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Wanting info on Biologics: What are your experiences?

Posted by staylorrn2000 @staylorrn2000, 4 days ago

Hello. I don’t tolerate maintenance inhalers which I’ve tried many. Pulmonologist wants to try me on a biologic but I’m fearful of the side effects. Would anyone want to share their experience with being on a biologic? Thanks!

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budisnothome | @budisnothome | 3 days ago
In reply to @staylorrn2000 "May I ask what air Supra inhaler is?" + (show)
@staylorrn2000

May I ask what air Supra inhaler is?

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My pulmonologist has tried a nasal spray with budesonide. It worked a small amount. Airsupra is made by AstraZeneca, same as the Fasenra. Fairly new inhaler. The Airsupra inhaler is albuterol and budesonide together. I was doing nebulizer treatments 4,5,6 times per day. Using the Airsupra in between nebs treatments, I am down to only 3 nebs per day. My body responds to the budesonide. We know some meds work for us and others do not. It works for me. If needed, I can cheat and do more of the Airsupra to buy time. Almost instant relief of not being able to breathe. AstraZeneca, thru their AZandMe program, are both free to me. My pulmonologist has now tried them for other patients. Some do get relief. Good luck. Are you near a Mayo facility? Or ask you pulmonologist about them.

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budisnothome | @budisnothome | 3 days ago

I should add, all of my labs that were very high and off the chart are now very low and well under control thanks to the Fasenra. Eosinophils and other phils are at the low end of the scale

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staylorrn2000 | @staylorrn2000 | 3 days ago
In reply to @budisnothome "My pulmonologist has tried a nasal spray with budesonide. It worked a small amount. Airsupra is..." + (show)
@budisnothome

My pulmonologist has tried a nasal spray with budesonide. It worked a small amount. Airsupra is made by AstraZeneca, same as the Fasenra. Fairly new inhaler. The Airsupra inhaler is albuterol and budesonide together. I was doing nebulizer treatments 4,5,6 times per day. Using the Airsupra in between nebs treatments, I am down to only 3 nebs per day. My body responds to the budesonide. We know some meds work for us and others do not. It works for me. If needed, I can cheat and do more of the Airsupra to buy time. Almost instant relief of not being able to breathe. AstraZeneca, thru their AZandMe program, are both free to me. My pulmonologist has now tried them for other patients. Some do get relief. Good luck. Are you near a Mayo facility? Or ask you pulmonologist about them.

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Thank you for the info.unfortunately I am a long distance from Mayo.

REPLY
budisnothome | @budisnothome | 3 days ago

Good luck. Have a fun night. Any pulmonogist can prescribe fasenra and airsupra

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