Do opioids help with your chronic pain? - Successfully?

Posted by creyn51 @creyn51, 3 days ago

I used Opioids Post Surgery after my surgeries failed - successfully for 3 months. CRPS had set in both feet. Immediately after prescribing my third prescription for Opioids, my Surgeon pronounced me cured and discontinued any further care. December of 2016 was the last time I received a narcotic for my Pain. Just when I needed them the Most, I was Banned from any further Successful Pain Medication as Every New Pain Clinic told me that Opioids do Not Work for CRPS.
At a time when they are needed the most I have been Red Flagged as a Criminal Medicine Seeker and heard every excuse that Opioids do Not Work,and, are Not acceptable for long term use of over 3-6 months. Not even a Trial. I am unable to use NSAIDS. Gabapentin and Lyrica do not work and had too many side effects,
My research showed that Opioids should be used immediately if Nothing Else Works as TIME IS OF THE ESSENCE in treating CRPS. DO Opioids work on Your Pain? Do No Harm _ Do Nothing...

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Do you have a clinic called Olympia Neurologal Institute anywhere near you? They treat patients like HUMANS (not cattle or a number) and first of the year automatically send in pre authorization for pain meds to insurance companies so meds get approved when you fill them. And their people actually CALL. They don’t play the “fax and wait” game.
If you can find one near you, even if you have a drive a little, they fill meds every 28 days. And they advocate for their clients. They were a godsend.

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@msmom2014

Do you have a clinic called Olympia Neurologal Institute anywhere near you? They treat patients like HUMANS (not cattle or a number) and first of the year automatically send in pre authorization for pain meds to insurance companies so meds get approved when you fill them. And their people actually CALL. They don’t play the “fax and wait” game.
If you can find one near you, even if you have a drive a little, they fill meds every 28 days. And they advocate for their clients. They were a godsend.

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Do opioids HELP! Thank you for your reply. This will help some people in Oklahoma and Texas. Unfortunately not in my state of Indians. Thank you very much.

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My new doctor took my pain meds away. Yes they do help tremendously. However she doesn't believe in taking them. She thinks I'm a manipulator since I have so many problems. I have fibromyalgia and degenerative disc disease and she said she had it worse than me and ignored the fact my neck pops 24/7. Now I'm barely able to work. She has totally wrecked my life. She decided to take my 3 dose a day xanax and put me on klonopin once a day. My anxiety is off the charts. Now she has moved on and I now have to try the 3rd new doctor. I pray he believes me but I have a month to worry about it and still my meds aren't being called in correctly and I doubt they will be.

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@amyjowwilliams1

My new doctor took my pain meds away. Yes they do help tremendously. However she doesn't believe in taking them. She thinks I'm a manipulator since I have so many problems. I have fibromyalgia and degenerative disc disease and she said she had it worse than me and ignored the fact my neck pops 24/7. Now I'm barely able to work. She has totally wrecked my life. She decided to take my 3 dose a day xanax and put me on klonopin once a day. My anxiety is off the charts. Now she has moved on and I now have to try the 3rd new doctor. I pray he believes me but I have a month to worry about it and still my meds aren't being called in correctly and I doubt they will be.

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I am sorry about the pain and suffering that you are going through. Only you can tell the Doctor what you are going through. Everybody's Pain is different. Doctors today treat Patients as if the Patient is the Pain and by dismissing the Patient makes the Doctors' Pain go away. Pain Patients are Not the problem, Doctors and the Government are.
I have CRPS Type 2 which is rated as the most Painful Chronic Disease EVER Known to Human Beings and not One Doctor gives a damn. I would encourage you to reach out to a good Psychologist LCSW as mine has been my lifesaver the last 7 years. I use LiveHealth webcam service every WEEK for the last 7 years to get a Check Up from the Neck Up every week. Thank you Sylvia and God Bless You.Both.

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They helped me for 10 years. They helped me stay active, exercise, walk my dogs, work, attend all my family functions, etc. They kept me out of a wheelchair. The biggest problem I had was needing dose increases for them to keep working. It took me 10 years to reach 200mg of oxycodone per day. So, all of my dose increases during those years were pretty small. Also, going for doctor’s appointments every month for new prescriptions, random urine tests, pill counts, occasional pharmacist conflicts, etc. were all issues.

My pain doctor told me his clinic has a 200mg per month limit, so he couldn’t give me any more increases, and opioids became worthless to me at that point. They also affect many bodily functions, like bowels and hormone production. I started supplementing with testosterone at higher opioid doses because the opioids suppress testosterone and other hormone production.

Now I am on 16mg per day of buprenorphine (Subtex - not Suboxone), which keeps me from going into opioid withdrawal, but it doesn’t help much with the pain.

I would go back to opioids for pain management if they were easier to get. But I have no interest in going back to the system that currently controls their distribution. It’s very degrading. And eventually, my dose would creep up again, and they would stop working. I think the days of patients taking 800mg to 1200mg of opioids (like pre-opioid crisis levels) are over. And they cause lots of physiology and psychology problems at those doses.

Hope this helps.

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I am so sorry for your pain and suffering and for being jacked around by a Broken Medical System. Thank you for telling it like it is and for having the courage and wisdom to be a true Pain Warrior.
God Bless You and all long suffering Pain Patients.
Craig

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Yes, They do. I have been using the same amount of Norco for at least 18 years, have never needed more and if I didn't have them, would not be able to move! In spite of what is said about them, I
have to ignore all of it after I read it. I know what works for me and have even tried the OTC meds recommended to others, but only the opiods work.

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@bluehorse10

Yes, They do. I have been using the same amount of Norco for at least 18 years, have never needed more and if I didn't have them, would not be able to move! In spite of what is said about them, I
have to ignore all of it after I read it. I know what works for me and have even tried the OTC meds recommended to others, but only the opiods work.

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By the way, oxycodone doesn't work as well. After reading the above, I thought about trying it and not having the same experience although it is supposed to be the same med only stronger.

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It appears you may be handed a pile.... I receive routine prescriptions for opioids to help deal with my chronic pain. The process is regulated and according to the prescribing doctor, the state requires a separate license for doctors to prescribe opioids. Check with a hospital clinic doctor to see if the there doctor is willing to prescribe appropriate pain medication to help mitigate your pain. (Chronic pain is very difficult to treat.) ED routinely prescribe pain meds, because I believe they are not monitored as closely as individual doctors.

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Thank You for your contribution in my quest for Truth and Justice for the American Pain Patients and a return to Quality of Life for Myself. God Bless ALL the Suffering and Forgotten Pain Patients.
Amen

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