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Living with LPSVS (long post-COVID vaccination syndrome)
Has anyone experienced long-covid symptoms from the vaccines. I have been searching for 10 months now for the cause of my severe fatigue. I have been sent to an ENT, a cardiologist, a hematologist and undergone so many tests/scans. My doc told me a few days ago that he is stumped. No idea. Come back in a month. I pace myself to get through a day. Is this LPCVS? Is there something to do besides pace oneself? Should I ever get another covid vaccine?
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My antiphospholipid syndrome (clotting disorder) is now in remission (yay!) as the lupus anticoagulant antibody is no longer present. I was taking blood thinners (Pradaxa) for 3 years for that one. Because I was on the blood thinners at the time of my diagnosis of Sjogren’s, my only option was hydroxychloroquine (Plaquenil), which I actually have had amazing results with for my symptoms and still take today. We may reevaluate that one now that I am off blood thinners and have more options, but it would have to be something that continues to give me the same management of symptoms.
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2 Reactions@debbie75 Mayo prescribed a course of Cymbalta and Naltrexone for a period of time. My supplements were recommended by another medical professional and endorsed by Mayo. I have found that most Doctors are agnostic on supplements. My supplements are B Complex, Magnesium L Threonate, CoQ10, Vitamin C, D-Ribose, Nattokinase, and a multivitamin. I still suffer from LC and for me moderation is key. If I moderate I feel a bit better some days than others. By no means am I cured of LC so are the supplements really helping? I honestly can't answer that without completely stopping to see if there's a change to the worse. I have moved on to Dr. Bruce Patterson's program in hopes of a solution there.
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2 ReactionsYes I think the vaccine opened the door for Covid. 7 months after the vaccine I got Covid. that was Nov. 2022 and now I have Long Covid. I will never get another vaccine.
Thank you for your response and sharing information. I've been doing some searching on Dr. Patterson's program but am finding it difficult to find specifics about the program. If you feel comfortable doing so, would you mind sharing what his program entails? Again, thank you for your response. Best wishes!
Find the newer YouTube interviews which will provide more than I can possibly summarize. I found out about him from a post on this site. I’ve just begun the process which starts with blood lab that he has designed.
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3 Reactions@arichards3 T
Thank you, I will check him out on YouTube. Always the last place I look....if only my brain wasn't mush from LC, I might remember to look there also! LOL
If you are able, please keep us posted on how the process works and recommendations you receive. One more thing, did your insurance cover the lab work or do you know yet?
Thanks again for sharing, hoping this brings you answers, treatment and healing!
I have the paperwork to file with Medicare, but I don't have much hope it will be covered. I want my life back and nearly any price is worth it to get it back.
Grab a cup of coffee, and watch the interviews 10 minutes at a time. I found the conversations interesting, motivating, but at times I needed the mental break and would pick back up where I left off. Hope is a wonderful Drug!
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3 ReactionsI have this. It damaged my nervous system and I ho in and out of remission. Its turning into a nuropathy. When out of remission they treat it with prednisone. I have been to 17 doctors no one knows anything. Accupuncture helps
B12 shots twice a month also help along with craniosacrial massage. Im going on 3 years. It will eventually kill me.
What blood labs are involved snd what are you looking for?