1. < Hypertrophic Cardiomyopathy (HCM)
Moderator

HCM-ers: Introduce yourself or just say hi

Posted by Colleen Young, Connect Director @colleenyoung, Oct 25, 2016

Welcome to the Hypertrophic Cardiomyopathy (HCM) group on Mayo Clinic Connect - a place where you can connect with others, learn about living HCM, share experiences and exchange useful information.

I invite you to follow the group. Simply click the follow icon image-f6386d0357e2 on the group landing page. 

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. I look forwarding to welcoming you and introducing you to other members.

Why not start by introducing yourself here?

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

archer | @archer | Jul 23, 2019

---Thanks. Your post does indeed help. My Toprol dosage is 50mg twice a day and Losartan 25mg once a day. Not sure why it is not Lisinopril (the ACE inhibitor). This, we are told, is fairly standard. My stress test is tomorrow afternoon. Really hope to survive it without my morning Toprol. Without it, there is usually continuous angina and unsteadiness. Have you ever had a stress test and had to abstain from the beta blocker? Again, sincere thanks.

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2 replies
timdines | @timdines | Jul 23, 2019
In reply to @archer "---Thanks. Your post does indeed help. My Toprol dosage is 50mg twice a day and Losartan..." + (show)
@archer

---Thanks. Your post does indeed help. My Toprol dosage is 50mg twice a day and Losartan 25mg once a day. Not sure why it is not Lisinopril (the ACE inhibitor). This, we are told, is fairly standard. My stress test is tomorrow afternoon. Really hope to survive it without my morning Toprol. Without it, there is usually continuous angina and unsteadiness. Have you ever had a stress test and had to abstain from the beta blocker? Again, sincere thanks.

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If you run into trouble on the test then stop. You are not expected to go beyond your limits.

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1 reply
falconfly | @falconfly | Jul 23, 2019
In reply to @archer "---Thanks. Your post does indeed help. My Toprol dosage is 50mg twice a day and Losartan..." + (show)
@archer

---Thanks. Your post does indeed help. My Toprol dosage is 50mg twice a day and Losartan 25mg once a day. Not sure why it is not Lisinopril (the ACE inhibitor). This, we are told, is fairly standard. My stress test is tomorrow afternoon. Really hope to survive it without my morning Toprol. Without it, there is usually continuous angina and unsteadiness. Have you ever had a stress test and had to abstain from the beta blocker? Again, sincere thanks.

Jump to this post

No stress test as I have had multiple schlerosis for almost 20 years and am in a wheelchair 24/7 and cannot stand. I only see my heart doctor once a year (wish it were a little more) and before he sees me he sends me down for an echocardiogram...Another doc put me on the Holter Monitor for 24 hrs and found the afib....I think they watch you very closely when giving the stress test and will take you off of it if you have any signs of distress....Be sure to tell them if you do....You will make it fine and hopefully it will give them more insight to your problem...

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archer | @archer | Jul 23, 2019

---Thanks. Will dutifully take the stress test and will let them know of any difficulties. Will also send you a note here. ---Sounds as though you have a fine system of care. My very best to you. Again, sincere thanks. Very kind of you to take the trouble.

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falconfly | @falconfly | Jul 24, 2019

Please let us know how it goes and keep us updated on yourself...

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archer | @archer | Jul 24, 2019
In reply to @timdines "If you run into trouble on the test then stop. You are not expected to go..." + (show)
@timdines

If you run into trouble on the test then stop. You are not expected to go beyond your limits.

Jump to this post

Thanks. Will do.

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Kurt | @kurt_e | Jul 28, 2019

Hello. My name is Kurt, and I have recently been diagnosed with HOCM. I live in Birmingham, AL and have just been given an appointment to see Dr. Ommen and then myectomy with Dr. Schaff in October at the Rochester clinic. Seems like a long time to wait for surgery, as my symptoms have been progressively worsening over the past several weeks. Is a 3 month wait time typical? Thanks...

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sheim | @sheim | Jul 28, 2019

Hi Kurt, I just had a myectomy a month ago and I think that is about the time frame I waited.

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1 reply
Kurt | @kurt_e | Jul 28, 2019
In reply to @sheim "Hi Kurt, I just had a myectomy a month ago and I think that is about..." + (show)
@sheim

Hi Kurt, I just had a myectomy a month ago and I think that is about the time frame I waited.

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Thanks. Who did your surgery and how was your experience?

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2 replies
rrowner2 | @rrowner2 | Jul 28, 2019

My husband waited 3 months and Dr Schaff was his surgeon last October

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