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Internal shaking when drifting off or waking up from sleep
I don't even know where to start. For the past few weeks I have been feeling like I am shaking inside when I lay down to sleep. At first it was just when I lay down, and then it started more when I wake up throughout the night. I initially thought the bed was shaking or it was vertigo, but the room wasn't spinning. It was like inside of me from the torso up. This alarms me. I had blood work pulled at the ER and even had a brain scan. I had an echo a few months ago (trying to normalize blood pressure- another story). All came back well. I changed a medication recentlty for blood pressure and wonder if its that. I have tried to explain this to family and no one has ever heard of it. Last night when it happened I quickly checked my heart rate and breathing. All is fine. I don't seem to be in any pain, but it's a scary feeling. If I sit up it stops. If I shift positions it stops. It doesn't happen as soon as I lay down, but soon after. I think I am overall in good health, so I don't know what this is. I am following up with a neurologist too. But it is so hard to describe to be. Once it felt like vibrations and other times is like shaking. Not in my arms, legs or hands, just upper body and head. I am concerned.
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Hi, @jenlyn1222.
Sorry to hear that you've been diagnosed with long covid, but at least you finally know exactly what you're dealing with. It seems like long covid has so many different symptoms, and everybody doesn't experience all of the same symptoms. According to one article I saw, there are over 200 symptoms affecting all the body’s organ systems that are now associated with long covid. That makes me think sometimes that the term "long covid" has become a catchall for all of the varied and crazy symptoms covid survivors experience but the doctors have nothing else to attribute them to.
What type of specific long covid treatment (if any) has your doctor recommended for you? Or are you just being treated for each symptom?
BTW, here's the link to the aricle I mentioned above:
https://recovercovid.org/news/new-insights-long-covid-symptoms-adults-highlight-update-recover-study-findings
Hello, my first thought was the new medication you recently started. I would be very suspicious of it and if you can switch it, I would. Because good luck getting any kind of diagnosis from a doctor. It kind of sounds like anxiety....but you say it stops if you sit up or change positions. Good luck to you.
Commenting on my own earlier posting:
I visited a neurologist who tested me in office and said that I showed no neurological problems, no pathology. He said that that this could be Functional Neurological Disorder.
https://www.mayoclinic.org/diseases-conditions/conversion-disorder/symptoms-causes/syc-20355197. He described this as being somewhere between a neurological and psychiatric issue.
This sounds pretty correct to me. I don't rule out long covid as a cause, but that seems less exact. My symptoms began prior to my one recently diagnosed case of covid. However, I may have had covid in early 2020 when my house mate could have had it. There were no tests then, but a subsequent test on him for a past case of covid was positive.
I am almost clear of these symptoms now and but occasionally experience body waves when I wake from dreaming. Therapy made a huge difference, as well as time I suppose.
Don't despair. We don't know the future.
Hi Kim Richard's, I just saw your question from back in June 2024, asking how to join the Post-Covid Group.....you just go to that subject and start commenting.....hope you're doing better.
I have experienced something similar. When my body is relaxed and I’m just beginning to nod off, I sometimes get this weird tingling sensation from my torso up into my chest and shoulders. It’s actually hard to describe. I started getting it about 8 months ago intermittently. I have now developed over the last 4 months eradicate drops in my oxygen. I was put on oxygen therapy in early Dec. Been to various doctors, had 5ER visits and a 5 day hospitalization. Still no diagnosis. My O2 is now even dropping with oxygen supplementation at times. I also get very woozy. I
have almost passed out several times.(before O2 was prescribed) I have lost most of my stamina and always feel ill.
As I said doctors seem to be baffled. Have had the basic tests done such as PFT, CT scans, basic blood work, even a bubble Echocardiogram.
I am scared and think it may be getting worse
I had a major problem when the took me off atenolol cold turkey and had major withdrawal! Anxiety through the roof!
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1 ReactionAre you getting any positive results from your medical conditions?
Please keep me informed: ronaldbreit@gmail.com
I posted the following update a couple of days ago, and I'm happy to repost for you:
I visited a neurologist who tested me in office and said that I showed no neurological problems, no pathology. He said that that this could be Functional Neurological Disorder.
https://www.mayoclinic.org/diseases-conditions/conversion-disorder/symptoms-causes/syc-20355197. He described this as being somewhere between a neurological and psychiatric issue.
This sounds pretty correct to me. I don't rule out long covid as a cause, but that seems less exact. My symptoms began prior to my one recently diagnosed case of covid. However, I may have had covid in early 2020 when my house mate could have had it. There were no tests then, but a subsequent test on him for a past case of covid was positive.
I am almost clear of these symptoms now and but occasionally experience body waves when I wake from dreaming. Therapy made a huge difference, as well as time I suppose.
Don't despair. We don't know the future.