1. < Neuropathy

Neuropathy: What works and what are scams?

Posted by bigjohnscho @bigjohnscho, May 2, 2024

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.
What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

Interested in more discussions like this? Go to the Neuropathy Support Group.

sh0rtie | @sh0rtie | 1 day ago
In reply to @valyruss "https://www.rstsanexas.com/ It's a NeoGen treatment for neuropathy using electrical pulse and oscillators plus B12 injection straight..." + (show)
@valyruss

https://www.rstsanexas.com/
It's a NeoGen treatment for neuropathy using electrical pulse and oscillators plus B12 injection straight in feet...
Most ins. don't pay for it...
click on them website and find out a local providers in your area doing this treatment...
The local provider will do a thoroughly evaluation to see if you are a good candidate...
I got three month-twice/week treatment plus some other lifestyle adjustments and I'm 70% healed with my SFN.
Good thing-my local provider gave me a very good price to continue as a maintenance only for twice/month...

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I will check out their website. Thank you so much for your help.

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jalcorn | @jalcorn | 18 hours ago
In reply to @valyruss "Glad your husband feel better with special shoes and Gababentin.... Unfortunately, the relief will not last..." + (show)
@valyruss

Glad your husband feel better with special shoes and Gababentin....
Unfortunately, the relief will not last long,,,unless properly treated neuropathy becomes worse and worse till prevent people even from walking...
First thing first you have to determine what is causing this neuropathy...a neurologist and a podiatrist is a must to see...they will check nerves conduction, arteries and venous blood flow, skin biopsy for small fiber neuropathy ( SFN) etc...
I got SFN three years ago, being on Gababentin and bunch of helpful vitamins to no avail....I've got to the point when walking became difficult. Finally I ended up with this clinic doing Sanexas treatment together with B12 shots straight in my feet along with some other life style changes..Sure enough, after three month treatment twice a week I got 70% healed, off Gababentin and walking with ease....I'm continuing to do Sanexas just for maintenance twice a month...Hope this help.

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SANEXAS?

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kjharbert | @kjharbert | 11 hours ago

I have had peripheral neuropathy (non-diabetic) for over 30 years. MS was ruled out after 10 years. A Dr. prescribed a high dose of gabapentin, which has made the pain somewhat manageable. I have pain in both hands and feet. I am now researching electrical stimulation massages, like Nooro, to see if it is worth purchasing. I'm still researching this.

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kjharbert | @kjharbert | 11 hours ago

I am researching electric stimulation massage, like Nooro, that is supposed to relieve neuropathy foot pain. Has anyone tried this? I have had non-diabetic peripheral in hands and feet for over 30 years and have been on a gabapentin high dose, 3000 mg daily, for 20 years. I don't know what I'd do without it. Yet, I worry about using it forever and would love to be able to walk more than 2 miles and ride a bike. Has anyone tried Nooro, or the like?

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | 11 hours ago
In reply to @kjharbert "I am researching electric stimulation massage, like Nooro, that is supposed to relieve neuropathy foot pain...." + (show)
@kjharbert

I am researching electric stimulation massage, like Nooro, that is supposed to relieve neuropathy foot pain. Has anyone tried this? I have had non-diabetic peripheral in hands and feet for over 30 years and have been on a gabapentin high dose, 3000 mg daily, for 20 years. I don't know what I'd do without it. Yet, I worry about using it forever and would love to be able to walk more than 2 miles and ride a bike. Has anyone tried Nooro, or the like?

Jump to this post

Hello @kjharbert, Welcome to Connect. There are members who have shared their experience with the Nooro device. You might want to scan through the discussions and comments by members on Nooro. Here's a link to the discussions and comments - https://connect.mayoclinic.org/search/discussions/?search=nooro.

If you haven't already seen it, The Foundation for Peripheral Neuropathy has some helpful information for those of us with neuropathy:
-- Living Well with Neuropathy: https://www.foundationforpn.org/living-well/
-- Complementary and alternative treatments: https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf

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Berk | @gba | 8 hours ago

Anyone have success with Tamarack

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sh0rtie | @sh0rtie | 4 hours ago

@sh0rtie Gabapintin did nothing for me. I took it for two years. I have just started taking Alpha Lipoic Acid at 600mg. I think it is helping a little and sometimes I can feel sensations in my toes. I also use leg massagers - the ones you put your legs in. Mine has three different programs and I go through all three every time I use it. That seems to help also. Good luck Laura Henderson

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