1. < Polymyalgia Rheumatica (PMR)

PMR in cold or inclement weather

Posted by crhp194 @crhp194, Mar 2, 2020

Does any sufferer of PMR think that cold weather can kick off PMR? I have had giant cell arthritis in the chest for several years but PMR only once before. After being out in Florida cold (50-59 degrees) for about 4 hours and in 15mph wind on a boat for 1 hour I was extremely sore the next day but felt it was from walking on a beach and bending over. The pain and soreness continues and it makes sleeping difficult. Wondering if anyone has had this happen to them. Thank you to any who may respond.

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kaydall | @kaydall | Dec 3, 2024

I'm wondering about the same thing. Last winter i was at 10mg and no real weather impact, but this year I'm at 4mg and the cold snap with lows in the 20s (in the SE) and I have significantly more hip pain. Only variable seems to be the weather since I was fine at 4mg before it got colder. Any thoughts from other people with similar experiences?

Also, have you continued to taper with increased seemingly weather related pain or hold at a current level?

REPLY
1 reply
wfroslansky | @wfroslansky | Dec 4, 2024
In reply to @kaydall "I'm wondering about the same thing. Last winter i was at 10mg and no real weather..." + (show)
@kaydall

I'm wondering about the same thing. Last winter i was at 10mg and no real weather impact, but this year I'm at 4mg and the cold snap with lows in the 20s (in the SE) and I have significantly more hip pain. Only variable seems to be the weather since I was fine at 4mg before it got colder. Any thoughts from other people with similar experiences?

Also, have you continued to taper with increased seemingly weather related pain or hold at a current level?

Jump to this post

I turned up my thermotstats. Seems to definitely help. Bill

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rereskj | @rereskj | Jan 3 10:05am

I know I’m a little late to the discussion, but I just found this when I was researching. I live in COLORADO, very dry here I have gone into remission with the PMR and life was moving pretty good- then bam there were days that I would wake up and it felt like the very first morning. It hit me a little over a year ago, where I couldn’t even move to get out of bed & I started to notice a pattern. About one to two days before a snow event, which could be 1 inch to 28 inches predicted as the barometric pressure changed so did the pain in my muscles. I’m just a human barometer now. Don’t even have to Doubt the weather persons forecast, I just go how I feel and that means it’s a SNOW event.

REPLY
1 reply
sandiw77 | @sandiw77 | Jan 4 4:44am
In reply to @rereskj "I know I’m a little late to the discussion, but I just found this when I..." + (show)
@rereskj

I know I’m a little late to the discussion, but I just found this when I was researching. I live in COLORADO, very dry here I have gone into remission with the PMR and life was moving pretty good- then bam there were days that I would wake up and it felt like the very first morning. It hit me a little over a year ago, where I couldn’t even move to get out of bed & I started to notice a pattern. About one to two days before a snow event, which could be 1 inch to 28 inches predicted as the barometric pressure changed so did the pain in my muscles. I’m just a human barometer now. Don’t even have to Doubt the weather persons forecast, I just go how I feel and that means it’s a SNOW event.

Jump to this post

Hi @ rereskj,
I have told my husband many times that I apparently missed a late career in meteorology—who knew that I would end up so accurate in my weather predictions. I live in Texas and have discovered that high humidity levels and rain can send me into a tailspin. I am taking a new biologic due to my difficulties with tapering prednisone and am praying that it helps alleviate some of the random pain. Fingers crossed! ❤️

REPLY
1 reply
hendrika | @hendrika | Jan 4 7:49am

I live in Canada and most definitely the barometric pressure affects my pain level. I've had PMR for over years. Managed to get down to 2 or 3 mg prednisone, but pain increases dramatically with snow storms. Winter is my worst time. Also discovered that red wine increases my pain the next day. White wine, seems to be OK.

REPLY
elleninz | @elleninz | Jan 4 11:36am
In reply to @sandiw77 "Hi @ rereskj, I have told my husband many times that I apparently missed a late..." + (show)
@sandiw77

Hi @ rereskj,
I have told my husband many times that I apparently missed a late career in meteorology—who knew that I would end up so accurate in my weather predictions. I live in Texas and have discovered that high humidity levels and rain can send me into a tailspin. I am taking a new biologic due to my difficulties with tapering prednisone and am praying that it helps alleviate some of the random pain. Fingers crossed! ❤️

Jump to this post

Hi. What is your biologic?

REPLY
1 reply
sandiw77 | @sandiw77 | Jan 4 9:27pm
In reply to @elleninz "Hi. What is your biologic?" + (show)
@elleninz

Hi. What is your biologic?

Jump to this post

I’m on Actemra. I started with a monthly infusion about 3 months ago but my doctor switched me to injections a few weeks back. I believe I am starting to see some improvement but it’s been slow. I was hoping for instant relief because my pain has been ridiculous but I’m grateful that I have not had any side effects. Praying fantastic progress is in my future. Good luck! ❤️

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