The research of MAC continues

Posted by BlueSplashGirl/ Carolyn @bluesplashgirl, Jan 4 11:51am

https://pmc.ncbi.nlm.nih.gov/articles/PMC7862709/#s7

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

Sue, Volunteer Mentor | @sueinmn | Jan 12 3:37pm

In reply to @debinutah "Any idea on the timing (release date) of the 2025 guidelines? Thank you!" + (show)

Sorry to say that might require a crystal ball the 2020 guidelines came out in late Spring.
I am looking for them each week, and I'm sure others are as well.

madelinehart | @madelinehart | Feb 6 11:09am

In reply to @sueinmn "Here is my favorite new(ish) article. https://publications.ersnet.org/content/errev/33/173/240058?ctkey=shareline If you are able to wade through all the..." + (show)

Sue,
Have the new guidelines come out yet? Can you post them here or give a link to find them?

scoop | @scoop | Feb 6 1:06pm

In reply to @madelinehart "Sue, Have the new guidelines come out yet? Can you post them here or give a..." + (show)

Given that bronchiectasis and NTM often present differently in each person, I suspect it will be awhile before we see such guidelines. Until then, we practice daily airway clearance using hypertonic saline, exercise, eat nutritiously and restful sleep. Taking steps against exposure to dense sources of NTM (drinking water, GERD/reflux, showers, indoor pools, steam rooms, soil etc) makes sense too. And we need to keep our equipment clean and sterilized. We know a lot already about daily guidelines which we've gleaned from our specialists and each other here and other support forums.

This link has invaluable information about managing bronchiectasis and NTM.
https://connect.mayoclinic.org/discussion/resources-for-the-abcs-on-bronchiectasis-and-mac-ntm/
Is there something specific you wonder about? Perhaps about treating NTM with the big 3?

Kristi H. | @ldylouis | Feb 6 1:55pm

In reply to @scoop "Given that bronchiectasis and NTM often present differently in each person, I suspect it will be..." + (show)

Hello, I've been away for a while—partly for life, money, and trying to get back to work. I do have a question on ways to be exposed to get MAC. I ask because I spent 1 and 1/2 years in a classroom infested with circuits. It was so bad that when they finally came in to clean, all the boxes of books where the circuits were nesting had to be thrown out because of the contamination. I had circuit dung all over the room on window seals and the top of all surfaces. Those are what I could see. Then, I had ants that dug holes in my classroom floor. And to top it off, the acoustic ceiling tiles were the only barrier to the outside. Above them was an open space with full sunlight from under the eaves. I have pictures if that would be clearer.

I am asking because I believe this is where I became infected. It was the right amount of time, and the environment fits how most of us get exposed. I don't do any gardening and live in the desert. If I can get a doctor to agree, I can get some financial support. I want to return to work full-time, but I can't right now.

Sue, Volunteer Mentor | @sueinmn | Feb 6 6:02pm

In reply to @ldylouis "Hello, I've been away for a while—partly for life, money, and trying to get back to..." + (show)

I wish I could be more encouraging, but unless you have documentation of the contamination including NTM, it is unlikely you can make such a link.

Living in the desert, depending on the soil type, itself presents a risk of airborne infection by NTM and many other pathogens. And, NTM/ MAC takes a long time to settle in and show itself - mine probably took 3-4 years before I was noticeably ill, so finding the original source becomes really difficult.