Hi, i am reaching out to anyone who has had or having major bone pain after receiving reclast. Three days after receiving my first infusion, I started having pain in my feet And ankles and it proceeded to move up through my calves, my legs and my hips and I’m trying to do some reading and how long that might last. I’m just trying to get some support. I appreciate any comments. Thank you.
Hopefully my first and last infusion; been 7 months and the pain is still strong. Continue to have many sluggish days, both shoulders, right more than left awful pain, and left foot, all worse at night! I do not think I have slept a full night since having the infusion. Dr wants to do another infusion in June and recommend I go to Rheumatology because Reclast doesn’t have these side effects, well, yes it does! One thing that seems to stand out, stay very hydrated , might help. I have complications that prevent me from consuming large amounts of fluid and that might be some of my problem! Not sure how long this aches and pain is here for but it has already over stayed it welcome!
It is perfectly reasonable to be tepid and hesitant when approaching a major medication decision, especially power medications like ones for osteoporosis. Weighing the pros and cons of starting treatment can play a large role in decision-making. Do potential side-effects outweigh the risks of not taking medication and risking fractures that could be more detrimental to your long-term health?
Mayo Clinic Connect is a great place for members to get real-life experiences from others who have been in their situation. It is also important to note that when discussing medications we often read about the negative experiences more than the positive ones. You may find the following discussion worth reading where a member shares their experience with delaying treatment after reading negative experiences on Connect and wishing they had started treatment sooner:
I agree! This place has been very helpful in helping me make my decision. One woman posted her MD told her after her Reclast and continuing severe pain that 40% of people have severe side effects with Reclast.
As I currently have a 15% fracture risk over ten years, and Reclast has a 40% chance of serious side effects, it made my decision to not take it much easier.
I'm not ruling it out altogether for the furture (or other bisphosphonates) and I do know that reviews are skewed towards the negatives.
This is a great resource! Thanks very much for your thoughts.
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Hopefully my first and last infusion; been 7 months and the pain is still strong. Continue to have many sluggish days, both shoulders, right more than left awful pain, and left foot, all worse at night! I do not think I have slept a full night since having the infusion. Dr wants to do another infusion in June and recommend I go to Rheumatology because Reclast doesn’t have these side effects, well, yes it does! One thing that seems to stand out, stay very hydrated , might help. I have complications that prevent me from consuming large amounts of fluid and that might be some of my problem! Not sure how long this aches and pain is here for but it has already over stayed it welcome!
I agree! This place has been very helpful in helping me make my decision. One woman posted her MD told her after her Reclast and continuing severe pain that 40% of people have severe side effects with Reclast.
As I currently have a 15% fracture risk over ten years, and Reclast has a 40% chance of serious side effects, it made my decision to not take it much easier.
I'm not ruling it out altogether for the furture (or other bisphosphonates) and I do know that reviews are skewed towards the negatives.
This is a great resource! Thanks very much for your thoughts.
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