Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Posted by Terri Martin, Volunteer Mentor @windwalker, Apr 27, 2018

Anyone want to talk about Raynaud's Syndrome? My daughter has a severe case of it. I would like to start a support group here on Connect to find others, share our stories, treatments and managing daily life.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

mireckij | @mireckij | Jan 8 8:53am

In reply to @mef51 "I seem to have missed part of this conversation. Does anyone have recommendations on heated gloves?" + (show)

A quick search on Amazon shows a wide variety of battery-powered and compression gloves. Search using "Raynauds, gloves"

hubert | @kuma | Jan 8 9:35am

I love the Mayo Clinic.🙏❤️

patj123 | @patj123 | Jan 8 10:11am

In reply to @dancing1 "Does anyone else besides the terrible cold hands and fingertips have swollen finger tips that are..." + (show)

I have the same problem with my fingertips. At first they hurt so much I could not touch anything. I like neosporin with pain killer. I apply a dab to the painful sores and either wrap a large bandaid around them or wear loose cotton gloves. My rheumatologist also presccribed sidenafil 20mg 3 times a day and while I have to be careful I no longer have the intense pain.
Also, I try to keep my fingers moving with a squeezy ball.

dancing1 | @dancing1 | Jan 8 10:24am

In reply to @patj123 "I have the same problem with my fingertips. At first they hurt so much I could..." + (show)

Thank you so very much I will ask my Nuerologist about this in a chat today. Thank you again so much. I can’t believe how painful this has been.

joanthompson | @joanthompson | Jan 9 11:22am

My fingertips get scaly painful & numb. I use Lidocaine spray for pain it works well. It’s important to keep hands moist with a lotion that contains Lanolin. Wear gloves when you wash dishes and for me heated gloves have saved me a lot

mef51 | @mef51 | Jan 10 8:38am

What kind of heated gloves do you use?

boatart | @boatart | Jan 11 3:06am

In reply to @joanthompson "My fingertips get scaly painful & numb. I use Lidocaine spray for pain it works well...." + (show)

I have prescribed Tildium
It’s a calcium channel blocker. For me it is really helping

joanthompson | @joanthompson | Jan 11 8:55am

I don’t do well with Calcium Channel Blockers. The Sildenafil works well for me for circulation.

boatart | @boatart | Jan 11 12:33pm

In reply to @joanthompson "I don’t do well with Calcium Channel Blockers. The Sildenafil works well for me for circulation." + (show)

Gosh. Doesn’t just go to show his different drugs affect us differently !!
Good luck.

LisaY1 | @lisay1 | Jan 12 12:47pm

I have Raynaud's and Sjorgrens as a secondary symptom to Reheumatoid Arthritis. The only thing that I have taken (or was suggested) for this is Restasis (eyes) and Pilocarpine ( for nose and throat). I hate the Pilocarpine. It gives me really bad chills. I was told something interesting by my RA doctor. She said if you break out in your eyebrows it's a sign of Sjorgrens Syndrome. It has been true for me. There are blood tests that will show if your Sjorgrens is active.

I wish you all the best! 🌺