was me feeling like I was in a vibrating bed. During this time a dull pain in my right side reappeared that had been there years earlier, so I ordered the pill I took years ago for that swelling in my liver, and it's called Liverwell. It has 800 mg of NAC (N-Acetyl-Cysteine) in it for the main ingredient. My research found that this was once a prescription and was used for treating Parkinson's, infections and a slew of other things. First pill I took I noticed the tremors had stopped. I got up the next morning and woke to only slight tremors that could barely be felt. I get up and fix cocoa every morning and take my supplements while it is heating. I took my Liverwell at the same time, and in 3 days those tremors were 100% gone. The Liverwell was drying out my nose and making me have a sore throat in the morning so I cut it in half and got extra empty capsules to put over the other half. Still working, but I do feel slight tremors in the morning when waking up some mornings. Not always, and I have connected it to the days I don't drink enough water. I plan to try to go back to 1 whole pill 3 days a week, but these things were great for stopping the tremors. Look up NAC there is a scope of information on it and the FDA just allowed it's use in supplements in 2022, because there are few side effects. It only has a few things in it and all are supplements. Cubby is happy too, because Mom isn't getting up and covering him up several times a night anymore either!!!!
I tried getting it cheaper with just 500 mg of plain NAC in it, but it gives me a whopping headache without the other ingredients in the Liverwell, so I stuck with those, and half doesn't dry out my eyes, nose and throat.
I have experienced essential trimmer, or as I have known it, Familia Nirvosa, for as long as I can remember, from very early kiddom to an elderly 76 year-old male.
To my knowledge, there is no fix. I have no interest in medicating it away. There are times when, through a relaxation technique, that I am able to quiet it down.
I do not find that the essential tremors affect my sleep. I also have restless leg syndrome which is another diagnosis that may or may not be related to my essential tremors. I have had RLS since I was a child, way before I even knew what it is called. It is also an internal phenomena that is difficult to describe unless you have ever had it. RLS creates an intense urge to move my legs to find comfort. I do not have it every night, but it seems to come in waves. I may have it for a week straight before it subsides until the next episode. It mainly happens at night, although I also have it sometimes when I sit in a meeting, or church, or standing in line at the grocery store. I find that leg exercises sometimes helps with that.
Our bodies are complicated pieces of equipment. Sometimes I have to give up on trying to find out why I am experiencing certain challenges, and just go straight for learning to cope with diet, exercise, or medication as a last resort. At this time, I am not on any medication for my essential tremors or my RLS.
Just as a side note, my 45 year old son also has RLS. His is even worse than mine, and he frequently has difficulty sleeping.
I have ET, also and it is only in my hands. I was prescribed Propranolol and it has greatly decreased my tremors. My dosage was increased to 40mg in the am and 20mg in the pm and it has almost stopped them. I'll keep you posted on whether I have continued success. It has been 6 months since the increase.
I need to do an edit to my own post. It is N-Acetyl Cysteine or (NAC) that one has to put into search engine to learn the benefits of this one little capsule that stopped my tremors.
Babby, I have to do an edit to my own post it is N-Acetyl Cysteine or NAC that one has to put into search engine to learn the benefits of this one little all natural supplement that stopped my tremors. It is sold on its own in health food stores. The capsule I get to support my liver is made in the USA and 800 mg. of NAC in each capsule. When I look online for purchasing NAC alone it comes in 1,000 mg capsules.
I can relate; I was diagnosed with familial essential tremor in August 2024. I am 53, and I get internal shaking, and my hands shake after certain types of movement, especially after mowing the lawn or any yard work. So far, I have been lucky with typing and writing; there are few issues there yet. The neurologist joked and said see you in ten years. At this time, I am not ready for medication and any side effects. I am hoping there will be better ones in ten year. I am seeing a relationship between anxiety and ET, and for me, anxiety does make it worse. I was told to avoid caffeine, alcohol, and stress (how do you do that!). Question: has anyone had issues with waking up shaky? Usually, movement triggers it for me, but the first thing I get when I wake up is feeling shaky. I read that low blood sugar can make it worse. Has anyone looked into nutrition for this condition? I will try having my cranberry juice first thing and see if that helps. I drink it to anyone, but maybe drinking it right away will help with that.
May you find something that helps without any side effects. I like very gentle seated yoga. It helps the shaking some. T’ai Chi is gentle by nature, and it also helps some. Both may help with pain. Both help me some with shaking and pain. Every Tylenol I don’t have to take feels like winning a battle.
Tylenol does nothing for me. I refuse other pain meds except ibuprofen and then only as really needed. I have chronic kidney disease as well as all my other issues. It will make the kidneys worse if to often taking them.
kittysweetc,
I just wanted to let you know there is an error in what I wrote. It is N-Acetyl Cysteine (NAC), not choline!! I had to start taking half or 400 mg of what I was taking in my Liverwell. I cut the pill in half and have to put 1/2 in empty capsules to take, but the 800 mg dries me out too much. I have small amounts of tremors that are neglible yet to this day, but they completely quit when I was able to take the whole pill. I went for over a month taking none and they didn't come back during that entire time. I started taking half and it took about another month before I started feeling slight tremors, but they are not anything like I was having. I am going to try to take 1 whole pill 3 days a week and see if that works better for me, but I wanted to let you know there was an error in that post.
@mclaughlinkaren,
I have posted here before trying to reach out to others to what I found by accident when I woke up every morning and in the middle of the night thinking it was my little dog shivering, when it was me feeling like I was in a vibrating bed. During this time a dull pain in my right side reappeared that had been there years earlier, so I ordered the pill I took years ago for that swelling in my liver, and it's called Liverwell. It has 800 mg of NAC (N-Acetyl-Cysteine) in it for the main ingredient. My research found that this was once a prescription and was used for treating Parkinson's, infections and a slew of other things. First pill I took I noticed the tremors had stopped. I got up the next morning and woke to only slight tremors that could barely be felt. I get up and fix cocoa every morning and take my supplements while it is heating. I took my Liverwell at the same time, and in 3 days those tremors were 100% gone. The Liverwell was drying out my nose and making me have a sore throat in the morning so I cut it in half and got extra empty capsules to put over the other half. Still working, but I do feel slight tremors in the morning when waking up some mornings. Not always, and I have connected it to the days I don't drink enough water. I plan to try to go back to 1 whole pill 3 days a week, but these things were great for stopping the tremors. Look up NAC there is a scope of information on it and the FDA just allowed it's use in supplements in 2022, because there are few side effects. It only has a few things in it and all are supplements. Cubby is happy too, because Mom isn't getting up and covering him up several times a night anymore either!!!!
I tried getting it cheaper with just 500 mg of plain NAC in it, but it gives me a whopping headache without the other ingredients in the Liverwell, so I stuck with those, and half doesn't dry out my eyes, nose and throat.
I have experienced essential trimmer, or as I have known it, Familia Nirvosa, for as long as I can remember, from very early kiddom to an elderly 76 year-old male.
To my knowledge, there is no fix. I have no interest in medicating it away. There are times when, through a relaxation technique, that I am able to quiet it down.
When it. Is a problem to me I take a 400 mg tablet of FolieAcid. I find that it works right away
I have ET, also and it is only in my hands. I was prescribed Propranolol and it has greatly decreased my tremors. My dosage was increased to 40mg in the am and 20mg in the pm and it has almost stopped them. I'll keep you posted on whether I have continued success. It has been 6 months since the increase.