Long QT

Posted by janiem07 @janiem07, Jan 8 9:20pm

I was just recently diagnosed with Long QT and will see what my cardiologist recommends to treat this at the end of this month. I am currently wearing a heart monitor for 30 days. In 2 weeks I go in for other heart tests, an echo and an ultrasound. Does anyone else have this and what is your treatment plan. Also I have SLE Lupus and I’m on a beta blocker. Thanks for any advice and or support.

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@janiem07
Yes I have been told I have long QT.

Are you seeing a EP? If not would suggest you can see one as they are specialists in electrical functions of hearts.

Seems from your post though you have a thorough cardiologist and giving you many tests to help diagnosis.
Ask your cardiologist if any of your medications could be contributing to your Long QT.

I point this out as my psychiatric medication specialist (treating my PTSD anxiety/panic disorder) wanted to put me on a anxiety medication but said it can cause a longer Q wave of some kind (I am not sure exactly which wave). She got concurrence from my HF and EP that it would not affect the function of my heart and was okay to prescribe.

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Hello @janiem07, I would like to add my welcome to Connect along with @gloaming, @jc76 and others. I thought you might also find the following discussions helpful:
-- Long QT Syndrome: Want to connect with others: https://connect.mayoclinic.org/discussion/long-qt-syndrome/
-- AI Learning to "Sniff" Out Long QT: https://connect.mayoclinic.org/blog/genetic-heart-rhythm-disorders/newsfeed-post/ai-learning-to-sniff-out-long-qt/
-- Long QT Syndrome: Mayo Clinic Radio: https://connect.mayoclinic.org/blog/genetic-heart-rhythm-disorders/newsfeed-post/long-qt-syndrome-mayo-clinic-radio/
-- Mayo Clinic Q and A: Understanding and treating long QT syndrome: https://connect.mayoclinic.org/blog/genetic-heart-rhythm-disorders/newsfeed-post/understanding-and-treating-long-qt-syndrome/

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My breast cancer med Kisqali caused prolonged QT. The dose was lowered and it stopped. I hope the solution will be something simple like that for you.

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Thank you. I hope so too. I’m glad it was figured out for you and you are better.

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@jc76

@janiem07
Yes I have been told I have long QT.

Are you seeing a EP? If not would suggest you can see one as they are specialists in electrical functions of hearts.

Seems from your post though you have a thorough cardiologist and giving you many tests to help diagnosis.
Ask your cardiologist if any of your medications could be contributing to your Long QT.

I point this out as my psychiatric medication specialist (treating my PTSD anxiety/panic disorder) wanted to put me on a anxiety medication but said it can cause a longer Q wave of some kind (I am not sure exactly which wave). She got concurrence from my HF and EP that it would not affect the function of my heart and was okay to prescribe.

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Hi. Same issue with my psychiatrist. Do you remember which medication was prescribed? I was prescribed the anti depressant Mirtazipine, and I researched it and found a possible interaction with propafenone, which I take for PSVT. Specifically, it may prolonge the QT interval causing a possible other arrhythmia.

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@doclarrea

Hi. Same issue with my psychiatrist. Do you remember which medication was prescribed? I was prescribed the anti depressant Mirtazipine, and I researched it and found a possible interaction with propafenone, which I take for PSVT. Specifically, it may prolonge the QT interval causing a possible other arrhythmia.

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@doclarrea
The medication I was prescribed is called Escitalopram. I take a 10 mg dose. I have been on it since 2015.

She (my Mayo psychiatric medication specialist) contacted my HF and EP before prescribing to make sure they approved as it could/would cause a delay in one of the Q waves.

At the time I was prescribed this I was really suffering from PTSD, anxiety/panic disorder. She also prescribed a sleep aid. I had to try several until we found trazodone that really worked and finally was able to sleep. She also had me on Xanax. I think being able to sleep without mind racing was really helpful.

Most think PTSD is military service. But it comes from any traumatic experience that affects you both mentally and physically. I did serve in Vietnam, and had the deadly force as a police officer, but what pushed me into PTSD was getting shocked 5 times in 24 hours by my ICD/Pacemaker. I spent 5 days in hospital scared to death (no pun intended there). I was released back to hometown only to go back in hospital the same day for a anxiety/panic attack.
I had never had one so had no idea what was happening.

Through some long consuling and these medications I slowly improved. I am off the sleep medications and Xanax (spell), but she said I would have to take the Escitalopram probably for life.

When on Mayo CC I really try to press the emphasis on mental health. Mental health affects your physical health and vice versa. I think a lot of medical doctors do not emphasize that enough.

I know when I was first diagnosed with PTSD I took a test. I think the highest number was 30 and I was in the high 20s.

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@jc76

@doclarrea
The medication I was prescribed is called Escitalopram. I take a 10 mg dose. I have been on it since 2015.

She (my Mayo psychiatric medication specialist) contacted my HF and EP before prescribing to make sure they approved as it could/would cause a delay in one of the Q waves.

At the time I was prescribed this I was really suffering from PTSD, anxiety/panic disorder. She also prescribed a sleep aid. I had to try several until we found trazodone that really worked and finally was able to sleep. She also had me on Xanax. I think being able to sleep without mind racing was really helpful.

Most think PTSD is military service. But it comes from any traumatic experience that affects you both mentally and physically. I did serve in Vietnam, and had the deadly force as a police officer, but what pushed me into PTSD was getting shocked 5 times in 24 hours by my ICD/Pacemaker. I spent 5 days in hospital scared to death (no pun intended there). I was released back to hometown only to go back in hospital the same day for a anxiety/panic attack.
I had never had one so had no idea what was happening.

Through some long consuling and these medications I slowly improved. I am off the sleep medications and Xanax (spell), but she said I would have to take the Escitalopram probably for life.

When on Mayo CC I really try to press the emphasis on mental health. Mental health affects your physical health and vice versa. I think a lot of medical doctors do not emphasize that enough.

I know when I was first diagnosed with PTSD I took a test. I think the highest number was 30 and I was in the high 20s.

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Thanks for your helpful comment. I also suffer PTSD and was prescribed Xanax for anxiety. I also have trouble falling asleep because of racing and intrusive thoughts. I am trying meditation, I also served in the US NAVY as a hospital Corpsman. Good luck, wish you all the best, and thank you for your service.

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@doclarrea

Thanks for your helpful comment. I also suffer PTSD and was prescribed Xanax for anxiety. I also have trouble falling asleep because of racing and intrusive thoughts. I am trying meditation, I also served in the US NAVY as a hospital Corpsman. Good luck, wish you all the best, and thank you for your service.

Jump to this post

Falling asleep can be the toughest part of the entire night. I have a very active mind, hard to shut off some nights. What I learned, with some reliability and success, was to build something in my imagination, or to run through all the steps in a process in order that they need to be performed. This type of cognition seems to lull me and I'm asleep, most often, inside of a few minutes. So, cold-firing a steam locomotive, or setting up a telescope and getting it polar aligned, or imagining I'm explaining to someone the processes going on in stellar interiors. There's a lot of knowledge in those, and some things have to take place before others. This iterative thinking can lull one into sleep.

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