1. < Osteoporosis & Bone Health

My Experience on Evenity for Treating Osteoporosis

Posted by arlene7 @arlene7, Jul 7, 2020

Thought I would share for those considering or on Evenity for osteoporosis:
Afer much research and discussions with my GP and Cardiologist, I have decided to start my treatment with Evenity injections. As with all drugs, there are many side effects. My biggest concerns were stroke and heart attack. However, considering that I do no have any history for either, for me personally, the benefits outweigh the risks. As my GP said to me, "if everyone only thought about the side effects of the drugs, no one would be taking them".

I had my first injections (subcutaneously in the back of each arm) on June 30th. The nurse that administered the injections discussed the drug in depth, along with all the possibilities that may occur. She also mentioned that for all the patients that she has seen, none has had any side effects.

The injections are once a month for only one year, so I'm hoping that this works well for me and I can improve my bone density, especially in my spine, where I need it the most.

My endocronologist has also prescribed Hydrochlorthiazide for my idiopathic hypocalcemia. I have an appointment with an allergist this month to confirm whether I still have an allergy to sulfa drugs, since this drug contains sulfa. Apart from this I take D3 orally and try to obtain additional calcium through foods not supplements. Trying to walk 3-4 times a week and will begin with a few weight bearing exercises.

My journey began September, 2019 when I was diagnosed with severe osteoporosis. After waiting to see three doctors, receiving three denials from insurance company for Evenity, which took several months, I am hopefully on my way for a favorful outcome.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

windyshores | @windyshores | Dec 29, 2024
In reply to @osteoresearch "So Evista is not a bisphosphonate? I was wondering about it as a follow-up after taking..." + (show)
@osteoresearch

So Evista is not a bisphosphonate? I was wondering about it as a follow-up after taking Tymlos. Has anyone done this combo with good results?
My mom died of breast cancer so just being cautious with choices I’m making.

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Evista is not a bisphosphonate.

REPLY
redlo | @redlo | Dec 30, 2024
In reply to @osteoresearch "So Evista is not a bisphosphonate? I was wondering about it as a follow-up after taking..." + (show)
@osteoresearch

So Evista is not a bisphosphonate? I was wondering about it as a follow-up after taking Tymlos. Has anyone done this combo with good results?
My mom died of breast cancer so just being cautious with choices I’m making.

Jump to this post

I too would like to know what people use to lock in gains after using Forteo or Tymlos. I thought our only choice was a Bisphosphonate.

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grammy9 | @grammy9 | Jan 8 6:26pm
In reply to @loiscapecod "I have been on Evenity for almost a year and just had a bone density test..." + (show)
@loiscapecod

I have been on Evenity for almost a year and just had a bone density test so not sure if it works. My insurance does pay for it though. I will follow up with the results of my test. I have lost almost 4 inches of height so I wish there was something that would help. I also have severe scoliosis which affects my balance. I need a new spine!!!

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How are you now?

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hmb72 | @hmb72 | Jan 20 10:07am

Follow up to my Dec 24 post. I had Evenity in May and June 2024; Started HRT in Aug 2024; Reclast in Sept 2024. Here are my bone density T scores:
12/23 Spine -3.1; Left Femoral Neck -2.8; Total Hip -3.1
1/24 Spine -2.0; Left Femoral Neck -2.7; Total Hip -2.7 newly tested Forearm -3.2

I'm really pleased with the changes. I'll stay on HRT and have a Reclast around Oct 2025.

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1 reply
mayblin | @mayblin | Jan 20 10:34am
In reply to @hmb72 "Follow up to my Dec 24 post. I had Evenity in May and June 2024; Started..." + (show)
@hmb72

Follow up to my Dec 24 post. I had Evenity in May and June 2024; Started HRT in Aug 2024; Reclast in Sept 2024. Here are my bone density T scores:
12/23 Spine -3.1; Left Femoral Neck -2.8; Total Hip -3.1
1/24 Spine -2.0; Left Femoral Neck -2.7; Total Hip -2.7 newly tested Forearm -3.2

I'm really pleased with the changes. I'll stay on HRT and have a Reclast around Oct 2025.

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Hi @hmb72 congrats on the great results! Could you clarify the scan dates, the year might be off one digit?

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hmb72 | @hmb72 | Jan 20 11:35am

gosh, thanks for catching that! It was January 2025 that I had the second Dexa Scan.

Date Spine, L Femoral neck, Total hip, L forearm
12/2023 -3.1, -2.8, -3.1 not done
01/2025 -2.0, -2.7, -2.7 -3.2

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broken13 | @broken13 | Feb 13 11:07am
In reply to @mayblin "@broken13 Evista is a SERM - Selective Estrogen Receptor Modulator. It is not an estrogen but..." + (show)
@mayblin

@broken13 Evista is a SERM - Selective Estrogen Receptor Modulator. It is not an estrogen but acts like an estrogen - it binds to estrogen receptors selectively in the body, either mimicking or blocking the effects of estrogen depending which tissues are involved. For those of us who are at higher risk of breast cancer, it's a good substitute for HRT since it prevents breast cancer in postmenopausal women. Its antiresorptive effect is mild to moderate when compared to fosamax or reclast. Ive considered using it but opted for hrt in the end. It's very nice that you used it for 5 years with success 🙂

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Thank you Mayblin for your reply and knowledge! Which HRT therapy did you opt for instead? I do NOT want to use. I know doctors prefer recast or fosamax after Forteo and now Evenity, but that lessens the benefit of Forteo or Tymlos if you should have to take it again. I am nervous about Evenity because of my reaction to Prolia and the side effects mentioned. One doctor on sequencing actually suggested only 4 months of Evenity, as after that it acts more like Prolia. It seems such a hit and miss journey.

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mayblin | @mayblin | Feb 16 11:51am

Sorry @broken13 i missed your message. My HRt consists of transdermal patches of estradiol 0.025mg/day and an oral micronized progesterone 100mg taken daily at bedtime.

Sequencing gets tricky once one has taken multiple osteodrugs, doesn’t it? I think there aren’t good answers yet given the limited clinical studies in long term management of osteoporosis, especially facing comorbities as we age.

Wish you a great success with the retreatment of Forteo. Keep everyone posted!

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